hidradenitis Suppurativa. I have tried everything the pills the doctors have given me clear them up right away but as soon as they are gone and i stop taking the pills they come right back. I'm not supposed to take them everyday just when they flare up well what do i do when it's a constant flare up?? These things are painful and embarrassing. I cant wear tank tops (i live in Texas and not wearing tank tops really sucks) I'm supposed to keep the area as dry as i can to prevent the sweat from getting into the "cysts" but it's really hard when it's in your arm pits. These things prevent me from working, sleeping and i find myself getting more and more depressed. It's not just a physical disorder but a mental one for the fact that I'm afraid if people see my under arms they will freak out. I have scars and lumps from previous flare ups that the doctors say wont go away and cosmetic surgery wont help because they will just come back and continue to scar and lump. I have tried all the medicines i have tried the home remedies, i have been taking turmeric pills on a regular basis and yes they have helped but as of right now i have one under my arm the size of a small baseball. I cant lift my arm i cant hold it to my side i have to sit or stand with my arm slightly away from my body and you try answering people when they ask you why your standing that way. My mother and my sisters all started getting this disorder in their early teens, i on the other hand didn't start to get them until after i moved to Texas three years ago. Doctors were telling me to lose weight because that was a factor, i lost 55 lbs and still no change, i've changed my eating habits lots of fruits, veggies, whole grains and less red meat. Im at a loss. Im discouraged and afraid that i will live with this skin disorder for the rest of my life. I could handle it a lot easier if the flare ups weren't so frequent but it's a daily weekly monthly thing and i just dont know what to do anymore. Can anyone please help me. Please give me some insight something i will take any advice at this point. I have taken all the advice and information i can get over the internet and from my doctors but nothing seems to be helping. The bad thing is when the pain and the swelling get so intense i have no choice but to go to the er and every freaking time they come back and tell me it's a staff infection when i tell them they are wrong they look at me like i've lost my mind. But they are wrong, this isnt the typical boil, cyst, or staff infection.

 

My mother got rid of hers by getting her sweat glands and something else removed from her arm pits, my sister gets hers below the waist and around her waist line she hasnt been able to find anyway to get hers to go away. My baby sister and i just have them under our arms and well surgery right now is just not affordable i cant afford health care on my pay even through my employer. There has got to be some hope. Im sorry to babble on im just so frustrated right now.Like i said if anyone at all can shed some light on my situation i would so greatly appreciate it. Please. Thanks

 

Smplymisunderstood.