How Woman Perseveres after Losing Leg to Rare Disease

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Playing Woman Lost Her Leg to Rare Disease

The Doctors welcome Nayelly, who began experiencing unexplained swelling in her ankle, which led to the amputation of her leg. She shares how she made that difficult choice and how she is able to persevere and stay positive despite this major life change.

When the swelling began she underwent a battery of tests and procedures, including biopsies, MRIs, and x-rays and she was finally diagnosed with pigmented villonodular synovitis (PVNS), which is also known as intra-articular giant-cell tumor of the tendon sheath, is a joint disease characterized by inflammation and overgrowth of the joint lining, becoming benign tumors. There is no cure for PVNS. Doctors told Nayelly she was at risk of losing her knee unless she amputated her leg. Having to make this seemingly impossible decision, Nayelly became severely depressed.

Watch: How Amputee with Rare Disease Remains Positive 

"I thought there wasn't any point of living," she tells us. "But I knew I had to keep going."

Nayelly decided to amputate her leg. "My goal is to inspire others... even though you lose your leg, you can't give up... you have to keep achieving your goals."

Watch: This 8-Year-Old Amputee Dreams of Running

Despite her major health hurdle, Nayelly is staying active and still working out, which was something she did before being diagnosed with PVNS. She says other athletes with prosthetics inspired her to make this difficult choice and have shown her losing a limb should not stop her from living her ebst life.

The Doctors surprise Nayelly with a visit from double amputee gold medalist Jami Marseilles who vows they will one day run together "You exude positivity... how you handle your life with grace is just such a blessing for all of us," Jami tells Nayelly. Also, The American Association of Nurse Practitioners gifts Nayelly $5,000 with her expenses and medical bills.

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