Living with NEHI

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When three-year-old Alida was born prematurely, her parents, Aaron and Debbie, never expected she would have a rare lung condition that affects less than 500 children worldwide. Known as neuroendocrine hyperplasia in infancy (NEHI), the disease causes the cells that transport oxygen into the bloodstream to overproduce. This hyper-production of cells acts like a surplus of filters in the lungs and prohibits air from efficiently passing through all of the cells to saturate the blood.