Living with Butterfly Skin

This video is unavailable because we were unable to load a message from our sponsors.

If you are using ad-blocking software, please disable it and reload the page.
Playing
It’s been labeled the worst disease you’ve never heard of. John Hudson Dilgen, 11, explains what it's like to live with epidermolysis bullosa, a terminal skin disease that results in extremely fragile skin that blisters and tears at the slightest touch.