Why Woman with Debilitating Disorder Lives Life as a Doll

Amber liked to dress like a Japanese-style doll before she was diagnosed with muscular dystrophy when she was 18, but after the diagnosis she says she embraced the dolly identity to help cope with the debilitating condition.

Muscular dystrophy is a hereditary condition marked by the progressive deterioration of the muscles. There is no cure. ER physician Dr. Travis Stork explains that in Amber’s case, a specific protein did not form the way it should, causing her muscles not to develop properly and to break down over time.

“There was definitely a fork in the road,” Amber says. “I could have either been sad and depressed or move on and accept this life. I was already dressing in the dolly style, but once the diagnosis came, I decided to kick it up a notch. This is what I am now, and I can’t change it, but seeing myself as a doll doesn’t seem so bad.”

See how muscular dystrophy is affecting Amber’s daily life and how dressing as a doll helps her live life to the fullest.

Amber joins The Doctors and shares how people react to her when she’s dressed up as a doll and when she’s not.

Visit Amber’s YouTube channel to see how she’s helping others with muscular dystrophy.