My daily life is not what I wish it to be, I have plenty of hobbies that I can do at any time, but I seldom have the energy. By the time I have all the components gathered to start a project, I have become too weak to enjoy myself. This causes clutter, or more energy that I do not have to put it all away. So most of my day is spent either on the computer visiting with friends, researching the different syndromes that I have been diagnosed with or helping someone else research their diagnoses.

I do not have a style any longer because of my weight gain. My doctors want me to walk to try and lose the weight, but having so much scar tissue and IC cause a great more amount of pain than I am able. But they do not understand how much pain I am experiencing.

I enjoy writing, but there again, I have difficulty finding words to make sentences due to the amount of medications I take and what how they control my brain. I do try though and I do not get discouraged if all the words will not come at once, I will save what I have and come back to it when I am feeling refreshed.

I am married to the most wonderful man. He has slept in more hospital chairs than any one should ever have to. He helps me with anything I need help with, so I try not to make any extra work for him. My lifting ability is limited, so he has to do everything that involves lifting. He cooks when I am having a flare and works a full time job. He seldom complains but listens to me complain all the time.

We have one son, age 29, a firefighter/paramedic. He is married with a beautiful daughter and the cutiest son. His wife is beautiful too. We are very proud of him. He has helped take care of me for years, but now that he is a paramedic, he helps more than ever. I think he finally sees from other people that these pains are real and the pain pills I take are mild in comparison to some that other people take.

We went to Red Lobster for lunch on Valentine's day. It was very crowded and I had a mild anxiety attack, but I got it under control, yes I see a therapist that teaches me cognitive behavior. She is a gem as well. The food and company were great, but it wore me out to get out so I was ready to get back home and take a nap.