I'm a proud mother of three daughters, one in heaven.  I miss her everyday.  But my other 2 daughters keep me very busy!!  I'm married almost 7 years.  We have 2 dogs and 2 frogs.  And I'm almost 30!!  AHHHH!!   I'm a pretty happy person and smile alot, despite my medical conditions.  I'm very grateful for my family and everything we have!  :)

I hadn't entered what was wrong with me but figured instead of blogging it i would put it here.  I have Sarcoidosis, which has turned Neuro.  I have Pulmonary Fibrosis, Arthritis, Perpherial neuropathy, Hypothyroidism, Increased Spinal Pressure (Hydrocephalus--not sure of the spelling), tumor on the pituitary, my human growth hormone was elevated for some reason,  I have chronic pain, headache, dizziness, vision and hearing changes, smelling and taste changes, frequent nose bleeds, Memory loss, extreme fatigue, obstuctive and central sleep apnea.  I'm not a CPAP canidate.  Sensitive to light.  Suffered erythenum nodosum, I am short of breathe.  And just chronic pain!!!  I have a large panel of doctors I see every month.  I have been on almost every medication for my disease and now have problems from being on those medications.  I had a daughter born still in October, who I miss terribly everyday.  Not sure if her death was due to my medications or disease.  I hate being sick and wish we would of been more persistant when I was younger and first started showing symptoms.  But I dealt with it and continued to work. 

I have had one miscarriage, 2 living daughters ages 2 and 4 now, and one stillborn.  All girls!  :)  I love my family very much and hope I'm here to see my girls grow up.  I'm sick of medications and tests.  I would much rather just play with my kids and enjoy each and every day then to travel to the doctors office.  My kids and husband are healthy and happy and that's what gets me through the day.  I love being outside, just have to watch how much sun exposure I get.  But atleast I got to buy some cute hats!!  LOL!  I'm very positive, and feel there is a time and place for everything.  A time to laugh, and a time to cry.  My life has not been easy, and my hubby says I'm too hopeful and giving.  But I think I can't take it with me so why not!  It's truely like men and women are from such totally different planets!!  Sometimes i wonder how I even stand my hubby's ingnorance, but I do love him so much!  I don't know where I'd be without him!  I finally get my disabilty hearing next month.  Have waited almost 2 years.  We are keeping our fingers crossed that I don't get denied again.  I don't know how the system works for it has failed me so far.  Not so sure I believe in God, but I do pray everyday that if he does exsist--that I will get better.  If the pain would go away i would be fine with being sick!  Well, gotta try and get my 8 minutes of sleep I get an hour!!  Isn't that ridiculous!  that's what they said I actually sleep every hour.  No wonder I'm so tired!  LOL!!  Duh!  well, had to end this on a happy note.  That's my life the last 4 years or so!!   :)