• BLOGS: Prurigo Nodularis - Rare Skin Disease with no etiology

    Hello Everyone, How are you doing? My name is Yvonne (Vonnee). I have been suffering with Prurigo Nodularis  since 2008. I started going to my primary care Dtr. for about 6 months before he...

• BLOGS: Rare Neurological Disorder (KLS)

  Hi All, I would like to share with you and bring to everyone's attention, a very rare neurological disorder called Kleine-Levin Syndrome (KLS). KLS is rare illness that most often appears in adolscence. It is primarily characterized...

• BLOGS: Dentinogenesis Imperfecta

  I am trying to get information out about this disorder, and am hoping to make it onto the doctors with my story to get the information out to more people.  They talk all the time...

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