Epidermolysis Bullosa

The Boy with the Butterfly Skin

Pediatrician Dr. Jim Sears meets John Hudson, a young boy living with epidermolysis bullosa, a rare terminal skin disease that results in extremely fragile skin that blisters and tears at the slightest touch.

Living with Butterfly Skin

It’s been labeled the worst disease you’ve never heard of. John Hudson Dilgen, 11, explains what it's like to live with epidermolysis bullosa, a terminal skin disease that results in extremely fragile skin that blisters and tears at the slightest touch.

Surprise for Boy Living with EB

Pediatrician Dr. Jim Sears meets John Hudson Dilgen, an 11-year-old boy living with epidermolysis bullosa, a rare, terminal skin disease that results in extremely fragile skin that blisters and tears at the slightest touch. The Doctors surprise John...