ptcruiser's Blog

The Pain of RSD/CRPS

I 'm a 47 yrs old female and have been treated for 12 1/2 years for RSD/CRPS. I have tried different types of pain medicine. Which I get little of no pain relief. Approx 2 years ago they had to take me off the pain meds as they were shutting down my liver.

I tried a Spinal Cord Stimulator in 2002 but, had emergency surgery to remove it as I could walk without falling, keeping balance & Mirgaines. When they removed it they said I had spinal cord damage for the stins moving in the spinal cord area. After a month in the Hospital learning to re-walk and finishing therapy a home I'm doing great. It took me approx 6 month to get better but, not the way I use to be.

Now I suffer from lots of migraines and RSD?CRPS pain. The mirgaines are under controll with Topamax and injections. The RSD/CRPS pain is real bad at times, sometimes not able to do anything because of the pain. I would like to know if they is anything I could do to control the pain without pain meds. I became disabled in 2002 due to the pain and not able to work.

If you have any suggestion or comments please let me know...I just want to be able to manage the pain.

If you have RSD/CRPS I would like to know what worked or not for you.

Thanks,

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stkatesgirl

Have you tried Neurontin? or Gabapentin which is the generic for Neurontin? I ask because I too have RSD and I am on 300 mg of Neurontin 3x a day to help control the pain.  Neurontin can be given safely in dosesages of up to 900 mg 3x a day without causing liver failure or other organ failure. Topamax is great for migraines, but it won't work on RSD pain... My neurologist explained it as Neurontin is more for neural pain, and topamax is better for constrictions of blood vessels which is what happens in migraines and changing the nerves.

Let me know,

Brianna

ptcruiser

Hi Stkatesgirl,

Sorry I haven't gotten back to you. In regards to using Neurontin, I used it for about 3 years and had a real bad reaction to it. I was told I couldn't use it or any drug in that class because it could be fatal next time. I do use topamax for migraines and advert & shots it they get real bad.

Let me know, if you know of anything else. I hope your RSD is under control. The pain gets so bad at times, I just can't handle it.

 

Thank you,

Cindy

ptcruiser

Hi Stkatesgirl,

Sorry I haven't gotten back to you. In regards to using Neurontin, I used it for about 3 years and had a real bad reaction to it. I was told I couldn't use it or any drug in that class because it could be fatal next time. I do use topamax for migraines and advert & shots it they get real bad.

Let me know, if you know of anything else. I hope your RSD is under control. The pain gets so bad at times, I just can't handle it.

 

Thank you,

Cindy

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