Living with Parry-Romberg Syndrome

Virginia joined The Doctors last year to share her experience living with Parry-Romberg syndrome, a rare disorder characterized by a gradual deterioration of the skin and soft tissues in half of the face. At the time, she said she often covered the left side of her face with her hair and applied heavy layers of makeup to help conceal her condition. She also said she hadn’t seen a doctor in more than 10 years because she felt that nothing could be done for her. 

The cause of Parry-Romberg syndrome, also known as progressive hemifacial atrophy, is unknown, though the disorder is more prevalent in females and typically presents between the ages of five and 15.

Neurological surgeon Dr. Neil Martin explains that in some cases, the condition can impact brain tissue on the affected side, which can lead to atrophy or shrinking of the brain, seizures, and sometimes neuralgia – a sharp, burning pain in the brain.

Moved by Virginia’s story, plastic surgeon Dr. Andrew Ordon offered to perform the surgery to correct the imbalance in her appearance.

Watch as Dr. Ordon and his partner Dr. Ritu Chopra perform Virginia’s facial surgery, and see how she looks now! 

Today, Virginia reveals her new look, which she describes as “flipping fantastic!” Dr. Ordon explains that the complex surgery involved re-suspending her left eyebrow through a forehead lift, as well as a temple lift and an eyelift. He says he and his team also injected some of her own body fat in order to fill out the cheek and under-eye areas, which had lost volume due to her disorder.