In 1997, at the age of 37 years old, I was diagnosed with MS. The onset of it was problems with my eyesight. I had optic neuretis - went to the opthamologist and days later he sent me to a Neurologist. As soon as the eye doctor said neuro I knew what I had. I knew because my step father had it for many years. I knew what to look for. The doctor did several test including a spinal tap and it was determined that I had MS. Since, my optic neuretis cleared up a little and the only other symptom was goosebumps on my legs where the nerve endings were, the doctor decided that I wouldn't have to go on any treatment yet.
But, as years went by and weakness along with the other symptoms, I was put on Copaxone. Dreading the needle every other day was bad... I didn't give it to myself, my husband did. But after a couple of months its side effects were unbearable and we changed to Avonex - another inferon. I was on it for two years and every year in the hospital for another relapse so bad that I wouldn't be able to walk. When put in to hospital I was given 3 days of 1,000 mg of steriods and then sent home with prednisone for a month.
Then in 2005, I was diagnosed with Breast Cancer at the age of 38. What a blow. With the Chemo and taking the once a week dose of Avonex the side effects were horrible, so my oncologist took me off the Avonex and I have been off the drug for 3 1/2 years. I have been in remission of my MS since the chemo, radiation and surgery 3 years ago. I was beginning to think that I would never get the MS back. Well, surprise, surprise, a couple of months ago, I started with the goosebumps on my upper left leg daily and now I am experiencing them on my upper right leg occasionally.
I don't want to have to go back on the Avonex or any drug for that matter, since I have been drowned by all the toxins from the chemo that I just don't want anything else foreign in my body.
So my question to any of you who have MS is... Do you know of any alternative treatments for this disease? Natual seems to be the way I am thinking of going but don't know where to start.
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My name is Brandi. I was diagnosed with MS January 2007. I am 31 yrs old. I wish I had an answer for your question. I've been wondering the same thing. I am currently taking copaxone and hate it very much. You have been through alot so my prayers are with you. I just found out I was pregnant the day before I was diagnosed. My neurologist said it would be a good thing because I would be in remission while I was pregnant. Well I was the total opposite. I had several relapses during my pregnancy. If I every find the answer to your question I will let you know. I don't get on the computer everyday but feel free to e-mail me if you would like, if not no hard feelings. My email address is brandidelane@hotmail.com
My thoughts and prayers are with you
brandi
Thanks Brandi for your prayers and concerns. I am going to add you to my friends list and if you need to talk just add me so that we can talk. This website is so new, hope that others with our disease will join and then we can talk with them. Again thanks and talk soon
Wendy
have had MS for 11 years...I am a 47 year old female...had done fine with it until about 3 years ago. In 11 years, I have tried many alternative meds and therapies. I have done a live raw food diet for over a year. I would like to say it helped however, at that time I was not bad with the MS. My legs are now very bad. I think anything you try will help in maybe some small way. I love my alternative doctor; however, I do not only do what he says. I am on Rebif. I think the raw food diet is great for many things...I love what I learned from Hippocrates in Florida....but I do not live that way, I would like to try again. You never know as with the disease something may work for you that may not work for me. I would say try what you feel in your heart. Good luck...and keep a positive outlook....there will be a cure!
Juls
I am the same way as you with trying a bunch of different medications. I was diagnosed August 2006 at 25 years old. I lost peripheral vision in my right eye, and went to optimitrist. Ultimately, I was diagnosed with M.S. :-( The first interferon I tried was the Avonex when I had someone to inject me with it because it was to painful for me to do it to myself. When I eventually did have to inject myself I just couldn't do it so I switched to Copaxone. This was a bad move for me, the medication didn't agree with me. My next option was Rebif (3x a week). I personally love it. I get side affects occasionally but now I just take it before I go to sleep. The needle is thin and it's not long. They even give you this instrument to put the needle in, you push a button and it injects you. Hence, my roommate or my boyfriend don't feel odd about giving me my injection. Hope this helps!
Much love from Louisiana
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