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CCSVI and MS

Posted by Jay123 to Disease/Illness, Feb 15, 2010 11:48am

I'd love to see a show devoted to CCSVI and MS (see facebook page http://www.facebook.com/pages/CCSVI-in-Multiple-Sclerosis/110796282297 ). Recent research from the Univ of Buffalo shows the 80% of people who are clinically diagnosed with MS have a CCSVI problem.
This could possibly be the cause and/or cure for MS, millions of people will be interested.
This moves MS from a neurological disease to a vascular disease, so most neurologists are putting this down, I'm not sure if your show will allow it to be produced.
Thanks

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  • pegmegrund
    Feb 15, 2010 12:25pm

    In the US, the media seems to be largely ignoring this theory. The results out of Buffalo show that this theory has merit and needs further attention. I'd love to see a show on CCSVI. Thanks!

  • jewelia
    Feb 15, 2010 12:40pm

    CCSVI is a major breakthrough in the understanding of the cause and treatment of MS. This recent discovery differs greatly from anything else that has been proposed in the past. Mainstream neurology has just got to "get over it" - that perhaps the cause is VASCULAR, not neurological as seen in scientific evidence produced lately. I support this bid to to have this as a topic for one of your shows.

  • maggs970
    Feb 15, 2010 12:57pm

    this would be fantastic if a show was produced on this.

  • cprest
    Feb 15, 2010 1:00pm

    The US has not provided any coverage on the groundbreaking theory discovered by Paolo Zamboni. We need the Vascular comminity to get involved to provide a protocol procedure for CCSVI. This may not reverse advanced sympton's of MS patients but the data to date is showing that it will stop the progression and eliminate some if not all symptons for certain types of MS. We needs doctos that are not afraid of thinking outside the box and are not influenced by the Big pharaceuticals. MS patients in the US deserve to know the facts on CCSVI and the Libertation Treatments. Canada, Britain, Italy and Poland and now the University of Buffalo are reporting on this and doing research as we speak.

  • gingermacqueen
    Feb 15, 2010 1:15pm

    The fact that many Ms'ers are being forced to go overseas for this treatment would be a good addendum to this show.

  • mraven
    Feb 15, 2010 1:34pm

    The possible link between CCSVI and MS has received a tremendous amount of coverage in British Columbia and in some parts of Europe. More importantly is why? An Italian Vascular Surgeon discovered that many if not most CDMS patients have blocked veins in the head and/or neck. After treating these individuals with angioplasty, these individuals began to see remarkable improvement in disease progression and over all health. This small study has caught the attention of the US Medical Society and the NMMS. Currently there are millions of dollars set to be appropriated to various medical schools to further this study of CCSVI. Partial List: Dr. Michael Dake (Stanford), Dr. Ziminadov (University of Buffalo Neuro Imaging Center).......Do some research on this topic, its implications are ground breaking. There is no doubt this would make a great show with a very wide and interested viewing audience. Maybe some of these pioneers in CCSVI research could come on the show to share some of their ground breaking findings thus far, and outline what the future may hold for many illnesses.

  • alextaylor
    Feb 15, 2010 2:03pm

    the Doctors would be the first show in history which is about a brand new discovery of a well known illness: MS

  • Johnms
    Feb 15, 2010 2:42pm

    The back story would be great TV also! All we want is trustworthy health care with no bias.

  • amyroseburke
    Feb 15, 2010 4:07pm

    I would love to see a segment on CCSVI and MS, so many people suffer from MS and it affects everyone so differently, but there is never a clear reason why? When I was first diagnosed with MS my nurologist noticed an artery in my neck sounded suspicious, I even had an ultrasound done; however he dismissed it as not being a problem. I would love to see your show acknowledge this new research!!

  • greece
    Feb 15, 2010 5:15pm

    You're all missing the boat on covering this. MS patients are getting tested, diagnosed and treated meanwhile. . . .

  • zeldr
    Feb 15, 2010 5:17pm

    CCSVI is exciting and important for all people with MS and all those who love someone with MS. I had the testing and treatment done at Stanford by Dr. Michael Dake. I have gained much from opening the veins in my neck. This breakthrough is huge and I hope to see a story about it on The Doctors. Thank you.

  • uscgirl
    Feb 15, 2010 5:30pm

    As a MS sufferer, I think it is a shame that this topic has not already made its way to all shows and news media. We need to think outside the box and try different methods, give ideas a second thought. Dr. Zamboni and the teams in Buffalo and Stanford are just the beginning. Pleaes give us a reason to trust doctors again..

  • Demar
    Feb 15, 2010 5:40pm

    The research regarding CCSVI and the success of its treatment is astonishing. Correctly conducted MRI/MRV or dopplers convincingly picture collapsing of Jugular veins. Reflux of blood back into the brain, according to the research, results in iron deposits that in turn result in inflammation. Those who have had the ballooning or stenting have had the progression of their MS arrested. Many have experienced all or most of the cognitive symptoms improve or disappear. Since most people know someone with MS, I know a program regarding this lifechanging discovery would be of benefit to many. I look forward to correct, unbiased information getting out to the public. Thank you.

  • MariaChristo
    Feb 15, 2010 6:14pm

    MS is one of the worst roadblocks people come across. Myself and countless others in out 20's and early 30's, just at the begining of our lives, experience the words, "You have MS." Just when we seem to come to terms with it, MS takes away our walking, eyesite, or ballance, making us feel like our lives were taken away from us. If so much suffering can be prevented, I ask please, help us spread the word about CCSVI, so that stories like the ones on YouTube and ThisIsMS.com may be pervented. Thank You.

  • catfreak
    Feb 15, 2010 6:48pm

    Don't ignore this like all the other US media. This is the real deal. Those of us who have been tested and treated are proof that CCSVI exists. Now Buffalo has released it's preliminary numbers on their research. We want this research to continue and be available to all MS patients. Thank you!

  • June15
    Feb 15, 2010 7:39pm

    On behalf of MSers, A show on CCSVI is a great idea!

  • Brenda R
    Feb 15, 2010 9:03pm

    Dr. Paulo Zamboni from the University of Fererra Italy has made made a ground breaking discovery in the treatment that has been very successful in treating MS. He has been published in Vascular journals and the research stems from observations that have been made for decades. So far the only major television news story about this incredible Dr. and his work, has been on our Canadian News show W5 in a story by Avis Favro. You would be the first American show to inform and answer questions about CCSVI even though a large successful study at the University of Buffalo has released the first of their results that support Dr. Zamboni's work. Please covering this breakthrough would mean so very much to so many people touched by MS.

  • Bozhena
    Feb 15, 2010 9:26pm

    We need help, but instead we are being ignored. Do we have to travel to Italy or Poland to get better and sooner than later?

  • swilde
    Feb 15, 2010 9:29pm

    I would very much like to see a show by The Doctors on CCSVI and its possible relationship with MS. I have spoken with people that have gone to Poland for the Liberation Procedure. One person with whom I spoke said her double vision went aware, her bladder control came back and her energy levels improved significantly within a day of the surgery. The present MS treatment drugs only promise to slow down the progression of the disease, not reverse symptoms. If you have any further questions, I suggest you refer to the Canadian television show on this topic W5 which aired at the end of November on CTV. Any questions please contact me. *** *** ****. Kind regards, Shannon

  • rasrasras
    Feb 15, 2010 10:32pm

    a good idea for all the above resons and more.

  • Debeem
    Feb 15, 2010 10:58pm

    This is a very exciting thing that we who suffer from MS are very excited about, we hope to spread the word about this new discovery, and hopefully it can conquer this terrible disease!

  • friday
    Feb 16, 2010 3:11am

    Desperate beyong words for even the slightest of improvements for my severe spasms and muscle contractures are unbearable. Please advocate or educate on our behalf and get it out there. Also, please put some focus on the Azygous vein as my thoracic spine is FULL of lesions but not my brain - i'm CONVINCED that my azygous vein is kinked or stenosed and it must be 'Liberated' - let the blood flow free - that cant be a bad thing, surely.....

  • sixtyfourmaple
    Feb 16, 2010 5:20am

    CCSVI has been suppressed as a means to possibly allow people with MS to regain some of their lives. It needs to be investigated and quickly. Too many folks have gone from Secondary Progressive to Primary Progressive and are living horrific lives. It's a vital, ground breaking theory that could help so many people who need this treatment.

  • kellyja
    Feb 16, 2010 5:24am

    When someone in the US finally gets the guts to produce a program on CCSVI, there will be a landslide of others following. Why not be the first?

  • crocky
    Feb 16, 2010 6:33am

    This is the most significant discovery in the MS world for over 50 years and has the potential to change the lives of many hundreds of thousands of sufferers and their families.

  • Habenoughyet
    Feb 16, 2010 7:04am

    This needs exposure in the US, consider the possibility of having patients of a disease fighting to get this hypothesis looked by the medical community... Can't think of a more dramatic segment than that. Thank you. HEY

  • Squeakycatok
    Feb 16, 2010 8:23am

    This is a story MADE for TV: From the romance of Dr. Zamboni trying to find a cure for his wife's MS to the way big pharma and others with a stake in the current multi-billion dollar market that depends on MS not being a curable disease who are already visibly attempting to undermine the theory and those associated with it. This is a major scientific and medical breakthrough that will get attention sooner or later. Doctors has a chance to jump on this!

  • PENGUINS
    Feb 16, 2010 8:29am

    LIFE AS WE MS'ERS KNOW IT HAS CHANGED AND THIS IS AN OPPORTUNITY TO CHANGE OUR WORLDS. WE NEED THIS, WE DESERVE THIS. WE HAVE PUT SO MUCH INTO MS AND ITS TIME WE GET SOMETHING BACK.

  • balmail
    Feb 16, 2010 8:37am

    The latest blind study by the University of Buffalo's Buffalo Neuroimaging Analysis Center (bnac.net) of 500 individuals with and without MS shows a majority of MS patients were found to have narrowing or blockage of the extracranial veins causing restriction of normal outflow of blood from the brain. Non MS individuals did not exhibit this strong correlation. This provides significant scientific data to support further research into CCSVI and its effects on MS patients. These findings merit building awareness. There is plenty of material to write this story including TV news stories on CTV in Canada, BBC TV and the ABC News Affiliate in San Fransisco, CA. Thank you for considering this topic. There are many people very interested in this possible breakthrough.

  • palinny
    Feb 16, 2010 8:55am

    400,000+ MS patients in the U.S. need your help!!! Please consider the magnitude of the number of sick people your show can help. We need YOU.

  • SunshineSuperman
    Feb 16, 2010 8:56am

    CCSVI has been the front page story of the Toronto Globe and Mail and has been featured in the CTV newsmagazine show called W5, and yet the U.S. media has been strangely silent on the topic. For more information, the episode of W5 can be viewed at this link: http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20100208/ms_zamboni_100208/20100208?hub=WFive

  • Oregon
    Feb 16, 2010 9:18am

    This could be a huge breakthrough for MS and other diseases caused by CCSVI. Your show could be the one that introduces it to the public. You would get a huge response and lots of attention if you were to introduce it on your show. Please consider this.

  • whyRwehere
    Feb 16, 2010 9:54am

    My husband was already treated for a very narrow jugular (it went from .5mm to 10mm after angioplasty!). Unfortunately he also has other vein issues. We would not have thought of this if it wasn't for Dr Zamboni and Joan Beal....now neurologists think my husband doesn't have MS...well MAYBE he has CCSVI!!

  • bigfoot14
    Feb 16, 2010 10:30am

    My wife has MS and her body has rejected the major CRAB drugs, and we will not try tysabri with it's nasty side effect (34 drug related deaths already) The CCSVI hypothosis makes sense, and ties all of the various aspects of the disease together.... We are trying to get this done here in the USA, and not travel to either India or Poland , so any coverage that raises awareness would be a great help

  • colmmc
    Feb 16, 2010 10:43am

    We need your help. If your in the UK Please sign our petition http://petitions.number10.gov.uk/CCSVINOW/

  • mama_kam
    Feb 16, 2010 11:44am

    Any vascular surgeon has the training to treat this condition. It should be brought to the forefront and every MS sufferer should have the opportunity to see the results. Please do a show on this (not so) rare condition!!!

  • faithinfriendship
    Feb 16, 2010 12:34pm

    Please don't ignore the importance of this discovery. It could be the answer to changing the lives of MS patients like myself.

  • JoyceF
    Feb 16, 2010 12:52pm

    Oh boy....if you don't do a show on this soon, you will miss the boat on being an inovative medical news outlet. Of course this story is way too huge to be ignored and that is thanks to the internet, I say. This news puts a brand new spin on what actually causes MS. Can you imagine just what that means to so many millions of people that have been waiting for something like this for decades. Be smart and do realize this is a BIG STORY indeed. It is already well known to millions of MS patients as they have had to get their news from alternate sources, unfortunately.

  • lavmac56
    Feb 16, 2010 2:20pm

    Please look into this for us! I have had this beast for 32 years and have the last 10 years become SPMS, It may be too late to help my sister,also has it, and I but we both have children and grandchildren that we worry about coming down with this monster. PLEASE!

  • hwebb
    Feb 16, 2010 8:21pm

    this is one of the greatest stories of modern medicine. A disease, the cause of which has baffled neurologists for hundereds of years, is now being treated in europe by vascular surgeons. They operate on malformed veins in the head, neck and chest to improve blood flow out of the head. This treatment is based on work by Italian researcher Paolo Zamboni. He will surely be in the running for a Nobel Prize for his ground-breaking research.

  • wordwarriormama
    Feb 16, 2010 9:51pm

    While it's true that we can't say CCSVI surgery is a cure for MS (too much unknown/unstudied as of now), it has been confirmed as a newly recognized vein condition by the International Union of Phlebology since Zamboni's work, AND there have been replicable trials confirming that there's a high incidence of this condition in people with MS. This much is undeniably, factually upheld and even the skeptics must admit as much. What we don't know on the subject is vast, of course, BUT what's so exciting to people with MS is that this area is a brand new one related to MS disease and it may well lead to more break-through research! The various factors relating to MS have been a mystery for over two centuries; now we have a large new piece of the puzzle. This may well be the beginning of a very hopeful and encouraging story with many individual happy endings, and as such is well worth exploring as a video piece!

  • Hooch
    Feb 17, 2010 9:21am

    Living with MS is a daily stuggle. The word has to get out to the public that this CCSVI is important. What better way to get this point across than through your show?

  • msgrandmom
    Feb 17, 2010 10:24am

    I have MS and I was tested and treated for CCSVI at Stanford Hospital by Dr. Michael Dake in June 2009. Testing showed that I had a stenosed internal left jugular vein for a length of over three inches. Two stents were inserted into my vein - immediately the blood flow was corrected from my brain . I have noticeable improvements since having the procedure such as reduction in headaches and facial pain, less spasticity in my left leg, disappearance of lower right back pain and better dexterity in my left hand. My hope is the research of CCSVI progresses rapidly so that the other 400,000 people in the US with MS might be able to stop the progression of their disease. No one is saying this is a cure. Further information may be gathered at: http://www.fondazionehilarescere.org/eng/index.html http://www.ms-mri.com/

  • PepeFalso
    Feb 17, 2010 12:07pm

    It would be very interesting a show about CCSVI-MS!

  • Nebelspalter
    Feb 17, 2010 1:41pm

    Hallo Cah, good Idea! Nice Greetings

  • VladStef
    Feb 17, 2010 1:47pm

    I'm not saying that some of the other ideas being considered for your series aren't important because they are. I just think it is important sometimes to prioritize. There is a good chance that, in some people's minds, the theory of CCSVI as related to MS is more important than cloth vs. disposable diapers. It is for me.

  • tuckr
    Feb 17, 2010 3:15pm

    My wife has had MS since 1994 and she is now 38. This procedure will open the doors wide open for her and others with the same affliction. The problem here is that North America is moving a lot slower than the rest of the world. Countries such as Poland, Bulgaria, and India are not only doing the scans for research but are treating those with stenosis using balloon angioplasty (venoplasty) and stenting for further research with amazing results! As a result I'm taking my wife to one of the above countries for treatment as her time running out. North America MUST take a better stance and reevaluate exactly what they are doing as balloon angioplasty is routine and done many times a day in hospitals throughout Canada and the US. Hopefully "The Doctors" will take the same position on this subject and create some awareness. Thanks, Rob.

  • dankind
    Feb 18, 2010 11:16am

    this show would be awesome

  • dprice
    Feb 18, 2010 4:07pm

    Chronic Cerebrospinal Venous Insufficiency is a Breakthrough in Multiple Sclerosis, from the research and studies of Dr. Zamboni of Italy. I find it so hard to believe that "American Media" .... has not shared this with the "American people". I hope that the message of CCSVI is carried to the "American People" ... Who have a right to know, through your work. Please watch the following link www.ctv.ca/w5/ Thank-you, Have a Nice Day.

  • brcarrigan
    Feb 18, 2010 4:19pm

    This is a really important story. You will find skeptics, but not among the group of us that have had the procedure. This is real. This is important. People with MS need to know about this. People with MS need hope. This is a scary, crappy disease. Please help.

  • Wichita
    Feb 18, 2010 5:13pm

    CCSVI and MS would be must-see TV. There are so many fascinating personalities involved. An interview with Dr. Zamboni or Dr. Zivadinov would be delightful. An interview with any of the MS patients who have had the liberation surgery would open a lot of eyes to an amazing breakthrough.

  • 7SPrice
    Feb 18, 2010 5:25pm

    Be on the leading edge by featuring a potential cure that came out of left field and has never been discussed before. It does not matter that it has yet to be confirmed irrefutably, it has proven to generate promising results - which clearly makes it exciting - making it a perfect feature for a new show like yours.

  • NurseChristine
    Feb 18, 2010 7:42pm

    My brother and I are from Edmonton, Alberta, Canada and Stony Plain, Alberta, Canada and we both have RRMS. We both were scanned for CCSVI in Vancouver and we both have it. We need Liberation Treatment ASAP. There are no Doctors treating this in Canada. We cannot afford $80 000.00 US. Please help us by having this on your program in the hope of fastreacking research and TREATMENTS. We both have young children who we want to enjoy without fatique, pain, weakness... You can make a huge difference in our lives and many others. PLEASE PLEASE PLEASE

  • MSVlogSupport
    Feb 18, 2010 7:49pm

    This is a promising new way of looking at Multiple Sclerosis that is not a drug therapy. The fact that Buffalo is moving ahead with another study and is now offering testing for a fee, shows that it has merit. The MS community is very out spoken about wanting this research and the movement is spreading all over the world. Just do a search on CCSVI and you will see since November of last year how much there is out now about this and it is due to the MS community. The lack of media coverage in the United States has many believing that big pharma is keeping this down since they sponsor so much of television programing. Someone needs to be the first, would love it to be your show.

  • cbschu
    Feb 18, 2010 8:56pm

    this is a great made for TV story because it is about fifty years of research gone astray. There was a doctor Tracy Putnam, Harvard MS Society, 1936) who stenosed the veins in dogs and produced MS lesions in their brains. that was the proof of CCSVI and MS being related. We stopped looking in that direction until now, with Zamboni. because we had anti-inflammatory therapies that suppressed the symptoms, and we did NOT have imaging technology to prove the existence of these lesions in MS patients. We missed out and millions have suffered, including Richard prior, anette funichello, michele obama's dad, amy winehouse's mom, and jk rowling's family too.

  • Desidi
    Feb 19, 2010 6:24am

    MS Suffers have been exploited for years, by the pharmaceutical industry, neurologists and by the MS Societies. To them, MS is supposed to be an on-going condition that would generate billions of dollars, but as we all know, especially now, there is no money in a cure. None of them were ever interested in finding the cure, because then, their revenues would dry up and jobs would be lost. We are faced with disregard to even be tested to see if we have it, and vascular surgeons that want to help "fix" this problem, are driven underground, for fear of being shut down. How ridiculous is that?!! We would appreciate a show on this, to open the avenues to have the luxury of living a full, HEALTHY and normal life, just like people who aren't afflicted with this. MS is not a disease; it's a symptom of CCSVI. Please read this article. I'm sure you will be blown away. :) http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=2944

  • hadog
    Feb 19, 2010 12:15pm

    ignoring this is a tragedy

  • andisue
    Feb 19, 2010 2:32pm

    If you choose this topic for a show you would be on the cutting edge and opening the door to many sufferers with MS who don't have this information. American neurologists currently treating MS do not believe in this treatment but we have heard many cases of improvement from patients who have had the procedure performed. This treatment needs a media push to get it moving in the US. You could be a great help and have a great show.

  • PearlChavez
    Feb 19, 2010 5:18pm

    This CCSVI theory needs attention. Please don't ignore us. MS affects more than 400,000 people in the US, and 2.5 million worldwide.

  • helpusplease
    Feb 19, 2010 6:50pm

    You have a great opportunity to help change the lives of thousands of people around a world. Please help spread the word and put an end to needless suffering.

  • bestadmom
    Feb 19, 2010 9:29pm

    This groundbreaking discovery and paradigm shift in the possible cause of multiple sclerosis has spread like wildfire globally, yet the US press has not covered this condition. 500,000 Americans with MS need to know about this.

  • john123
    Feb 20, 2010 7:36am

    producers - please check out the show that CTV in Canada did on this topic - http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20091120/W5_liberation_091121/20091121

  • Waken
    Feb 20, 2010 9:04am

    A new novel theory of MS that needs some exposure and discussion in public. So many people with MS know that the current treatments that focus on autoimmunity don't successfully halt disease progresssion and it would be nice if this new theory received the exposure it deserves.

  • lynmcc
    Feb 20, 2010 11:56am

    CCSVI is definitely a topic that should appear on an episode of The Doctors. Numerous individuals in Jordan, Poland, Italy, and the US have been treated for CCSVI (via endovascular angioplasty-a rather common and relatively safe procedure). The correction of internal jugular vein problems that result in venous reflux into the brain and correcting azygos vein problems that contribute to venous reflux into the spine has arrested MS progression for some and reduced MS symptoms for others. The blood refluxing into the brain damages the brain obviously and the blood refluxing into the spine damages spinal tissue and nerves. This is a major breakthrough and real hope for those suffering with MS. This is the biggest medical breakthrough in the last 40 or 50 years possibly.

  • leblancdavid
    Feb 20, 2010 1:03pm

    I feel strongly about the impact that this new treatment could have on MS suffers that I created a facebook page and Web site You are all welcomed! Stop MS in it’s Tracks! Join this group! http://www.facebook.com/group.php?gid=263244070698&ref=ts CCSVI in MS for Nova Scotia See our website for more information on research and developments across the globe regarding CCSVI and Liberation Treatment: http://liberation-treatment.com

  • darthduckie
    Feb 20, 2010 2:56pm

    I really hope that this gets voted up there. I would love for them to do a show on this

  • catsbap
    Feb 20, 2010 6:41pm

    How about this idea for a show? "A paradigm shift completely changes the way doctors view a disease (CCSVI and MS)" --or this-- "A major breakthrough means that the people currently employed by the illness have to deal with losing their livelihoods (CCSVI and MS)" --or this-- "People on the Internet band together worldwide to make a difference in their own healthcare (CCSVI and MS)" Lots of great ideas here and they are all REAL! Man, if this gets picked up real time can you imagine what this would do for this show??? Just THINK about that!!!

  • Chicagoboy23
    Feb 20, 2010 6:55pm

    Hello, I have been diagnosed with MS in 1999. My condition treated by drugs has worsened each year. I was able to receive an MRV image scan that show narrowing in my jugular veins. THis theory has the strongest link to improving symptoms and restoring health than any drug therapy ever. It needs a stronger voice...please let the message echo. Thanks Mark H Chicago

  • javaneens
    Feb 20, 2010 7:14pm

    This cutting edge new therory would change the way MS is viewed, diagnosed and treated. I think this would make a fantastic show!

  • Aletha62
    Feb 20, 2010 9:01pm

    A friend of mine has done this surgery and she is doing much better with her MS. This really needs to be addressed in the medical field so others can have this amazing recovery from MS. As it is, doctors are not aware of this proceedure and not enough people know about it in order to request info regarding it.

  • packphelps
    Feb 20, 2010 9:46pm

    This is a really important story that will help a lot of people. This is a breakthrough that needs coverage and will payoff in ratings and positive press. This story is very analogous to the discovery by Dr. Barry Marshall that Helicobactor Pylori is responsible for a large percentage of ulcers and stomach cancer and is easily treated. Check out the March 2010 issue of Discover magazine, page 66. The Discover magazine story recounts the halting progression of a medical breakthrough as it pushes the medical elite to reassess their incorrect and entrenched beliefs. The same thing is happening here with CCSVI and MS and you can help break the story and be an agent for positive change. This must happen as quickly as possible. Many thanks for your kind consideration and quick action.

  • travisrex
    Feb 21, 2010 9:22am

    I think it's important that people in this country know about and have access to all of the possible treatment options for MS. Other countries are making strides for more effective treatment, why are we so reluctant. A dear friend of mine has MS and struggles to get access to treatment that could potentially make her life a lot easier. At the very least we need to have the discussion and I think this form would be a great start. Thank you.

  • alma4me
    Feb 22, 2010 6:37am

    I was diagnosed with MS on 2004. It will be great if "The Doctors" made a show about CCSVI to help us put the word out to the people who love your show... It will be greatly appreciated from people like me who have MS and their family and friends...

  • alma4me
    Feb 22, 2010 6:39am

    I was diagnosed with MS on 2004. It will be great if "The Doctors" made a show about CCSVI to help us put the word out to the people who love your show... It will be greatly appreciated from people like me who have MS and their family and friends...

  • fogdweller
    Feb 22, 2010 5:11pm

    A show on this issue would make excellent television! A doctor whose wife has MS searches for a cause and discovers, by serendipity, that certain vascular patterns show in one of his patients who also had MS. He followed this up with an open mind and discovered a remarkable fact, that virtually all the MS patients he checked had this same problem. He was a very well respected professor in an Italian university, but not well known in the US. His attempts at getting recognition for this discovery went virtually unhearlded until MS patients in this courtry and around the world took up the cry and demanded their doctors look into it. It turns out to be

  • PKReakes
    Feb 22, 2010 5:53pm

    CCSVI is the concept behind a new MS research that will 'rock' the world. We need your kind of exposure to educate your viewers and lend hope for millions of sufferers around the world.

  • saracrowell
    Feb 23, 2010 11:04am

    Wow.. this would make a great show. This is cutting edge.. empirical data and everything. This whole approach to m.s. is ground breaking, paradigm shifting, and... well, rather amazing. I really wish the Doctors would do a show on this. :-)

  • FOFFMS
    Feb 23, 2010 8:47pm

    Do the show on CCSVI-MS! its now! its real!

  • jilthepil
    Feb 24, 2010 5:49pm

    This is certainly a topic that needs some US media coverage! The majority of the MS community nationwide is talking about it and excited about the possibility. Please do a show about this that can publicly answer more questions for those who don't know yet about this exciting discovery and to get the rest of the world excited with us. Thanks.

  • 2tazbo
    Feb 28, 2010 5:44pm

    With so many years of nothing but declining health...we really need an unbiased look at what CCSVI can mean for us sufferers.

  • nomorems
    Mar 8, 2010 3:05pm

    From all of us "MS'ers" PLEASE DO A SHOW ABOUT THIS!!!! I was diagnosed with this disease at 28..........28!!!!!! We deserve to have every avenue checked out. This is our "lives" we're dealing with! PLEASE, PLEASE PUT YOUR MEDICAL INFORMATION AND TOPIC RESEARCH TO SUCH A WONDERFUL CAUSE! We are GOOD people who need some POSITIVE MEDICAL INFORMATION! PLEASE HELP!

  • ashcondad
    Apr 20, 2010 8:04am

    Please talk about this. I don't care if you voice major amounts of skepticism. This is what good science is about. Follow up studies are finding a link. Whether it is a cause of MS or because of MS or if it is just associated with MS there seems to be a link. Canadian broadcasters are sharing the controversial story. Go ahead and say it is controversial. Just please share it. The National MS Society (of the US) just had a webcast last week with several doctors and scientists in attendance. CTV5 in Canada has info on their website about it. Thank-you, Andrea

  • ashcondad
    Apr 20, 2010 8:05am

    Please talk about this. I don't care if you voice major amounts of skepticism. This is what good science is about. Follow up studies are finding a link. Whether it is a cause of MS or because of MS or if it is just associated with MS there seems to be a link. Canadian broadcasters are sharing the controversial story. Go ahead and say it is controversial. Just please share it. The National MS Society (of the US) just had a webcast last week with several doctors and scientists in attendance. CTV5 in Canada has info on their website about it. Thank-you, Andrea

  • Xopher
    May 1, 2010 5:41pm

    Dear Docs, re: CCSVI; please watch the documentary originally broadcast Nov. '09 on W5 CTV Newschannel on the groundbreaking new treatment for multiple sclerosis, which includes the first time the “liberation” surgery was filmed. The several videos that comprise this documentary can still be viewed at www.W5.ctv.ca. The specific links below will direct you there. If this doesn't whet your whistle, nothing will. Thank you, Doctors, for your serious attention and consideration for bringing a greater awareness of this exciting breakthrough onto your program for the edification of a much larger audience. Other than within the MS community, the words has not traveled nearly far enough. <><><> http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20091120/W5_liberation_091121/20091121 <><><> http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20091120/W5_liberation_091121/20091121

  • grumpy40
    May 9, 2010 12:18pm

    Be on the cutting edge or just reporters. The news of CCSVI is making the rounds in my medical center in Houston, Texas. The public will turn to you for more medical news in the future.

  • jo80hanna
    Jun 9, 2010 12:04am

    Please do a show on CCSVI and people with MS.

  • spunkyrigpa
    Jul 21, 2010 5:47am

    I would be so grateful if you produced a show on CCSVI. There's been a strange lack of media attention over such a huge discovery, other than a recent New York Times article.

  • Laurilea
    Jul 21, 2010 6:45am

    We are being discriminated against. People who have blocked veins are able to get treatment, UNLESS YOU HAVE MS. Many Canadians are going overseas for treatment that should be available here. I don't care if it has any relation to the cause of Multiple Sclerosis, but if it can help our symptoms and quality of life, then let us have this 'not experimental' treatment.

  • duderock
    Jul 21, 2010 7:15am

    I've been treated for CCSVI. On June 25th 2010 my life changed. I was diagnosed with MS in March of 1997. I went from the most physically active guy in the world to hardly being able to get out of bed in the mornings. I've taken every drug that exist for MS and none, I repeat, none has done for me what this procedure has done. Now I have a new lease on life. Now I have a chance to be the man I am supposed to be. Now I heal a little more each day. You've been given the unique opportunity to present this to the American public. There are so many of us that will testify to the amazing results this procedure provides. Will you accept the challenge and be the first in America to show how wonderfully mistaken this disease diagnoses has been?

  • Stamant
    Jul 21, 2010 7:16am

    Doctors. I just returned home after bringing my 33 year old daughter to Costa Rica from Canada for Liberation. 2 weeks ago she could barely walk, could not bend down, had not lifted her right leg in over a year, nor wiggled her toes. She could not tap her toes, or turn around or sit up by herself from a lying postion.She could hardly cut her own meat for dinner, nor carry a heavy cup of coffee. Today, 2 weeks later, she was Liberated on July 9th 2010 she can walk, jump ( a little) pick up stuff off the floor, has no brain fog, can stay away all day, can turn in circles, can do knee bends and can lift her Dead leg up to waist high in a stand position and as high as it goes from a lying position. Not only did she have blockages that went undetected in Canada but doctors in Costa Rica found she has May Thurners Syndrome and a small aneurysm behind her heart..Please do a show on the marvels of this new treatment. My daughter is 33 diagnosed with PPMS as the first diagnosis. In just over a year she went from a cane to a wheelchair.......I watched her walk again. For a year she said to me...."Mom I wish I could have one more dance" The night before we left Costa Rica, we danced .and we cried and we danced. The video is the proof. She has a new life thanks to Liberation. That is the best story in my life:)

  • sandwhit
    Jul 21, 2010 7:18am

    This would be fantastic, we need all the coverage possible, CCSVI is a real health issue:-)

  • mctractor
    Jul 21, 2010 9:44am

    Tons of before and after videos of treatment for CCSVI. Discriminating that angioplasty can be done on dialysis patients with CCSVI, yet we need to research the proceedure for MS patients. Canada is miles ahead of the USA on exposure of CCSVI. Maybe big pharma drives the US medil bus. Sure hope they do not drive the "Doctors Show" bus, however whether or not you do a show will tell us.

  • vicktron
    Jul 21, 2010 10:04am

    Please do a show on CCSVI in MS! I'm one who has had the angioplasty. I had stenosis in my right jugular and azygos veins. I feel so much better now. Please bring this to the worlds attention! You have to help people know about this treatment thank you!

  • mamadawna
    Jul 21, 2010 12:33pm

    I can't believe "The Doctor's" haven't already thought of covering this ground breaking treatment!

  • Deborah Turcotte
    Jul 21, 2010 12:56pm

    Many of my friends have MS, and many of them have gone overseas for the venioplasty(form of angioplasty to correct their blood flow and drainage health problems. By doing this, lots of their other health issues have lessened and in quite a few cases have disappeared. Regardless if it later is found in unbias studies to help find a cure for MS or not.. Why not correct their blood flow issues now? I've never heard of improper blood flow or drainage being healthl for anyone. Please get vein / blood flowspeciialists on the program with you that this is their field of expertise, there are many in the USA that really know this issue and need to get their information out to the public. not people that aren't specialist's in the area..

  • MSVlogSupport
    Jul 21, 2010 1:20pm

    This story broke on Canadian news, they have done repeated follow up stories and showing what paitents are doing about it. Why should we have to travel overseas for a treatment that could correct improper blood flow and refulx in the brain. It should be seen as a seperate condition like Italy is now doing. The fact that it may benefit MS symptoms is great and I have seen some remarkable videos from people who have had the angioplasty done. The fact that we are being denied treatment because we have MS is what is causing so many to go oversea or not being able to give their doctors names for fear of them being shut down for something they have been trained to do.

  • rafiqperry
    Jul 21, 2010 2:15pm

    this would be great

  • ginamass
    Jul 21, 2010 2:33pm

    I believe soon even that 80% number is going up. Please put this show on. This is so important for the people that are unaware. Their nueros are not going to say anything to them and they could be needlessly suffering. Simple testing is all that is needed to determine if people have CCSVI. Please help get the word out!! Gina Massingill Austin,TX

  • karbomamba
    Jul 21, 2010 2:46pm

    Finally it is being talked about!!!!!! There is sooooo much info on the internet but NOTHING is being done in the USA and in Canada. MSers have to pay a lot of money to go abroad to get angiplasty. Yes, something so simple like angioplasty- we should stop calling it CCSVI- which is really what it - is being denied just because someone has MS. This is not a new treatment- the term is simply new. A simple doppler ultrasonography of the neck veins is not allowed and being blocked in Canada- even in private clinics! Yet, boob jobs and cheek implants are ok..... To read more just type in facebook....ccsvi....and the links are endless! Thank you.

  • robbiesa
    Jul 21, 2010 3:03pm

    I am a caregiver to my husband who has MS. We are going to Merida, Mexico in Aug. to have the Liberation Treatment. Never has so much hope been given to people with MS berfore!!! We are soooo excited!!

  • RichieV
    Jul 21, 2010 3:41pm

    It would be great to see a show that could explain the benefits of the liberation treatment. Since the doctors here in the USA are either afraid or on the take, this show might just open the door to help people like myself with MS before it's too late.

  • lorimayb
    Jul 21, 2010 3:41pm

    The cruel irony is that this procedure, if used to correct the abnormal cerebrospinal venous flow, appears quite clearly to help those with MS. At present, however, the diagnosis of MS precludes patients from this procedure.

  • Hooch
    Jul 21, 2010 3:51pm

    I believe I voted for this idea when you first put it out. I am curious seeing how many votes it has why we are still waiting for you to do a program on CCSVI?

  • Trine
    Jul 21, 2010 3:59pm

    The Doctors would be the frontrunner in bringing this controversial topic to light in the US. Venous insufficiency from any other part of the body (Budd-Chiari Syndrome, May Thurner Syndrome, dialysis patients with collapsed veins, etc.) is not a good thing and are treated every day. Then why would one of the most important organ--the brain--be any different? Venous insuffiiciency, regardless if you have MS or not, should be treated while collecting data.

  • baarhaus
    Jul 21, 2010 4:06pm

    CCSVI has overwhelming anecdotal evidence. A simple angioplasty to open clogged jugular veins and azygos vein and MS symptoms are alleviated to a certain extent. Not everybody has dramatic results, but the majority of MSer's immediately feel better. Some samples are: brain fog is gone, eye sight improved, feet and hands get blood flow and turn a healthy color, tremors are better, tinnitus is improved, sleeping is better, walking is improved, heat intolerance gone, memory and word finding improved. Mass media, drug companies, MS Societies and neurologists are not endorsing CCSVI. I believe there is too much money to be lost by the companies we've been supporting for years. We have been cash cows for them. It's time to change that way of life. People first, money second. We deserve proper blood flow, regardless if we have an MS diagnosis. It is being proved true all over the world. It's time we get tested and treated in our own country. We don't have 7-10 years to wait. PLEASE HELP THOSE WHO HAVE SUFFERED WITH THIS DEVASTATING DISEASE BY RESEARCHING CCSVI AND BRINGING ALL THE ATTENTION IT DESERVES. YOU CAN'T DENY CCSVI.

  • tarahvirgil
    Jul 21, 2010 5:29pm

    This would be an amazing opportunity to raise awareness on this exciting development in MS, open it for discussion and let people make up their own minds. I was skeptical at first, as there is always some new drug, or diet or something that people say could help w/ MS... but after doing my own research, talking to my doctors and meeting others w/ MS who have had this procedure done...I was tested and received my results on 7/16/2010 that I have narrowing in both internal jugular veins, a pinched azygos vein and a narrowed vertebral vein. Never thought I would be SO excited to find out there's something wrong w/ me.. but for once I finally have some ANSWERS!! I was tested in San Diego CA - maybe the Doctors would like to go check out the testing and treatment process..follow someone through it, see how simple and safe it is and what remarkable results people are having. Invite some of the major names in CCSVI to come talk about it ,There will be a symposium about CCSVI in New York July 26th with all of the amazing Doctors who are changing people's lives! Would be a great opportunity for the Doctors to learn about CCSVI and the connection to MS. Most of us w/ MS feel like we've received a death sentence and we slowly deteriorate until we have no quality of life, this new development gives us all so much HOPE!!!

  • Irene103
    Jul 21, 2010 5:30pm

    Bring this to the forefront to save many people

  • irishb
    Jul 21, 2010 5:31pm

    I watch your show every day with my wife, the work you did in Hatti was moving and informative. CCSVI hits home for me I have ms and I have seen this procedure done for my friends with amazing results. Please do this show, it is the type of thing you who are healthy compassionate doctors are the best at.

  • NicBeans
    Jul 21, 2010 7:10pm

    I was treated for CCSVI in Egypt and the simple procedure has made drastic improvements for my quality of life. A show on this topic with people who are willing to share their experiences post procedure would be very dramatic for the general population to watch.

  • Jgauthier
    Jul 21, 2010 7:25pm

    MS sufferers are going overseas for something as simple as angioplasty simply because it is being denied to them in their own country. Time and time again people who have had the CCSVI treatment are showing remarkable improvement. It is unfortunate that many of our medical people do not want to hear anything about this. Ny neuro told me very few MSers wound up in wheelchairs and that CCSVI was unproven and dangerous. With support like that, it is understandable that many of us are going elsewhere for treatment. Please help us to make CCSVI as well known as the polio vaccine, because that is what I think CCSVI means for MS, it is like OUR polio vaccine. thanks

  • lorin powell
    Jul 21, 2010 7:56pm

    What Does MS Mean to Me? What does MS mean to me? 10 months ago, MS meant Multiple Sclerosis and that my wife would continue to deteriorate. Just think what someone affected with MS might think of before they go to sleep. Will I wake up blind or unable to move or unable to speak? Now, MS means My Symptom and it is treatable: there is just one problem. The problem is our government says it can not do anything until the MS Society gives the go head. Now maybe someone can help the government understand that this is not Multiple Sclerosis any more! MS is just a symptom of CCSVI and is easily treated with a simple 45 minute to an hour angioplasty procedure. What Does the Label MS Mean to Canadians with CCSVI? The label MS means we will have to travel outside of our country to seek treatment for CCSVI. The label MS means we who can’t afford it will continue to worsen. The label MS means we will continue to fight our government for CCSVI to be recognized as the cause of the symptom MS. The label MS means the government is solely responsible for the deterioration of all Canadians who have been misdiagnosed with MS. The label MS means we want to know who in the government is responsible for all the unnecessary suffering. What Does MS Mean to the Government? What would CCSVI cost our government to treat? It would cost our government around $500.00 for the scan and $1500.000 for the procedure. That is a total cost of $2000.00. What is the cost per month for someone with MS? The average direct monthly cost is $1500.00 for medicine, $700.00 for disability. Now add home support, doctor visits, neurologists, MRIs, physiotherapy and medical supplies. It can be anywhere from $2300.00 - $6000.00 per month. Total yearly average Cost for the Government treating the wrong symptom per person is $36000.00 per year Total yearly average Cost for the Government treating CCSVI per person is $2000.00 per year this is if they need scans and angioplasty repeated on a yearly basis. There are approximately 60 to 80 thousand individuals with the wrong diagnoses in Canada. 70.000 x 36.000 =2 billion 520 million dollars Current plan 70.000 individuals X 2000.00 = 140 million dollars per year. Proposed plan Cost savings with proposed plan 2 billion 380 million dollars per year What does CCSVI mean to the Multiple Sclerosis Society? Should it Matter?

  • jacvan
    Jul 21, 2010 8:13pm

    We took our teenage son to Mexico to undergo angioplasty for CCSVI. He had almost immediate results and continues to see improvement in regard to his MS symptoms. This treatment has made a dramatic improvement in our son's life and it should be available for every person with MS to pursue should they desire. The stories of CCSVI are based on heroes who have had to fight for their right to have relief from the symptoms of a devastating disease. They are stories of people struggling to afford to get the procedure because governments and much of the neurological community have put self interest above the needs of their constituents and patients. They are stories of hope and miraculous improvements. They are stories that need to be told. Thank you for your consideration.

  • Attitude
    Jul 21, 2010 10:23pm

    I would love it if you had an Interventional Radiologist on your show talking about the procedure.Know as the Liberation Procedure. Also showing MSers whom have gone through the treatment and talking about their results. Being a controversal treatment yet done daily on those without MS, it will be an education for those whom don't know about the procedure and thus showing how non advasive it is and that there is an alternative to the MS Drugs which studies have shown do not help those that have been on them. Those not using the drugs have progressed slower. This Vascular issue was pointed out back in the 1930's and brought to the forefront in the eighties and pushed aside . Finally studies are been done Mean.while procedures are being done in 47 countries showing miraculous results. There are alot of before and after videos to draw from as well as blogs from MSers whom have been through the procedure. Balloon angioplast is the simple procedure used inMSers with a CCSVI diagnose. And this Vascular Disease is just the tip of the iceberg. Other disease are being looked into , to see if they will help others besides those diagnosed with MS. This has to be one of the most exciting times for hundreds of thousand people with MS, as well as their caregivers, loved ones and friendsl. MS touches many lives and it will touch your viewers as well. Thank you and God Bless

  • shawnc
    Jul 21, 2010 11:18pm

    Since I watch every episode, I would love to see this topic on this show. BUT, not if you only get 1 narrow minded neurologist to discredit this theory. After 18 years of dealing with MS, this is the only thing that has made any kind of sense. If this does make the show, I hope you can get someone who does the testing and/ or the procedure and maybe someone who has had the procedure done, there are hundreds maybe thousands by now.

  • mortona
    Jul 22, 2010 4:42am

    The squeaky wheel gets the grease, the media is the best way to let everyone hear us squeak. Please " pay this foward" to advance treatment here in the US.

  • alipcon
    Jul 22, 2010 5:00am

    Please support this cause and bring it to the US. My Cousin was just approved to go forward treatment in regards to CCSVI. As a young single mother, this would make her life so much better...

  • belsadie
    Jul 22, 2010 6:06am

    Here's one of the answer to the "mysteries" of MS. Maybe D. Zamboni is an instrument to begin to unlock the multifaceted disease we call MS. Let's give his hypothesis a chance and permit PwMS the chance to regain their lives..... We're tired of the shoulder shrugs when a question is asked. Why not put some faith in this approach? What's to lose? 1500 people treated already, maybe more. It just makes such sense...CCSVI.

  • nancymno
    Jul 22, 2010 7:11am

    Hope this topic can be covered on your show.

  • francaisman
    Jul 22, 2010 7:45am

    Thousands are receiving this procedure elsewhere and receiving amazing results. This is obviously against the interests of Big Pharma and the MS Society. Many jobs will be lost as this will decrease the profitability of this disease. The procedure costs 1500$ to do, rather than 40,000 a year on meds. This issue is real and affects millions worldwide.

  • Jennifer Crossfield
    Jul 22, 2010 8:54am

    We need access to this NOW. I'm angry that I had to go to Germany and pay to fix myself. What about those without money? Are they suppose to die from complications? Enough already. Fix this situation and we, the MS'ers, will meet you half the way. I wouldn't mind fundraising for this but for people's paycheques, rent, etc, that I have a BIG problem with!

  • BayofFundy
    Jul 22, 2010 9:06am

    I have MS, diagnosed twentyone years ago, bedridden for months with a baby and a toddler but gratefully live a relatively normal solo life now, within limitations. It has a drastic affect on everybody, damages our lives and families and friends, ruins careers and destroys many marriages. I live in east coast Canada where there are many sharing this dibilitating disease, often families with numerous members. A friend's blog - "CCSVI has created a firestorm in the MS community ... Canadian television has aired numerous news pieces detailing the theory and the "liberation procedure" used to treat it, hundreds of patients have been treated for the condition at locations scattered around the world, and the Internet is full of seemingly miraculous before and after videos portraying patients whose MS symptoms have dramatically declined after undergoing endovascular procedures to address their vascular abnormalities. ... widespread disgruntlement among the MS patient population, dismayed at almost complete lack of treatment options available locally in the US and Canada." Treatment is there but not accessible. It has currently made front page news in major newspapers but those that rule us keep us bound. Please help. It could be you or yours next. CAUTION: there is no predictability!

  • aleynabern
    Jul 22, 2010 9:28am

    There are over 1000 videos on YouTube alone of people with MS who had the procedure and their symptoms went away. Those of us with MS need the media to stand up and pay attention so that we can get this treatment in the US!

  • bioniclefan
    Jul 22, 2010 9:42am

    This procedure, which has "liberated" many, many people from their MS, is just a simple angioplasty! How many people in this country get angioplasties every day? Yet I cannot get it, because I have MS. I am allowed to be on a drug for MS which may kill or paralyze me, but not allowed to consent to the CCSVI procedure. Please do a story on this!

  • ajunes
    Jul 22, 2010 1:00pm

    My husband has struggled with MS and recently was tested and found to have CCSVI. He has been on several medications, chemotherapies, had plasma exchanges, etc and nothing has helped slow down his disease. He is having his surgery on August 3rd. Please consider doing a show on CCSVI. There is very little coverage on this topic in the US, but CTV in Canada has done stories on CCSVI and exposed how well many people do after having their vascular issues treated. Studies on CCSVI strongly support the benefits of treating. The doctors allowed to treat are experiencing the most gratifying rewards because patients are having major improvements.

  • dianes908
    Jul 22, 2010 2:59pm

    This is such an important story that could improve the quality of life for so many of us. There has been so little coverage in the US even though a conservative figure puts 350,000 to 500,000 as the current number of those diagnosed with MS. That is more than 1 in 100. The current cost of MS medications is more than $2000 per month. The cost of this procedure seems to be around $10,000. I look forward to seeing a show about this in your new season.

  • sounder
    Jul 22, 2010 4:10pm

    The MS Societies in Both Canada and the US are not responding to the MS community. We should not have to leave the country to get this diagnosis and treatment. It amounts to discrimination against all with MS. CCSVI is a major new theory that has been proven more than a 1000 times, unfortunately, not in Canada or The US. WHY?

  • queenlouise
    Jul 22, 2010 7:51pm

    I was dxed with MS on my 44th birthday in 1997. I have been fairly steady with annoying symptoms of this horrid disease. Lately however I have noticed a slow decline. This disease is slow torture. After learning about this Liberation procedure, I have some hope that many MS sufferers can finally get get some relief! Please- you Doctors be on the cutting edge of finding out just how special this treatment is to us. We need advocates! We need surgery that is affordable and in our own country. Be brave--don't let the "system" rule out what the truth is! CCSVI is real and its coming.....I am proud to be an American and I want to be Liberated! Help us please! I

  • nicknewf
    Jul 22, 2010 8:03pm

    There are some great American pioneers in the CCSVI story, and some intriging politics. It will make for great TV, possibly a Peabody. That mainstream media is fleeing from this. Sell Biogen Idec short and make this documentary!

  • brenda1951
    Jul 22, 2010 8:37pm

    I am upset with our country "Canada" that will not allow the CCSVI treatment for people with MS. I have to go to Bulgaria to have this procedure done. The cost out of my pocket will be approximately $15,000.00.............It is so sad that we are being discriminated against because we have MS.

  • Blandry2
    Jul 22, 2010 11:55pm

    The story of CCSVI and treatment in relation to MS, broke in Canada last fall, but has become a worldwide phenomena. People with MS have had to network extensively (internet community, support groups) to find doctors willing (and able) to do the testing and simple procedure without losing their medical licence. The results have ranged from remarkable and life changing for some people, to small improvements visible perhaps only to the patients. In many cases, the procedure has provided some form of relief to those suffering from the dibilitating disease. Local communities (even very small remote ones) have rallied behind people in their communities and raised funds to send local residents overseas for the testing and treatment. Banks report increased numbers of people seeking advances on credit cards, lines of credit, mortgages and loans to fund CCSVI treatments done in a growing number of clinics throughout the world, by some of the top vascular specialists and/or skilled practitioners who are willing to consider that CCSVI is an impairment of bodily function that can be addressed, even as an elective procedure or on compassionate grounds, and it may perhaps help people experience some gains in quality of life. While the traditional MS community keeps calling for more research and more documented results, calling any reported improvements a "placebo affect" patients have banded together to share information, expriences -- some remarkable, and others less so, but demonstrating that patients sometimes have to take initiative and become the first line experimenters and researchers in new treatments. Almost everyone knows someone with MS, and the topic of CCSVI (or the Liberation treatment), its potential, availability, and hurdles gaining acceptance in the medica community has become the topic of table discussions, civic organization, and online communities.

  • andisue
    Jul 23, 2010 4:30pm

    This is such an important subject to so many people living with MS. Please help publicize this and get the word out. We need more studies, more support, more Dr/s willing to perform this procedure. Over 1,000 Liberation procedures have produced dramatic results. We cannot ignore this.

  • Mossmanor
    Jul 26, 2010 8:40pm

    Please help those of us with MS get information on CCSVI out to the world. It is the most promising news we have heard in years!

  • fightforccsvi
    Jul 26, 2010 10:00pm

    Plain and simple it is the only safe and effective treatment known to halt and even reverse the devistating effects of MS in many patients. How can anyone ignore that?

  • thecrone
    Jul 30, 2010 1:58pm

    It is absolutely disgraceful that this is being shouted from the rooftops as a major breakthrough in MS. But instead, doctors who are trying to treat this are being shut down in both the US and Canada, while most other countries are embracing this. Because of pressure, the NMSS finally allocated money to research but no treatment, and a major doctor of the organization has stated they are trying to DISPROVE it. Meanwhile, I have 5 personal friends who have gotten the treatment, and the results are miraculous. We with MS don't have 10 years to wait while the politics of this get sorted out - we become more disabled with every passing day. Anytime this is mentioned in the media, the one resultant death is mentioned but that had nothing to do with CCSVI it had to do with the blood thinner, even the family has announced that fact. But CCSVI is being blamed for it. The ONLY incident is from a stent migrating to the heart which resulted in surgery, that patient is fine now. Some people are waiting for stents specifically designed for the jugular and azygous veins to be manufactured, and that is happening in Europe. So what's with N America?

  • natalier
    Aug 15, 2010 5:26pm

    A friend of mine just came back from Poland. Two weeks post op many of her symptoms are going away. It's time for everyone to start believing that this *is* a cure for people who suffer from MS.

  • Liberation
    Aug 17, 2010 4:35pm

    Please, please, please have a segmant on CCSVI and MS. All people with MS would thank you from the bottom of our hearts. Thank you!!

  • mzdjpb
    Aug 19, 2010 3:05am

    I have been diagnosed with MS approx 3-4 months ago, but have had symptoms for approx 10 years. My son is graduating from high school next May and I would like to enjoy his graduation, if possible (due to this simple procedure). Please do a show bringing CCSVI TO THE FOREFRONT!!!

  • Pat picco
    Aug 26, 2010 8:57pm

    MS patients need your help!

  • Gerrard
    Nov 12, 2010 1:02pm

    It would be great to see "the truth" about ccsvi revealed in a big tvshow in America. That gives me hope for an break fro for ccsvi - treatment in Europe ( Sweden) for all people...paid by the government on our tax money ! I want my wife to get the chance of being liberated from her MS and feel free from all her problems for the first time for over 20 years. Thanks.