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Childhood Cancer Awareness Month
Posted by won2xx to Pediatric/Parenting, Sep 8, 2009 7:20am
This month is National Childhood Cancer Awareness month. I suggest doing a show to bring attention to this issue. Pediatric cancer is the leading cause of death to our children by disease. 1 in 330 children will be afflicted in their lifetime.

karenola
Sep 8, 2009 12:46pm
I would really like to see more awareness out there. There are so many children dying from many forms of cancer, and yet only 3% of national funding for cancer is given to the top 12 most common types of childhood cancer. Shouldn't children be our priority? I know each life is valuable, but children are our future! Thanks, Parent of a child who died from childhood cancer.
ajsdad
Sep 8, 2009 12:54pm
Just to be clear, 1 in 330 children will be diagnosed with childhood cancer before age 20. Cancer kills more children than asthma, diabetes, cystic fibrosis, congenital anomalies, and pediatric AIDS combined. Yet funding for childhood cancer is woefully inadequate.
ArdensMom
Sep 8, 2009 2:50pm
Highlight the current research, highlight the facts as to the stagnation and lack of funding for childhood cancers. Highlight children's stories, the REALITY of what treatment looks like. Open people's eyes to the terrible choices parents must make to help their children fight these horrific diseases (like subject them to radiation, surgery, chemotheraphy, immunotherapy -- all painful, awful toxic therapies that damage the children for life, if they survive.) As a parent who lost her child to the TREATMENT, not the cancer, I urge you to shed light on this issue, especially during September, Childhood Cancer Awareness Month. Thank you. http://www.caringbridge.org/visit/ardenquinn
downeyseven
Sep 8, 2009 3:38pm
Please do a show on pediatric cancer. We had never even considered cancer in our family when our daughter was diagnosed with high risk pre b ALL Her life has changed, yet through it all she has taught me courage, bravery and the ability to persevere through very difficult treatment. If anyone tells me that leukemia is the "good cancer" to have, I thought I would kick them - There is no such thing as a good cancer. The world of pediatric cancer and the familes who enter its doors are amazing people. The doctors at the Mayo Clinic who have treated our daughter have been compassionate, thorough, kind and even funny through it all. http://onetruemedia.com/shared?p=8d656f02999dab7780425c&skin_id=601&utm_source=otm&utm_medium=text_url We need funding to help with the treatment and also to understand the long term effects of chemotherapy on young bodies. Thank you in advance for considering this. www.caringbridge.org/visit/chloedowney We also are very grateful for caringbridge and care pages - for the therapy we get from reading from afar the struggles and joys of other families in the fight of their life.
won2xx
Sep 8, 2009 4:54pm
I was a bit ambiguous in my original content. To echo what was previously said, a child has about a 1 in 330 chance of being diagnosed with cancer before the age of 20. Those numbers speak to the need to educate and enlighten people about this.
nickysmom
Sep 8, 2009 5:49pm
I would like to see more awareness out there regarding childhood cancer. 1 in 330 are diagnosed with some form of cancer before they reach 20, my son is only one of the many who have been dx with a brain tumor. He's only 12. Too many of our children are dying from this disease. More money goes towards breast cancer as well as more awareness, then childhood cancer. It is my understanding that only 3% of funding goes towards pediatric cancer research.
lyssielou
Sep 8, 2009 6:02pm
I watch The Doctors religiously, and ofcourse watched the season premier yesterday. When watching the segment on upcoming shows I was disappointed not to see any dedicated to Childhood Cancer Awareness, instead they previewed upcoming shows on plastic surgery, and highlighted poor eating habits on the premier show. Although these topics are important, I don't believe they even compare to the importance and harsh reality of childhood cancer. Last year I watched many talk shows that highlighted breast cancer throughout the month of October, and steadily they raised money and awareness for the cause. Again, a VERY important cause, but what about the children that fight everday against this horrible disease with a smile on their faces and the strength of an army. I am lucky enough to have been touched by one such warrior, my hero, my beautiful daughter Alyssa. Alyssa lost her battle with Acute Myelogenous Leukemia in October 2007 at the age of six. She has left behind a legacy and has impacted the lives of all who knew her. She is still teaching us all about strength, bravery, courage, love and living everyday to it's fullest, as she did until the very end. I am so proud to be her mommy. Plese consider this cause to be as important to you as it is to all of us whom it has directly affected. What if this was your son or daughter? I never thought it would be mine. I never thought I would have to face the day without a monkey hug from my baby girl....this show could be the ground breaking program to bring CHILDHOOD CANCER AWARENESS to the for front and hopefully in the near future no other parent will have to endure the pain of this horrible disease destroying their most precious gift, their child.
dorothyb
Sep 8, 2009 6:26pm
Please Bring Awareness to this medical condition. It is happening. It happened to my daughter, who was such a healthy child, never got a cold. Out of nowhere when she was X years old started to begin to complain of headsches one week. The next week she started to throw up ever time should woukd eat. Within a few days my bubbly, sociable happy smiling laughing baby was starting to sleep throught the day and vomit everything we tried to give her. I took her to the emergency room and there they did a catscan of her brain and found a huge tunor in the middle of her brain. She underwent brain surgery the same day. Within a short time my daughhter's life was turned upside down due to a hidden disease that I would never imagine happen to such a previous healthy child. She has completed chemotherapy. She is recovering beautfully, but it is a daily struggle. Please bring awareness to this type of cancer that effects children more often than it is noticed. Dorothy B mother to Jazmyn B Gilbert, Arizona
kathleengettinger
Sep 8, 2009 6:40pm
My child has cancer. She has been fighting for over two years. She and and our family will forever be changed. We need help bringing attention to this horrible disease that afflicts too many of our kids. Your show is a perfect venue to produce more awareness to a cause that is underfunded and under recognized. Please do this show in September if possible.
ssullivan
Sep 8, 2009 6:47pm
IAwareness for childhood Cancer needs to be raised. 46 children a day are diagnosed, a child loses their battle every 4 hours! Not acceptable!
dmanning444
Sep 8, 2009 7:28pm
I am one of too many families who have been affected by Childhood Cancer. My youngest daughter was diagnosed with ALL at the age of 13 and died 1 week before her 20th birthday. We need more awareness and funding! September is Childhood Cancer Awareness Month, but how many people know about it and how many people know that a gold ribbon is the symbol for Childhood Cancer. Please help us spread the word...
bsullivan
Sep 8, 2009 7:29pm
There are not enough people who understand how devistating this is and how much of it is around their neighborhood. Not to mention what the poor children have to endure.
Sammy Keziah
Sep 8, 2009 7:30pm
We lost our 4-1/2 year old son to cancer. His 7 year old sister lost her best friend. His grandparents lost a grandson. What if it was your son. What if it was your brother. What it it was your grandson. It is time to wake up up and save our children. Research cures cancer. Sam's Dad
Aladyami
Sep 8, 2009 8:59pm
I have fortunately never lost a child to cancer, but my daughter's best friend has a son that fought and won his fight with cancer at the age of 5. And my Mom is a Breast Cancer Survivor. The thing that bothers me the most is that the TRILLIONS and TRILLIONS of dollars that have been raised over the years and given to research, yet they are no closer to better treatments let alone a cure!! Is it that too many ppl will lose their jobs if a cure is found??? Well, that's my opinion..... God Bless the Little Children.
ncelyse
Sep 8, 2009 9:46pm
December 2007 is when I first heard of this dreaded monster (pediatric childhood cancer) taking kids from their parents, families and friends one by one each and every day. There needs to be more funding! There needs to be much more awareness so we can make a difference. Please help us to bring awareness to this dreaded monster killing all too many children "each day"!
Kalebsmomforever
Sep 8, 2009 9:48pm
I agree with this. My 3 year old son lost his battle with Brain cancer in May of this year. If you want to know what a child with cancer goes through- www.KalebsCourage.com or www.caringbridge.org/visit/kalebmyers. For those that ARE able to get into remission can have long term side effects- chances of recurrence. We need Awareness- We need a Cure.
amanda121084
Sep 8, 2009 9:54pm
Childhood cancer is devastating, I know firsthand. The lack of funding going towards CHILDHOOD cancer is disappointing, and that's an understatement. My son is almost five and has been battling Ewing's Sarcoma for almost two years. People need to be aware that there are many different childhood cancers out there and they occur regularly, randomly and without warning. These children who are forced into the fight of their lives, deserve some more recognition.
kantim
Sep 8, 2009 10:03pm
I would like to see a show concentrating on Childhood Cancer Awareness month as well, however as for the comments about TREATMENTS, I would like to say this...WHY if there is no 100% cure for this disease that is devastating our children's lives would we as a nation NOT be funding the research more? The Sanctity of life surrounds much more then just Pro Choice / Pro Life in my eyes...life in general is precious from start to finish. Just with a little bit of innovation a bold Doctor in Philadelphia pushed to try to save a 21 week old premie who's lungs were under developed. The child was doomed, however this Doctor requested a non standard therapy be performed using Oxygenated Perflurocarbons (The breathable liquid used in the movie "The Abyss" to submerge the Rat). The Parents said YES, and the doctor maintained the tedious task of manually injecting and suctioning this liquid into and out of the babies lungs periodically, and to make a very long story short...the child is 15 years old now, and in a Magnate School in Philadelphia, knows how to play 12 different instruments, and is taking AP courses. THIS is the type of ingenuity, research, and funding childhood cancer needs. The brightest minds, the DEEPEST pockets, and the undying conviction of our country to surpass the impossible. This has been done before...why can it not be done again? Developing more robust, less lethal therapies with much better mortality rate then the statistics show would benefit not just those patients, but the parents well being as well. Too many children have gotten their wings already...lets git er dun in THEIR NAME!
falsetti
Sep 8, 2009 10:05pm
I thought cancer was about prevention. I thought catching it early meant you could beat it. I thought Stage 1 cancer with a 93 % cure rate meant our 7 year old son would live to see celebrate his 8 year old birthday with his 5 year old brother. I was wrong. DEAD wrong. Cancer strikes healthy children everyday. It is different from adult cancer in care and treatment. The levels of chemo and radiation are much more toxic and the prospect of living a normal life after treatment are extremely challenging. We need to let people know that 3,000 children die every year and another 10,000+ suffer from PTSD from cancer treatment. These families are fighting a war. Please tell the world about this isolating, silent war in our hometowns. Inform parents and teachers about the signs of cancer. Highlight tools that will help patients, family and friends cope with the diagnosis, treatment and grief. THANK YOU!
Meemeex7
Sep 8, 2009 10:06pm
Childhood Cancer Awareness month is September. Please consider helping us raise awareness by doing a show on this. My grandaugher lost her battle with medullablastoma almost 4 years ago. It still hurts after all this time. Up until that time, I had never known of a child with cancer. Jenna was only 2 years old when she was diagnosed. Within a year of her diagnosis, two of my personal friends had grandchildren who were also diagnosed with cancer, only one has survived. It was and still is such a shock on my visits to the hospital, to see how many children just in this area, who have entered this nightmare. Please help bring awareness to this so that more funding can be used for pediatric cancer research. Caring for our children, our future should be a top priority, not the last.
pooohbear7536
Sep 8, 2009 10:17pm
September is National Childhood Cancer Awareness month. Could you please do a show to help enlighten people on the severity and seriousness of childhood cancer? My son was diagnosed with high risk ALL last year and since then his life has been turned upside down. He has had to undergo things that no child should have to endure. More funding for research to find a cure is a necessity. Thank you! www.caringbridge.org/visit/dominicjordan
pookie0126
Sep 8, 2009 10:35pm
Before my son was diagnosed with Pre B Acute Lymphoblatic Leukemia I had no idea how many children suffered from cancer and how little was being done about it. My 6 yr old son, Will, died of liver failure (VOD) from the effects of his treatment 1 yr after being diagnosed. I know no one likes to think of children as being sick or dying or that it could possibly happen to them or their family BUT it can and it does. September is Childhood Cancer Awareness Month and it is also Leukemia Lymphoma Awareness month and not enough people know it and those who do know are living it. We need to fight for our children. We need to fight for a Cure. www.caringbridge.org/visit/willhopkins
Ritina
Sep 8, 2009 10:58pm
Please, we need to get more awareness and info out there. We are losing too many kids to cancer. It is underfunded and under researched. September is National Childhood Cancer Awareness Month. How many know this? How many are aware of the statistics of childhood cancer? We are. Our son bears the physical and emotional scars of his battle with childhood cancer at the age of eight. It is an awful battle for anyone to fight. But, for children to suffer like they are every day, and dying, is unacceptable. Unless you've been there, you can never really know exactly how awful it is to watch and live through. Our son's cancer was so rare that, in 2002, there was absolutely NO, not any, information on it on even the internet. There was NO PROTOCOL for treatment established either. We had to choose a course of treatment based on the best "guesses" of well-known pediatric sarcoma oncologists at major childhood cancer centers around the country. More research could have helped us. We were blessed. We still have our son. SO many others can't say the same. Now we face the uncertain future of long-term effects of the chemo and treatments he endured at such a young age. We MUST inform the American public. We need more people to fight for more funding which would lead to more research, which could possible lead to a cure. Our children need us to speak for them...and to fight for their lives.
maidencalif
Sep 8, 2009 11:53pm
Please do a show on childhood cancer awareness...give our children a voice. Every school day, about 46 young people (2 classrooms full) are diagnosed with cancer in the US and 7 will die each day. No parent should ever hear the words cancer and their childs name used in the same sentence. My 15 year old son Sinjin had cancer
Libertybelle99
Sep 9, 2009 3:13am
Rhabdomyosarcoma... most people will never know how to pronounce it, let alone know what it means. For our family it is an everyday word... although we call it Rhabdo, like most of the community we are now a part of. Childhood Cancers are so overlooked when it comes to awareness and funding. Our son is only 6 months old... SIX MONTHS, we should be laughing and smiling at his attempts to crawl and yet we are smiling and relieved that his "counts" came back good and we can procede with Chemotherapy, we are marking the calender for the next MRI, the next surgery... September is Childhood Cancer awareness month. Please help our community spread the word to the rest of the world. So little is know as to why and how...so little funding is available FOR THE CURE!
kikiv33
Sep 9, 2009 3:35am
As a pediatric resident I was drawn to oncology. I was planning to participate in a fellowship program, but family comes first with me. I became pregnant my 2nd year as a resident and decided that I didn't want to put a small child through the hours of mommy-less time that a fellowship takes. Imagine my surprise when I became an oncology PARENT. My son was diagnosed with pre-B cell ALL just 1 year after completing my residency when he was 2 years old. Please help us bring awareness to the world of the silent. Kids with cancer don't have a voice of their own. We, their parents, friends, and doctors, must speak for them! Crystal
Annette Mc
Sep 9, 2009 4:13am
I am a cancer parent who's 12 yr old daughter passed away on 12/12/08 from a diffused intrinsic pontine glioma or as we call it a DIPG. My daughter as well as many others are misdiagnosed for months before a light bulb goes off and the dr's say wow it could be a brain tumor. There is no cause or cure. All parents hear is I'm sorry their is nothing we can do. Take your child home and enjoy the maybe 6 months you have. Then we are told it just happens. Sorry to me just happens is for accidents, lossing your car keys, things like that just happen. Cancer doesn't just happen there has to be a reason and more research needs to go towards these children. They only receive at the most 3% for all childhood cancers. Just how far does 3% go when there are 120 different types of brain tumors our children can get. Not to mention the other types of childhood cancer. Breast and Prostate are the only two types children DON'T get. Adults can't get most of the childhood cancers. But, with our children passing at alarming rates they will never grow up to get Breast or Prostate cancer. So both Breast and Prostate will be gone, because you won't have the children to get it. So I guess at least a cure will be found for that. But, our future will be gone, because we will have no more children. Remember it could be your child. I pray you won't have to experience what I and so many others have. Please, help us spread the word and raise awareness, if people don't know it's out there, then things will continue the way they are now. No CURE... Annette Mc (angel aimees mom) www.caringbridge.org/visit/aimeedickey www.aimeesarmy.com
CyrClan
Sep 9, 2009 4:36am
I hope you devote the entire hour to this awful disease. My son died because the treatment left him weak and defenseless against a bacterial infection. Everything from symptoms to hospital safty measures while kids are in treatment should be discussed and everything in between. Please do this for the kids fighting and the angels gone way too soon. My Tyler was 15 and when he died, he would be a senior today.
sarasimmons
Sep 9, 2009 4:41am
My daughter Lindsay is 10 years old and has been in treatment for leukemia for over 2 years. Most people are shocked that treatment is soo long. There are many facts that people aren't aware of. PLEASE do a show on pediatric cancer and bring the importance of awareness to the forefront. Thanks, Sara (mom to a pediatric cancer patient)
abd12
Sep 9, 2009 4:44am
Having lost my 7 year old nephew last year to cancer. This topic is HUGE for me. It should be huge for everyone. Each day 34 of our children are diagnosed with this terrible disease! WE NEED TO FIND A CURE!!!!!!!!
ringnowplease
Sep 9, 2009 4:55am
My son is a cancer survivor who had a stem cell transplant (allogenic). A mothers unselfish gift saved my child by donating her umbilical cord after giving birth! People look at me like I am crazy as we raise awareness about childhood cancer. They think I am even crazier when I ask a pregnant mother what she is doing with her childs cord. The cords are tossed in the garbage as children/adults lay suffering or dying waiting for a donor match! Please help us with research and raising awareness to pregnant mothers! Thanks Tracey Saputo MI
sfaulkner
Sep 9, 2009 5:02am
Please bring awareness about childhood cancer. It is devastating to watch your child endure the toxic treatments and all of the horrible side effects. This is such an important topic. What if it was your child? In October we hear about breast cancer all month. Well, September is National Childhood Cancer Awareness Month and we need more research and better treatments. There is nothing more heartbreaking than watching your child take their last breath. When is a good time to do a show about this...what about now? www.caringbridge.org/visit/matthewfaulkner
rodkeyrenee
Sep 9, 2009 5:07am
There needs to be more awareness, so many kids fighting for their lives - just to lose the battle. We need funding for research!! missing my girl www.virtualmemorials.com Abbey Rodkey 06-14-94 ~ 12-02-06
tlsgrs15
Sep 9, 2009 5:10am
We need awareness. my daughter was 5 1/2 months old when diagnosis with a aggressive brain tumor. The doctors didn't give her a fighting chance she would most likely not see her first christmas which was 12-06. 4 rounds of chemo, 10 surgeries later. most of which was before she was 1. She is now 3. She is also like so many having long term problems with the chemo, surgeries, etc. this is a long road. But these kids that are fighting for their lives have the determination that some don't. They want to live. We need awareness. Wear gold for the children.
amymck
Sep 9, 2009 5:24am
I lost my 17 year old beautiful daughter, Emily, a very short five months after learning she had leukemia. Never sick a day in her life and then this. The treatment to cure these deadly diseases is as caustic as the disease itself. These children are our future - I never knew until we began this journey exactly how many children are affected by cancer. Something needs to be done. Until you are immersed into the world of cancer, it is never more than a passing thought. I am always amazed by "causes", especially those that involve endangered species, yet who is raising awareness of a disease that is preying on our innocent children? Please get on board to spread the word and help make a difference in a very worthy endeavor.
jkral
Sep 9, 2009 5:39am
Our 7 year old daughter, Kristina, died on Thanksgiving Day, 23 November 2006, from a rare and aggressive pediatric cancer called, Pancreatoblastoma. She was just 5 years old when diagnosed with this dreadful disease. Please consider doing a show about childhood cancer for those children currently battling this disease, as well as, those angels that have lost their lives. From a morning mother in Virginia, Joanne Kral
skeleigh
Sep 9, 2009 5:39am
My son Keeghan was diagnosed with a brain tumor at age 10. He died at age 12 on August 31, 2008. Ironically, his goal in life before he was diagnosed was to grow up and find a cure for cancer! If it were your child, would you want more funding for pediatric cancer research? Please help us - the parents, family, and friends of these amazing children - to bring awareness. Cancer is not contagious, but the passionate drive to find a cure IS.
annebsmith
Sep 9, 2009 5:48am
Childhood cancer and treatment is different than adult cancer. Unfortunately, most treatments are "downsized" adult treatments that doesn't properly treat the cancer and have side effects that can be deadly long term. Most money goes to adult cancer research and treatment. Even when sick children are used as "poster children" for the leading cancer charity, 97% of the money goes to adult cancer research and treatment.
dbrestel
Sep 9, 2009 5:53am
A show on childhood cancer is long overdue. This is such a horrific disease. There is no known cause for most childhood cancers. It could affect any family at any time. I lost a son to Wilm's tumor. My daughter lost her little brother and best friend. My husband lost his little buddy. Our lives will forever be changed because of childhood cancer. www.caringbridge.org/ne/josh
ajsdad
Sep 9, 2009 6:06am
In January 2009 PAC2 mobilized to ask for increased funding for childhood cancer from President Obama through his Transition Team’s process to rank issues important to the American People. With over 125,000 questions submitted and 1.4 million votes cast, our question finished #5 in Health Care concerns, and was presented to President Obama in the Citizen’s Briefing Book (http://www.whitehouse.gov/assets/documents/Citizens_Briefing_Book_Final.pdf). (no, we haven’t heard back…yet) Here is the question: Dear President Obama: Childhood cancer is the number one killer disease of our children today: More than from asthma, diabetes, cystic fibrosis, congenital anomalies, and pediatric AIDS combined. Our children, your children, have a 1 in 300 chance of being diagnosed with cancer before age 20. Each school day, 46 more children are diagnosed. Survival rates, while improving, have leveled at around 75%; and each day 7 children die from cancer. In addition, each day, nearly 40,000 children are in treatment. Treatments for childhood cancer have not changed for 20 years, with “down-sized” adult treatments being the primary means. These treatments leave 60% of the SURVIVORS with longterm health issues ranging from infertility to developmental problems to major organ damage to higher risk for secondary cancers. Yet funding for our children’s number one killer is woefully inadequate. Our generation has mobilized against breast, color and prostate cancer, yet we have grossly failed our children in funding improvements in their care. Funding for research into prostate cancer is over $2000 for each year of potential life lost. Similarly, colon cancer and breast cancer receive approximately $350 and $150 respectively for each year of potential life lost. Childhood cancer receives about $23 for each year of potential life lost. We are ashamed. I did not know this until Father’s Day 2007 when my 14 year old son AJ was diagnosed with cancer. He was a happy, healthy, athletic young man that was a joy to be around. He supported you. Unfortunately, in December 2008, I was forced to answer a question I hope no other Dad ever hears: “Dad, what is hospice?” AJ left us on January 5, 2008. But as promised, we fight back. I, along with an incredible young woman who has survived childhood cancer, have founded People Against Childhood Cancer, or PAC2 (www.curechildhoodcancer.ning.com). In four months we are over 3,000 strong and will never stop on behalf of the children we love. We seek ways to increase funding for this horrible elephant in the room that America refuses to acknowledge. The NCI and the American Cancer Society direct less than 3% of all funding to childhood cancer. Last year, a huge victory for the childhood cancer community was the Carolyn Price Conquer Childhood Cancer Act, allocating $25 million for the next five years for childhood cancer research. In today’s world of billions and trillions, much of it going to those that barely deserve it,I again have to be ashamed. We are not protecting the youngest and most innocent of our society to the best of our abilities. You have the power to directly fund more research in your budget. Please consider including a major line item in your budget to fund research to save our children. We are sure Malia Ann and Natasha would approve. Sincerely, Bob Piniewski and Lori Keith Founders – People Against Childhood Cancer
montagne5
Sep 9, 2009 6:33am
I would love to see a show that brings attention to childhood cancer awareness. We need help bringing attention to this disease. Please do this show in September as it is Childhood Cancer Awareness month. Cancer robs too many people of so many things, especially the children. You have no control over anything and the fear is unbelievable. My daughter is a survivor! She went through 2 major surgeries, radiation and chemotherapy. She is our hero!
andymikulak
Sep 9, 2009 6:35am
Most of the drugs used in pediatric cancer were approved in the 1950s and 60s. We're using mostly Cold War-era technology to fight pediatric cancer and our children pay the price. Funding helps to remove the barriers to new treatments - treatments that adults get but that kids don't.
cottonapple
Sep 9, 2009 6:45am
Society NEEDS to be made aware of how prevalent childhood cancer is. I think most people know it exists but feel it's "too painful" to discuss. I have been a cancer-support volunteer for seven years now and my own family doesn't like to hear about kids suffering from cancer. I often hear, "It takes a special kind of person to do what you do." No, it doesn't. I'm not special - it's the kids who are special and they deserve to have their stories told. I'm just doing what we should all be doing - raising awareness and trying to lighten the load for the families who have been stricken by this monster of a disease. No child should ever have to utter the words, "I have Diffuse Intrinsic Pontine Glioma," or "I can't go to school because I'm immuno-suppressed from chemotherapy." A 4-year-old shouldn't know how to pronounce Medulloblastoma and a 10-year-old should know how to spell Craniopharyngioma or Acute Lymphoblastic Leukemia or Rhabdomyosarcoma. But they do...and it breaks my heart. It is important for all parents know that "growing pains' can also be symptoms of something much, much worse. Many parents don't understand how critical routine well-visits are to their child's well-being. On the flip-side, doctors need to be more aggressive and take the time to listen more closely to parents, rather than often writing off complaints as "typical parent anxiety". I've heard too many parents say that their son or daughter would still be alive today if their doctor had only listened and taken them seriously before it was too late. Awareness + Funding = CURE
mamawhite
Sep 9, 2009 6:47am
My son didn't lose his life to cancer, but did lose his leg. Can you imagine telling a 5 year old that they are going to remove his "sick leg" so he can get a "new leg"? I am so thankful that he survived this monster so far, but there are so many that do not. Kids are diagnosed every day and have to endure years of treatment and even after that, their life is never the same. The majority have long term effects of the cancer or the treatment that was used to save their life. Please give the attention to the kids. Our warriors deserve it! www.jonahsjourney.net
KarlisKause
Sep 9, 2009 7:07am
My 4 year old daughter has retinoblastoma. She went from Elmo and Nemo and nap time, to needles, eye drops, chemotherapy, femoral artery catheterizations and a world where the majority of her peers were bald and pale. That is her normal and it is all she knows. She does not hate it or feel sorry for herself, she just lives it and keeps on smiling! WE ALL KNOW she does not deserve it and neither does any of the other children. Our country needs to know what our lives are like and needs to know how vastly underfunded this disease called CHILDHOOD CANCER is so that they can help make the difference for the rest of us whose world revolves around day to day survival and clinical trials for our children! On behalf of Karli, Savannah, Bishop, Thomas, Julie-Layton, Isaiah, Dylan, Trey, Paris, Kaci, and all of the other thousands of children battling this disease, please help do your part to bring awareness. VOTE THE SHOW UP and WEAR GOLD RIBBONS for the month of SEPTEMBER!!!!!!
lhagen
Sep 9, 2009 7:15am
Cancer in any sense of the word is heartbreaking. Its the word that makes our heart skip a beat, the word that make us swallow hard, and the word that sends our minds to that place. We have made great strides with breast cancer awareness with men and women, ovarian cancer awareness, skin cancer awareness, and prostate cancer awareness. There are multiple fundraisers and events held monthly for these great organizations. I have personally held these events for such awareness. But CHILDHOOD CANCER AWARENESS, needs to come to the for front of our T.V's and our minds. We spend everyday protecting our children. Society needs to know the hard facts and the stories that begin and end everyday of our lives. September is CHILDHOOD CANCER AWARENESS and our children are our future, we have came full circle with awareness and now it is time to put forth our money, time, and effort to report and educate society on this killer. Please make this happen on your show...it has to start with one.
oncomom
Sep 9, 2009 7:16am
I'm just a Mom, Dante's Mom. My son passed away 1/6/09 after a 13 month battle with Neuroblastoma Stage 4. He was just over 2 years old. There is so much I can say here, but I want to make you aware, KIDS GET CANCER TOO! Everyone loves a cute little bald headed survivor, but what about our cute little bald headed angel's? They deserve to be heard from the heaven's. Please give our angel's a voice. Jo from NJ www.carepages.com/trooperdante
lml70
Sep 9, 2009 7:19am
Please do this show. I am not the parent of a cancer patient. I have 3 healthy kids. I am an avid advocate for pediatric cancer awareness. I have watched too many kids suffer through treatment and most (unfortunately) have died. It breaks my heart to see the pictures of these BEAUTIFUL children and realize that they are no longer here on earth. They do it with a smile, always a smile. When I try to spread awareness amongst my friends and family I believe they think I'm crazy. "Why do you put yourself through this?" referring to the fact that I follow so many kids' stories. It's INCREDIBLY painful to watch, yes, but I simply cannot abandon these kids. If some of us not afflicted with this disease don't step up, then all that's left to fight the fight is the parents of the kids going through treatment or parents of kids who have died. They are passionate about the cause, but also don't always have the time to put towards it. I guarantee that all you have to do is follow one child's journey and you will understand WHY we need more funding to find a cure. JUST ONE. Please do this show.
mbarger
Sep 9, 2009 7:29am
Please consider doing a show about childhood cancer and the importance of more research. My 7 year old daughter passed away from Rhabdomyosarcoma June of 2008. No parent should have to go through the pain of losing a child. Please help us get the word out about childhood cancer awareness month. Gold is the color of childhood cancer. Please wear a gold ribbon to show your support to find a cure for childhood cancer. Thank you so much!
lisaandsamsmom
Sep 9, 2009 7:30am
My daughter was diagnosed with High Risk Pre-Cursor B Cell Acute Lymphoblastic Leukemia when she was 2 years old. In the last 14 months she has undergone 95 days inpatient (including Christmas and her 3rd birthday), 24 chemotherapy injections, 20 chemotherapy infusions, 12 spinal taps, and 9 invasive surgeries. She has just turned four and still has a year left aof treatment. God willing she will live a long, cancer-free life after treatment. Even if the cancer never shows it's ugly face again we will be faced with long term effects of the poisonous drugs that have saved her. Awareness and funding are severly inadequate, you can help with this, please do a show about our warriors!
mzrach
Sep 9, 2009 7:48am
Lack of awareness almost could have killed my son, if i hadn't been such a determined mom and not taking the doctors misdiagnosis as the real diagnosis. Please help other kids who are being misdiagnosed. Give their parents more information so they might too ask the right questions, recognize the symptoms and push for that MRI when doctors keep telling them its only migraines when really its could be a brain tumor.
dashw
Sep 9, 2009 8:03am
As a parent of a 6 year old daughter fighting cancer for the second time, it is time we had a show that brought the statistics of childhood cancer to everyone's attention and the absolute lack of funding for research for childhood cancer. Without awareness we are not going to make head way in finding new drugs to save our kids. September is National Childhood cancer awareness month - and how many people know that... hardly any. Our kids need us to be their voices.
jkjordan
Sep 9, 2009 8:04am
Childhood cancer is not something we want to hear about or read about because it's something that will never happen to you...and then it does. Cancer shows no mercy and it can happen to anyone at any time. It sneaks up on you and rips your heart out. The numbers are stunning and yet saddening and if our (now 5 year old son) had not been diagnosed with ALL at the age of 3 we still would not be aware of just how many children AND infants are diagnosed with cancer EVERY day! I believe that if everyone were more educated about this then more funding would be made possible. The children need our help, we need to get the word out and make everyone more aware of just how many children are affected by this life threatening disease. As Danny Thomas put it, "No child should die in the dawn of their life".
frankiesfight
Sep 9, 2009 8:11am
I actually am a daily watcher of The Doctors. So, when my good friend Bob messaged me and asked me to come to this site to vote on the topic closest to my heart, Childhood Cancer, how could I not? My son was diagnosed in 2003 at four years old with a very rare childhood cancer, and our family walked with him during his four year journey, watching him endure multiple invasive surgical procedures, toxic chemotherapy treatments, radiation therapy, and all the side effects. I will never forget the day he was diagnosed, as I sat in the playroom of the hospital, looking around the room at all of the children who were bald, hooked up to all kinds of tubes, vomiting into their bins and I said to myself...WE DONT BELONG HERE, MY SON IS NOT THIS SICK.....Come to find that night he himself WAS that sick, he had cancer. We lost Frankie in March of 2007, he passed away here in our house (in my arms)surrounded by his family at the age of 8 years old. I myself was one of the people in the world who chose not to think about childhood cancer, the suffering it brings to the child and their family, and the grossly inadequate treatments these poor children endure, in an attempt to save thier lives. My heart breaks EVERY DAY, as 46 new children will be diagnosed with some form of cancer, and EACH DAY, 7 children will die from their disease. We need the world to recognize that childhood cancer is a global priority, and our children deserve to have their disease recognized and funded the same way that AIDS, breast cancer, and heart disease are. We need your help, you have the vessel through which our voices can be heard. BALD KIDS ROCK!!!!! Monique Gebeline, President Frankie's Fight www.frankiesfight.org frankiesfight@aol.com
leayellowrose
Sep 9, 2009 8:12am
Just one of the many parents who will NOT be tucking their baby in , tonight and every night for the rest of my life.... Missing you lil man! Lets talk about CHILDHOOD cANCER !!!!
dld313
Sep 9, 2009 8:14am
They say that childhood cancer is rare. Tell that to a mom and dad that have just been told that there child has been dx with cancer. They may believe that bull at first but then they start to dive into the internet and get connected to the thousands plus...of moms and dads out there that have lost their children or are in the battle. It's like its own underground world. Just take a look at any caringbridge or carepage site. You can link from one kid to another.... We are all in this SCREAMING FOR HELP and praying to be heard. Hoping that we could get help from our government, somebody, anybody. Help us save our dying children! It doesn't even seem real that this could be happening in the richest country in the world. Childhood cancer is only getting 3% of research dollars for ALL types of childhood cancer. Thank you in advance for considering doing a show that could get the word out about childhood cancer. September is chilhood cancer awareness month. Debbie ~ Mom to Alyssa (dx with brain cancer ~ medulloblastoma at age 6) http://www.caringbridge.org/visit/alyssadennewitz
ajsdad
Sep 9, 2009 8:45am
Here is a link if you have any reservations about why such a show is needed: http://www.boston.com/bigpicture/2008/09/childhood_cancer_awareness_mon.html
lgreen
Sep 9, 2009 8:53am
The world of Childhood Cancer can not be ignored any more. I think the amount of points prove it! I keep going back to the same question of " What if Childhood Cancer got the attention and respect that Breast Cancer gets and deserves". All year long too, not just during one month. We need to fight harder for Childhood Cancer. There's no way to prevent it like other cancers. For now a cure is the only option. But the children can't speak for themselves like people with adult cancer can, We need to be a VOICE for them. The public needs to know and deseves to know what these children and their families are going through. And they need to know ways they may be able to help. Thank you....I hope we can look forward to the show.
Sheriberr
Sep 9, 2009 8:57am
My son was 2 years old when he was diagnosed with t-cell leukemia. His white blood cell count was over 500,000. They told us to say our goodbyes. Fortunately, my son pulled through those first rough months of treatment and went on to endure 2 more years of harsh chemotherapy, high-dose steriods, and cranial radiation. The radiation was the most difficult part (and there were a lot of difficult parts!). Watching helplessly as your sweet, sweet, innocent child endures radiation directly to the brain is heart-wrenching. We felt helpless. We didn't know if he would be able to function as a normal adult due to all the toxicity. Fortunately, our son is now 13 years old and just started middle school. :-) He's a bright, well-adjusted teen who came out a cancer survivor, but as a result, does have some memory and processing issues. It's unfortuante that our children (1) are diagnosed with cancer; (2) must endure long treatment protocols - some are more than 3 yrs long - using harsh toxic chemos; and (3) suffer long-term ill-effects as a result of the treatment to keep them alive. I think it's important to showcase childhood cancer on your show in order to highlight the fact that more children die from cancer than asthma, diabetes, cystic fibrosis, congenital abnormalities and pediatric AIDS - combined! In addition, treatments for childhood cancer are longer than adult cancers, and there is less money funded for childhood cancer research than there is for adult cancers. I think it's also important for people to see that even though more and more children are surviving childhood cancer, they are paying a high price to do so (i.e. my son's brain damage due to the cranial radiation). I think it's also important for people to be aware of the warning signs - not to scare them - but to just be aware of them. Childhood cancer can go undiagnosed at a pediatrician's office many times before it becomes apparent. In my son's case, we had been to the pediatrician's office 6 different times before they sent us to see a pediatric oncologist. And it was almost too late! September is Childhood Cancer Awareness Month. If nothing else, please, PLEASE get a gold ribbon pin and wear it on your show in support of childhood cancer awareness this month. Thank you for taking the time to read my comments. Sheri from Virginia
Mgoushian
Sep 9, 2009 8:58am
I have to say I have never been aware of childhood cancer till I met this beautiful person Monique who has lost her son to cancer. I would of never knew about this if we have never met. they need to make people more aware of this, these children should not have to suffer like this. A cure needs to be found soon. Lets make people more aware! I would of never been aware of this if I have never met Monique.
DawnCarey
Sep 9, 2009 9:02am
Please hear us! Look at the votes! How can you turn us away? It feels like we live in the shadows because nobody wants to take on Childhood Cancer. Our children are dying...my 16 yr old daughter died a year ago from a brain tumor. What if she was your daughter, sister, or friend? Your show is so helpful to so many on various topics. But have any of you stayed from the beginning of Hospice of a child, to the end? A child. Still fighting in her name~ Morgan's Mom
AnnaMCarey
Sep 9, 2009 9:07am
We lost Morgan 8/22/08- at just sixteen to a stage IVrare and aggresive Brain Cancer(PNET) after 18 months of fighting. A year later, her family is still fighting- to be heard. Childhood Cancer is not something to be ignored! - Not only do we need to talk about the people effected, and the treatments that they go through, but we need to talk about what is not happening for these patients - Research AND Funding. How can our government CUT funding?(which it recently did) What are they cutting when Pediatric Cancer was only reciveing 3% of funds to begin with?!? How can Dr. Ezekiel Emanuel be a health-policy adviser at the Office of Management and Budget and a member of Federal Council on Comparative Effectiveness Research when he believes in PROGNOSIS-BASED treatment. He also says that we should not waste treatment on infants and adolecents actually stating that their lives are not as important as a 20-year-olds (Lancet- Jan. 31, 2009). This man is advising our president!?!?! Morgan was 14 when she was dx, without treatment we would not have gotten the 18 months we had to celebrate her.
Sher4848
Sep 9, 2009 9:17am
We lost our grandaughter Mila die in 2004 from an astocytoma, brainstem glioma. Watching our daughter loose her only daughter who was 2 1/2 years old was one of the most excruciating things a parent can possible go through. September is the month dedicated to Childhood Cancer Awareness, please help to in some way promote to influence the powers to be to give more funding to this cause. I have seen the power of Myspace and Facebook do more to help a parent who is fighting this battle with their child than any other media. This is happening each and every day to a family who can never possibly prepare themselves for cancers devastation on them and their child. This is a cause that needs to be continually brought to the forefront. The grief of loosing a child never, ever goes away. They are forever in the folds of your heart, but when their could be funding denoted to research and it is not happening, that is unexceptable. Please use this month on your show to find time to promote this worthwhile cause. Our childrens health is directly linked to our future...make a difference. Those precious angels we have lost will then not have died in vain. Sher
mickilynn
Sep 9, 2009 9:24am
My name is Micki. My family and I share a common bond with so many in this country. We are all part of a group. A group no one wants to be a part of. The group consists of people, ordinary people that have lost a child to cancer. Our stories are ones of courageous little kids who tried to fight this battle and didn’t win. Our kids that are diagnosed with cancer everyday could be our next President, a fantastic teacher who receives an award for their achievements, or a DOCTOR who discovers a cure for the number one cause of childhood death, other than accidents. Cancer kills more children than asthma, diabetes, cystic fibrosis, and pediatric AIDS combined. 1 in 300 children will be diagnosed with cancer before age 20. 1 in 4 or 5 will not survive. 3500 children a year are diagnosed with a brain tumor; of that number 1400 will NOT survive. One of those children was my little girl, Mariah. She was the most beautiful human being ever to walk this earth. She had a heart of gold and there wasn't anyone who met her for one second who doesn't remember that meeting. She was diagnosed on April 27, 2007 with a rare brain tumor called Diffuse Intrinsic Pontine Glioma. Although Mariah tried to make her life as uneventful as possible, there was no denying how much she was loved unconditionally by many. Mariah made us realize how precious life is. How precious a CHILD’s life is. Cancer took our daughter's life and robbed me as a parent, as it has so many other children and parents. Our children that are here on this earth, fighting daily, need a voice. They need someone to stand up and understand that they need a cure. They absolutely do not deserve what they must endure. We need to make the “gold” ribbon for Childhood Cancer awareness as recognizable as the pink ribbons for breast cancer awareness. Help save our children. Every day you wait, another 46 children are diagnosed and another 7 die.
aconway
Sep 9, 2009 9:43am
Bring awareness to how deeply affected many familes are by pediatric cancer. Open up awareness about the allocation of cancer research funds.
tammysms
Sep 9, 2009 10:15am
As a parent of childhood cancer, I would like to see more awareness and funding for research, nationwide. I did not realize how many children were suffering from cancer until I experienced it myself.
ajsdad
Sep 9, 2009 10:15am
Here is another read on the childhood cancer world.... http://www.standup2cancer.org/node/3738
maggiejo21
Sep 9, 2009 10:24am
My daughter was diagnosed with cancer at 15 months old. Up until that time I was very unware of how many children were being diagnosed and even dying from cancer each year. I hate that it took my own child getting cancer to make me aware and want to change those statistics. We need a cure, but unfortunately childhood cancer only received 3% of the funds that are raised each year! I bet you can ask any parent who goes through this and they will tell you that our babies are worth alot more than 3%!!!!! Please help raise awareness!!!!! Our children, our future, deserve us to fight for them while they are fighting for their lives against this horrible disease!
KalesMommy
Sep 9, 2009 10:24am
My son, my only child was diagnosed with leukemia at the age of 21 months. Kale being diagnosed with Leukemia was devastating. Kale is currently in remission, but his fight is far from over. Kale's treatment for Leukemia will continue until late 2011.Cancer is a horrible disease and it changes your life FOREVER!
Seansmom
Sep 9, 2009 10:29am
They say that childhood cancer is rare. Rare??? How rare is it that my child is the fourth child in his school to battle childhood cancer? Each of these children's cancer is different - an inoperable brain tumor, Ewing's sarcoma, leukemia and osteosarcoma. Their long-term side effects are also different. But the one thing they have in common were scared, frightened but faithful parents, brothers, sisters, grandparents, cousins, and a loving community. I know in my heart that with awareness there will come a cure. Please help these children and their families get the word out. We do not need pity; we need your help and funds to find a cure!
childcancer
Sep 9, 2009 10:45am
My son Adam was diagnosed at age 14 with a brain tumor he named "Bill" because we wanted to "Kill Bill". He fought hard for 18 months and died 4/11/2009 he will forever be 16. Our lives have been changed forever because of childhood cancer. All of the kids who have fought and are still fighting this horrible disease are HEROS! Just remember that September is Childhood Awareness Month, get your gold on for the kids!
huppjs
Sep 9, 2009 11:01am
I lost my son 3 weeks ago to this horrible disease. Why are we spending so much money funding treatments for 65 year olds and so little on 10 year olds. Please help bring light to the choices and struggles these kids face. Perhaps this topic is too depressing for a tv show and wont get good ratings but it needs to be discussed.
dld313
Sep 9, 2009 11:12am
They say that childhood cancer is rare. Tell that to a mom and dad that have just been told that there child has been dx with cancer. They may believe that bull at first but then they start to dive into the internet and get connected to the thousands plus...of moms and dads out there that have lost their children or are in the battle. It's like its own underground world. Just take a look at any caringbridge or carepage site. You can link from one kid to another.... We are all in this SCREAMING FOR HELP and praying to be heard. Hoping that we could get help from our government, somebody, anybody. Help us save our dying children! It doesn't even seem real that this could be happening in the richest country in the world. Childhood cancer is only getting 3% of research dollars for ALL types of childhood cancer. Thank you in advance for considering doing a show that could get the word out about childhood cancer. September is chilhood cancer awareness month. Debbie ~ Mom to Alyssa (dx with brain cancer ~ medulloblastoma at age 6) http://www.caringbridge.org/visit/alyssadennewitz
ehauschildt
Sep 9, 2009 11:14am
Please give children affected by cancer a voice. My daughter lost her battle with a rare brain tumor Diffused Intrinsic Pontine Glioma on 11/21/08. The doctors didn't have 1 single treatment that could be effective. Kids with this type of brain tumor pass away within 9-15 months from diagnosis. It is one of the most dismal prognosis a child can get. These kids deserve to be honored in the month of September. They fight so hard and with such grace. Most adults do not handle their cancer as well as these little kids do. Childhood cancer does not make sense an answer needs to be found, but we cannot do that without awareness and funding. Parents are not suppose to bury their child. It is my mission to try and make sure that it happens less and less. Look how far breast cancer research and statistics have come with awareness and funding. Children are our future - so why are we not protecting them?? www.justonemoreday.org
jeninote
Sep 9, 2009 11:26am
This is an important issue that needs some attention. Pediatric cancer has touched our family and it breaks my heart to see child after child losing their life to this vicious disease. Funding for childhood cancer is next to nothing...this needs to be changed!
kimgreene
Sep 9, 2009 11:36am
Funding and awareness for childhood cancer are not adequate. The gold ribbon should be just as recognizable as the pink ribbon! We can make it happen and we can make a difference for these children and their families. Childhood cancer strikes without warning and is often at advanced stages when diagnosed. Help make everone aware that children do get cancer and that we need funding for research.
Remembering Emily
Sep 9, 2009 12:09pm
Our community lost two precious little girls (ages 5 & 7) in the summer of 2008 to Rhabdomyosarcoma. Their families have created a non-profit organization (www.butterflyfund.org) to raise awareness about childhood cancer and your show is an opportunity to further their dream of spreading childhood cancer awareness. These two families are shining examples of how to turn tragedies into something positive.
chmits
Sep 9, 2009 12:11pm
AWARENESS=FUNDING FUNDING=RESEARCH RESEARCH=CURE need we say more?
chmits
Sep 9, 2009 12:14pm
and for that matter, you could also focus on what actually happens during a bone marrow transplant. All of these tv shows make it look like it is a walk in the park. The person is in and out in a couple days...ex Grey's Anatomy, One Life to Live, House all had shows where someone had a bmt. IT does NOT happen like they portray it!!
dloehler
Sep 9, 2009 12:35pm
There needs to be more awareness about childhood cancer. My daughter, who is 12 years old, was born with stage 3 neuroblastoma. After under going surgery and 1 year of chemo, she continues to show no evidence of disease. Cancer doesn't pick or choose who or what age to strike. By increasing our awareness, I believe we can beat this nasty disease. No one should watch anyone battling cancer, let alone our precious children. Please help us fight this!!!
memeoftwo
Sep 9, 2009 12:35pm
My grandson was diagnosed with Philadelphia Positive Acute Lymphoblastic Leukemia on July 21,2007 at age 3 1/2. After undergoing High dose chemotherapy, total body irradiation, bone marrow transplant, numerous admissions to the hospital, hundreds of lab draws, test, procedures, xrays, scans, mri's he is now in a remission. Now we deal daily with the "collateral damage" of avascular necrosis, psuedo tumor cerebrai, heterotopic ossification to name a few. Benjamin was given a less than 10% chance of survival at 5 years, we are now 2 years and 2 months into the journey. Please bring this monster into the publics view so that more research can be done so our babies can have more than a 10% chance of surving! www.carepages.com/helpbenjamin
artistmelody
Sep 9, 2009 12:49pm
My little Jimmy was diagnosed at the age of 4 with clear cell supratentorial ependymoma, brain tumor. So far he has had 4 brain surgeries, and 6 weeks of radiation to his brain. He is now mostly blind, half permanently bald, and takes 8 pills a day to control his seizures. Sometimes the treatments to save these precious little lives can be so damaging, especially to a small child's developing brain and body, but so little research is being done to discover new treatments. However, the most amazing thing is the children: Jimmy is an optimistic, happy, very social, opinionated little 8 year old now, who has been known to tell adults to stop complaining (even strangers) when he hears them gripe about their health or doctors.
clwhyi97
Sep 9, 2009 12:53pm
My five year old son was diagnosed with Burkitt's Lymphoma when he was 5 years old. He tried to get into the the world records for collecting the most paper airplanes. He is now 7 years old. However until Hunter was brought into the world news hardly anyone had ever heard of burkitt's cancer. More funding NEEDS!!!!!! Why isnt there more funding or more attention to do more research on childhood cancers???? The president can talk to america about staying in school but how about talking about health in children other then washing your hands. You dont get cancer by not washing your hands!!!! Please please please lets work together to bring more awarness to childhood cancer!!!!!!!!!!!!!! www.caringbridge.org/visit/hunterwinship GOD BLESS TO ALL THE PARENTS AND FAMILIES THAT HAVE BEEN EFFECTED BY A CHILD WITH CANCER!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
tesswoods
Sep 9, 2009 1:09pm
Please consider childhood cancer awareness for a show idea. Very dear friends of ours lost their 7 year old daughter to the disease last year. Then a few months later they lost another childhood friend to the same exact rare disease. The parents have set up a fund (The butterfly fund, in Knoxville TN, in memory of the girls) to help with cancer research. No child should have to suffer with this horrible disease.
PIXIKU
Sep 9, 2009 2:23pm
I voted for CHILDHOOD CANCER AWARENESS MONTH topic http://www.caringbridge.org/visit/mcraekate IN HONOR OF KATE MCRAE and her FAMILY and ALL CHILDREN
jloul
Sep 9, 2009 2:32pm
I wrote a post about hair donation for wigs for children. It is posted in the Disease/Illness section. I hit the post before I realized there was a childrens section. This would go hand in hand with Childhood Cancer Awareness Month. I urge anybody who has not grown out your hair and donated it to "just do it". It cost nothing but a hair cut (most salons will cut it for free if you tell them what you are doing). I hope that they do a series on Childhood Cancer. It would be an eye opener for many who do not understand what the children go through.
abisigna
Sep 9, 2009 2:36pm
This is such an important issue and should without a doubt be on this show. It needs more awareness. People Against Childhood Cancer (PAC2) thepetitionsite.com/1/CureChildhoodCancer • Childhood Cancer is the #1 killer disease of our children, more than from asthma, diabetes, cystic fibrosis, congenital anomalies, and pediatric AIDS combined. • 1 in 330 children will be diagnosed with cancer before age 20, 46 every school day. • Each year 3,000 children die, and 35-40,000 are in treatment. • The National Cancer Institute’s (NCI) federal budget was $4.6 billion. All 12 major groups of pediatric cancer’s combined received less than 3% of those funds! We need your voice to help make a difference in the lives of our children. The child you save may be your own. Join PAC2 at: CureChildhoodCancer.ning.com
pflattum
Sep 9, 2009 2:44pm
My little boy was diagnosed with Ewings sarcoma ( bone cancer) at the age of 6. With determination,courage,bravery and strength he battled for 3 years through chemo and numerous surgeries to overcome this horrible,horrible disease and is now ( thank God) in remission. He wouldn't have been able to do it without the wonderful doctors, nurses and countless people who work behind the scenes to try to help save these childrens lives. We keep praying that through research a cure will be found. For research to progress and continue, they need funding. No child should ever have to suffer this horrible disease. No parent should have to watch thier child suffer. It is without a doubt the most helpless feeling, a nightmare. My son is still alive today, but other familes we met along this journey were not so fortunate and had to bury thier precious children and not a day goes by that we dont think about or worry about recurrance. But we are not going to let that fear rob us of the joy we have with him each new day. He is our inspiration and our hero. Thank you.
pflattum
Sep 9, 2009 3:17pm
My little boy was diagnosed with Ewings sarcoma ( bone cancer) at the age of 6. With determination,courage,bravery and strength he battled for 3 years through chemo and numerous surgeries to overcome this horrible,horrible disease and is now ( thank God) in remission. He wouldn't have been able to do it without the wonderful doctors, nurses and countless people who work behind the scenes to try to help save these childrens lives. We keep praying that through research a cure will be found. For research to progress and continue, they need funding. No child should ever have to suffer this horrible disease. No parent should have to watch thier child suffer. It is without a doubt the most helpless feeling, a nightmare. My son is still alive today, but other familes we met along this journey were not so fortunate and had to bury thier precious children and not a day goes by that we dont think about or worry about recurrance. But we are not going to let that fear rob us of the joy we have with him each new day. He is our inspiration and our hero. Thank you.
jperry53
Sep 9, 2009 3:20pm
Childhood Cancer really needs more awareness. 30 yr old treatments, downsized adult treatments, and way too many lives lost. Something has to be done, People need to be made aware. Too few research dallars are spent on childhood cancers. Most goes to adult cancers. Most adults, male or female, even if they been treated for cancer, would tell you spend the money on the kids first, why isnt it done that way?
nyfehr
Sep 9, 2009 3:48pm
I am THRILLED to see that this is being brought to light. As a mother of a young one diagnosed with leukemia.. and relapsed... I know how important it is to get the message out there. I LOVE the show... and can't wait to see this topic on it! www.caringbridge.org/canada/joshua
sdarby
Sep 9, 2009 4:26pm
My 15 year old daughter is battling rhabdosarcoma for the second time in sixteen months. Until this tragedy hit our family, I was very unaware of the statistics involving childhood cancer. We are all painfully aware of the specifics of it now. If more people knew the facts, I am sure there would be more help for these children. PLEASE help make the public aware of this "epidemic". I believe awareness will result in more funding, more research and ultimately a CURE!
kayld
Sep 9, 2009 4:28pm
My 3 year old was diagnosed with rhabdomyosarcoma at the age of 1. Our cancer journey has not ended with treatment. She is monitored every three months. Throughout our journey we have met many kids who haven't fared out as well as she has. More research needs to be done to find cures for these kids! www.isaacsfoundation.org
parentoftwo
Sep 9, 2009 5:29pm
How many people know that September is Childhood cancer Awareness month? How many people know what color represents the children? Do you know what pink means? Everyone does. I'm just looking for someone to wake up to the statistics: Childhood cancer is the number one killer disease of our children today: More than from asthma, diabetes, cystic fibrosis, congenital anomalies, and pediatric AIDS combined. Our children, your children, have a 1 in 300 chance of being diagnosed with cancer before age 20. Each school day, 46 more children are diagnosed.
kathy bisignano
Sep 9, 2009 5:39pm
My son Nicholas is a 3 year survivor of Hodgkins Lymphoma. After grueling chemo and radiation he is a freshman at lafayette college. His brother Anthony has written and produced a film about his journey. www.transitionthemovie.com. We are hoping this gets hollywood attention to help end this horrific disease. We vowed never to stop our fight to end this disease, We are submitting to all film festivals. We have also met with Hiliary Clinton to try and get legislation for pediatric survivorship. I hope you help us. The child you save may be your own.
kecklo
Sep 9, 2009 6:08pm
There are hundreds of thousands of us who will advocate for more funding for research; for more public awareness (so many people who have not been personally touched by Childhood Cancer do not recognize that we have a HUGE problem, and they prefer to keep their head in the sand - - - We Need To Make Them Aware); we will advocate for the Gold Ribbon, the symbol for Childhood Cancer, to be placed on consumer products and corporate advertising - we will do this through corporate and private sponsorship; we will advocate for a Childhood Cancer Postage Stamp - (Breast Cancer can do it, we can too!!) We WILL keep HOPE alive, for all those families who have lost a child to cancer, for all those still in treatment or newly diagnosed, and all those who have suffered in any way from this dreaded disease of our children. WE WILL DO THIS IN YOUR LIFETIME!!!!! We WILL do this so that no child will have died in vain. We do this for all the children. September Is National Childhood Cancer Awareness Month. Wear the Gold Ribbon in support of all those still battling, all those who have died, and all those children who have been affected in any way by this deadly disease of our children. We ask you to air a September show giving the statistics. We beg for more funding for Research and Awareness. We Will NOT stop until a CURE is found for ALL Pediatric cancers. Loraine Keck Annapolis, MD
tmdalton
Sep 9, 2009 6:19pm
As the mother of a 6-year-old cancer survivor, I am all too aware of the need to continue to make advances in the early diagnosis and treatment of this devastating disease. Although tremendous strides have been made in pediatric cancer over the decades, far too many children continue to be diagnosed with and die from cancer. Those who are cured from their disease often suffer serious long-term side effects or even death as a result of the treatments and procedures they endured to make them well. I am so grateful to be writing this as a parent whose child has been in remission for 3 1/2 years. However, my daughter's battle with cancer is not yet over. She will need to be monitored very closely for the return of the cancer and for other late effects for her entire lifetime. For the 12, 500 other children diagnosed each year in the U.S. alone, their fight has just begun. We desperately need awareness in order to make it possible for every child who has cancer to be given the chance to live!
katcincinnati
Sep 9, 2009 6:35pm
There needs to be more awareness out there. We are losing morwe and more of our babies everyday.
k4acure
Sep 9, 2009 6:37pm
Please do a show on this...I never thought of a child getting cancer until is slapped me in the face in 2003....there is so much on other cancers all adult of course especially breast cancer..so please make people aware of kids with cancer. Proud Mom to Alexis childhood cancer survivor...dx age 3 ALL just over 2 years of chemo off tx since Dec. 2005....doing good, but a parent never stops worrying.
momof5best
Sep 9, 2009 6:42pm
I am not alone in coming to face the harsh reality that Cancer kills children too. I didn't know the signs, the tisks, the life altering side affects of the drugs used to treat it, and worst of all I didn't know the depth of pain a parent must live through when they bury a child because Childhood Cancer. My precious daughter lost her battle in April of 2008. Since that time I have found out just how many children and their families face this kind of loss every year. TOO MANY. I am disheartened at the percentage of research money that is alocated to childhood cancer research. 3% of all funds are spread across 12 major types of childhood cancer. That is .25% each. We are not making a difference at these rates, and it is the helpless children who are paying the price. There is much that can be done, but it all starts with AWARENESS. Your program could be a real turning point for Childhood Cancer!
Lori Lee
Sep 9, 2009 6:56pm
Our daughter Sara lost her battle with a Brain Stem Glioma Multiform at age 8. It has been almost 11 years now but to us it feels like yesterday. Her big brother-now a grown man- still says that he lost the very best friend he ever had. Neither my husband nor myself could ever remember losing a classmate to cancer when we were young. What has went wrong in our country? What is causing this disease to kill our children? Why isn't there more funding for childhood cancer? It is true children are the future, so why are so many having their futures destroyed? We must bring attention to this hideous disease by doing a show on the impact of childhood cancer on not only the child but the aftermath a family must endure. Cancer not only killed our little girl-it killed the family we used to be.
sethsmomma
Sep 9, 2009 6:58pm
As a parent of a child who lost his life to a pediatric PNET brain tumor at age 2, I know first hand that the world does not understand the true effects of childhood cancer. We seem to be "hidden" from the world, no one wants to see children suffering, or hear about the life long effects of chemo and radiation....its ugly. No one wants to think about just how many kids are really fighting for their lives, and how many will not survive. The numbers are large....the media makes it seem rare, it is NOT rare. 1 in 330 children will get diagnosed with cancer....many will not survive. The world needs to hear the UGLY TRUTH, and they need to see the BEAUTIFUL FACES of the couragous brave children that are fighting for their lives. The world needs the truth, these kids can not fight alone, and their hope is in numbers, and that is in awareness of the truth.
BeaconJoe
Sep 9, 2009 7:17pm
I like many never thought about childhood cancer.... That is until the surgeon told us that the lump taken from our 6 week old was Cancer. Thanks to the amazing community that advocates Childhood Cancer Awareness, we have found the support needed to travel down this tough road. Research funding is paramount to finding cures and new treatments, allowing more people the doctors, nurses, & parents, the tools they need to fight these terrible diseases, thereby affording these children the dream of life, and happiness. Cancer remains the number one disease killer of children; more than genetic anomalies, cystic fibrosis, and AIDS combined. I vote for my son... Bryce this votes for you. Wear GOLD in September, advocate Awareness year round!
amandachristine
Sep 9, 2009 7:17pm
This is the kind of awareness childhood cancer needs. Just last month my little sister, Alexa, died from brain cancer. She was 11 years old. I will not stand back and watch thousands of other children die. We must do something! And the time to do it is now! Funding for research is not there. We must stand up to childhood cancer. Please help us because we need you. The kids battling this terrible disease need you. www.caringbridge.org/visit/alexabrown
debbiedz
Sep 9, 2009 7:36pm
There are way too many children losing their lives to CANCER. AMERICA HAS TO WAKE UP! My family had no idea! Until we were thrown into the world of childhood cancer. My grandson, Nathaniel Emily at 4 years old was diagnosed in Dec 2004 with Embryonal Rhabdomyosarcoma. This cancer took his precious life May 8 2006. Six months after Nathaniel died my nephew, Kevin Warner, at the age of 14 years was diagnosed with epithelioid fibrosarcoma. Cancer took his life 7 months later. And as we have journeyed through this horrid world of cancer we have met many precious children who lost their lives too, Caleb Nehring age 8 years, Parker Scarborough age 3 years, Ashley Roberts age 8 years, and hundreds more who are fighting this disease NOW. And a precious 10 year old girl, Jessica Easley, who just went home today on hospice! Thousands of children are dying daily and it's as if nobody is aware because if they were then SURELY more would be being done to find a CURE! Please, please get the awareness out there. Please help these precious children. Please.
Cheanelle
Sep 9, 2009 7:38pm
I lost my daughter Cheanelle Hempstead to Leukemia back in 2001 at the age of 2. It has been a tradegy for me and my family. Research & Awareness for this nasty disease is a must. To save and help other families from enduring such hearthache :(
debbiedz
Sep 9, 2009 7:47pm
There are way too many children losing their lives to CANCER. AMERICA HAS TO WAKE UP! My family had no idea! Until we were thrown into the world of childhood cancer. My grandson, Nathaniel Emily at 4 years old was diagnosed in Dec 2004 with Embryonal Rhabdomyosarcoma. This cancer took his precious life May 8 2006. Six months after Nathaniel died my nephew, Kevin Warner, at the age of 14 years was diagnosed with epithelioid fibrosarcoma. Cancer took his life 7 months later. And as we have journeyed through this horrid world of cancer we have met many precious children who lost their lives too, Caleb Nehring age 8 years, Parker Scarborough age 3 years, Ashley Roberts age 8 years, and hundreds more who are fighting this disease NOW. And a precious 10 year old girl, Jessica Easley, who just went home today on hospice! Thousands of children are dying daily and it's as if nobody is aware because if they were then SURELY more would be being done to find a CURE! Please, please get the awareness out there. Please help these precious children. Please.
CHRIS81
Sep 9, 2009 8:13pm
I lost my son Michael August 20th. 3 weeks ago on September 10th. September 10th is also my birthday. The 11th is Michael's birthday. We need to bring awareness to Childhood cancer. People don't realize how much if it is there really is out there. Did you know the childhood cancer ribbon is gold? There are 50 kids, 49 kids being treated in Greebay alone at this time. I spent 3 years helping my son fight this nasty desease. I will spend the rest of my life trying to get more funding and national attention. I have written the Doctors before. Along with Oprah, Ellen, Bonnie Hunt. No response! Yet there is a pink ribbon on baby products, school, supplies, and everything else I can think of. Please, Please please help save our kids.
shakinquaker
Sep 9, 2009 8:14pm
You have the opportunity to save lives daily. Please help save our children. And help the children who do not even know the word cancer... yet. A simple show could easily spark a national conversation about pediatric cancer. Who knows- likely spur a mother to push a bit for a proper diagnosis and give her child a chance at life. Our children suffer from treatment and disease alike. It is time to find a better way. www.caringbridge.org/visit/eliaswaymire
btangel_lazaro
Sep 9, 2009 8:19pm
Do it for the kids! It's too late for my son but it doesnt have to be for all the others out there! Bring attention and raise awareness to this cause!! Lazaro Lastra ^Forever 11^ 4/6/96 - 3/31/08 www.caringbridge.org/visit/lazaro
carrianne7
Sep 9, 2009 8:51pm
Please consider doing an episode on Childhood Cancer during September, which is Childhood Cancer Awareness Month. This issue is very close to my heart, as this August I celebrated 20 years as a survivor of pelvic Ewing's sarcoma, diagnosed at age 15. It took doctors 9 months to diagnose me, as they considered all possibilities, including bone infections and juvenile arthritis, but weren't looking for a tumor. I celebrate the fact that I am living proof that children do survive cancer and its treatments, but most of the children and teens I befriended at the MSKCC during that time have sadly passed on. Childhood cancer is not only about treating the child in the here and now, but also about LATE EFFECTS OF CANCER TREATMENTS that can appear months to years later and can affect all aspects of life, including mobility, cognition, fertility, and the ability to become insured by health insurers who consider childhood cancer a pre-existing condition. There are also concerns with childhood cancer survivors who have heart issues from Adriamycin, lung issues from Bleomycin, and various other health ailments that stem from being bombarded with toxic substances to eradicate the very tumors that threatened their lives. Most General Practitioners will not have had specific training in childhood cancer and late effects of treatments, and therefore would benefit from more exposure to our health issues, especially from a wide-reaching TV program such as yours. Quite personally, I have had my share of doctors who dismissed my late effects of hemorrhagic cystitis and radiation enteritis, and I have been written up in my medical chart as "patient seems depressed" and "needs to seek psychiatric help" when my physical ailments were very real and definitely related to the 8 chemo drugs and massive pelvic radiation I received as a developing teenage girl. It wasn't until about 15 years after my treatment and lots of self-advocacy and research on my own that I found a specialist who came to MSKCC, an expert in late effects who has helped many childhood cancer survivors to live and thrive, rather than just "get by." It is imperative that doctors learn about late effects of childhood cancer treatments, and a show on these issues during Childhood Cancer Awareness Month would be very beneficial to viewers, especially parents who may have children come to them with unexplained pain, as I had gone to my parents at age 14. Thank you for your attention. — a 20-year Ewing's sarcoma survivor from Queens, NYC
carrianne7
Sep 9, 2009 8:52pm
Please consider doing an episode on Childhood Cancer during September, which is Childhood Cancer Awareness Month. This issue is very close to my heart, as this August I celebrated 20 years as a survivor of pelvic Ewing's sarcoma, diagnosed at age 15. It took doctors 9 months to diagnose me, as they considered all possibilities, including bone infections and juvenile arthritis, but weren't looking for a tumor. I celebrate the fact that I am living proof that children do survive cancer and its treatments, but most of the children and teens I befriended at the MSKCC during that time have sadly passed on. Childhood cancer is not only about treating the child in the here and now, but also about LATE EFFECTS OF CANCER TREATMENTS that can appear months to years later and can affect all aspects of life, including mobility, cognition, fertility, and the ability to become insured by health insurers who consider childhood cancer a pre-existing condition. There are also concerns with childhood cancer survivors who have heart issues from Adriamycin, lung issues from Bleomycin, and various other health ailments that stem from being bombarded with toxic substances to eradicate the very tumors that threatened their lives. Most General Practitioners will not have had specific training in childhood cancer and late effects of treatments, and therefore would benefit from more exposure to our health issues, especially from a wide-reaching TV program such as yours. Quite personally, I have had my share of doctors who dismissed my late effects of hemorrhagic cystitis and radiation enteritis, and I have been written up in my medical chart as "patient seems depressed" and "needs to seek psychiatric help" when my physical ailments were very real and definitely related to the 8 chemo drugs and massive pelvic radiation I received as a developing teenage girl. It wasn't until about 15 years after my treatment and lots of self-advocacy and research on my own that I found a specialist who came to MSKCC, an expert in late effects who has helped many childhood cancer survivors to live and thrive, rather than just "get by." It is imperative that doctors learn about late effects of childhood cancer treatments, and a show on these issues during Childhood Cancer Awareness Month would be very beneficial to viewers, especially parents who may have children come to them with unexplained pain, as I had gone to my parents at age 14. Thank you for your attention. — a 20-year Ewing's sarcoma survivor from Queens, NYC
ajsdad
Sep 9, 2009 11:40pm
Here's another link you might check out....I still think it's the largest collection of childhood cancer stories ever collected in one place.... http://www.thepetitionsite.com/1/CureChildhoodCancer AJs Dad
sborst
Sep 10, 2009 3:23am
My 18 year daughter, Amanda, lost her battle to Ewings Sarcoma on June 7th of this year. She should have been going to college to get her degree to teach and instead she was making her life decision to stop treatment and start hospice. These kids are our future presidents, police officers, teachers and medical professionals. They deserve more. Without them there is no future.
cbcarter
Sep 10, 2009 5:01am
My name is Colleen and my son Cole was diagnosed with ALL-leukemia when he was 5. He completed his 3 1/2 year treatment protocol in December of 2008. We re so grateful to all of the advances in medicine that is now curing almost 80% of children diagonosed with cancer. Now that 80% of these kids are living we now have a new set of issues. There are long term side effects from all of the chemo and radiation. These kids have missed so much school that academics fall way behind. Because they struggle with their academic, their self esteem is low, friends are not so understanding....etc. I am SO incredibly excited that my son is considered a survivor, but now we are playing emotional and academic catch-up. Also, did you know that 85% of marriages end up in divorce when their child has a debilitating disease? My husband and I are together and happy, but so many other couples in similar situations do not stay married. There are so many issues to be discussed related to childhood cancer, it could easily fill up an hour show. Great organizations that support children with cancer and their families...some include... Cure Childhood Cancer Hatch's House of Hope Make a Wish Foundation Lighthouse Family Retreat Camp Sunshine
eandchris
Sep 10, 2009 5:09am
I would like to echo the comments of so many others. Please do a show on pediatric cancer. If we can raise awareness, we can raise funds for research, which will lead to a cure for our kids. My 6 year old daughter is an ALL survivor. She finished her 2.5 year treatment this past February. I am grateful for her life, but fear relapse and worry about late effects from her harsh treatment daily. We "cancer parents" are a passionate group of people who won't give up on our kids or the hope for a cure.
jaldrich
Sep 10, 2009 5:33am
This would be an excellent medium to get awareness out. Please vote. Thanks... Jennifer, A parent who lost her child to cancer on March 24, 2009.
ortegmar
Sep 10, 2009 5:36am
there needs to be more awareness about our kids that they are battling and now is many of them against some disease that could not be cured. Please visit the website icouldbeyourchild.org and notice how many children have passed because there has not been any awareness brought to the world to start raising funds to help all the kids and find a cure for cancer. Everything I see that has really caught more attention of the people is the breast cancer awareness ribbon is everywhere even in the Bank of America. We need to make our voices be heard around the world and raise funds to find cause and stop it as well as the cure. Martha, mother of Laisha http://www.caringbridge.org/visit/laishaallyiahroman
AndrewsSister
Sep 10, 2009 6:03am
On January 27, 2007, my only sibling, my best friend, Andrew (14-years-old), played four soccer games for his elite travel team, FC Delco, winning the Pennsylvania Indoor State Cup. Two days later, January 29, 2007, my parents took Andrew to AI DuPont Hospital for Children here in Wilmington, thinking he had appendicitis. To everyone’s surprise, he was diagnosed with Acute Myelogenous Leukemia and as a result, went into septic shock and cardiac arrest. The doctors told us that he wouldn’t make it through the night and to start saying our “good-byes”. My family and I couldn’t believe it, but we knew Andrew, and we knew he wouldn’t give up without a fight. Sure enough, Andrew made it through the night. Andrew was “in remission” after the first round of chemotherapy, which is unheard of. However, because the chemotherapy wipes out all white blood cells – good and bad – Andrew had no immune system, which allowed infections to set in. Andrew went through multiple procedures, operations, and was even airlifted to Jefferson University Hospital in Philadelphia for emergency brain surgery. Never backing down from a challenge, Andrew gave it his all and made everyone proud. Andrew “rewrote” the medical textbooks. He defied all odds. Andrew and my family lived in AI DuPont Hospital from January 29, 2007 to July 14, 2007, when after 166 “bonus days,” Andrew went to Heaven. www.caringbridge.org/visit/andrewmcdonough Please help us spread awareness so other families don't have to go through what my family, and so many others have been through. Help us spread awareness for all the kids fighting, surviving, and in Heaven. Show people the brave children who've been through the fight. Share stories of the heroes fighting childhood cancer, surviving or in Heaven. Let people see that this really can happen to anyone, at any time. Help us get the word out on the effects of chemotherapy. If the chemo could've only wiped out Andrew's bad, cancerous cells, he could still be here today. I could still have my best friend with me.
bcotton4
Sep 10, 2009 6:17am
I would like to see more awareness out there,I didnt know much about childhood cancer till my 4 yr. came down with D.I.P.G which is a rare brainstem tumor that no Doctor will touch,She lived 6 Weeks after we found the tumor, Please Help these kids....
amd12
Sep 10, 2009 6:20am
WE NEED A CURE!!!!!!!! From PAC2: Childhood Cancer - Incidence and Mortality When we talk about childhood cancer, we are referring to an age group of those under 20 years old. This group represents nearly 30% of the population of the United States. In that group; #1 - Approximately 12,500 children are diagnosed with cancer each year, that's 34 every day the incidence of childhood cancer has INCREASED over the past 20 years. Over the past 20 years, there has been some increase in the incidence of children diagnosed with all forms of invasive cancer, from 11.5 cases per 100,000 children in 1975 to 14.8 per 100,000 children in 2004 1 in 300 boys under the age of 20 will be diagnosed with cancer 1 in 333 girls under the age of 20 will be diagnosed with cancer #2 - Every year approximately 2,500 children are killed by this set of diseases, that's 7 every day Over a five year period, approximately 20% (1 in 5) of the children diagnosed do not survive Over a ten-year period, approximately 25% (1 in 4) of the children diagnosed do not survive #3 - Childhood cancer is the #1 cause of death from disease for our children Every year it kills more than asthma, diabetes, cystic fibrosis, congenital anomalies, and pediatric AIDS combined http://curechildhoodcancer.ning.com/ http://www.thepetitionsite.com/1/CureChildhoodCancer http://curesearch.org/ http://www.caringbridge.org/visit/michaelbrian7
dkillian
Sep 10, 2009 6:42am
Please help us to raise awareness about Childhood Cancer. Many are unaware that a gold ribbon is the symbol for Childhood Cancer nor do they know that September is Childhood Cancer Awareness Month and that September 12th is Childhood Cancer Awareness Day. There is so much support out there for many types of cancers but for some reason little is done or said for kids with cancer. Please help us to change that! Thank you for your consideration!!!!
won2xx
Sep 10, 2009 7:00am
Acknowledging and echoing what others have said, I personally feel a great focus of the show would be enlightenment for the public that cancer does indeed happen in children. It could be an opportunity to educate about symptoms/signs, and above all...believing that inner voice that says "something is not right". All too often, these pediatric cases are dismissed as something far less threatening. If the public were educated, they could be far better advocates for their children and the communities children. Education is a powerful thing and that is what I hope you will feel called to do.
won2xx
Sep 10, 2009 7:05am
Acknowledging and echoing what others have said, I personally feel a great focus of the show would be enlightenment for the public that cancer does indeed happen in children. It could be an opportunity to educate about symptoms/signs, and above all...believing that inner voice that says "something is not right". All too often, these pediatric cases are dismissed as something far less threatening. If the public were educated, they could be far better advocates for their children and the communities children. Education is a powerful thing and that is what I hope you will feel called to do.
jbates77
Sep 10, 2009 7:22am
I feel the pediatric cancer or childhood cancer awareness month could both be combined into the same. I lost my son, spetember 29, 2008 to medulloblastoma-his name is Camden, he was 3years old. I can't begin to tell you how alone you feel when you become a parent of a child with cancer. What I can tell you is that I wake up everyday wondering why not me; why did God feel that Camden needed to be an angel at 3. I don't even know where to begin with healing or forgiveness, but what I can begin to do is figure out how to piece together a life for the child I still have-Jaden 8yrs old. There is no salvation to this misery for a mother and I can only pray that you find it in your hearts to bring awareness to this passionate cause. People need to know how these babies suffer, whether they live or die.
Helen
Sep 10, 2009 8:11am
People need to know that this happens and it happens alot.Whoever said childhood cancer is rare never visited or lived on a packed oncology floor of a pediatric hospital.We lost our 4 1/2 year old daughter to neuroblastoma after she fought hard for over 2 years.We need better research and better funding and we need you to get the word out there!Do the right thing.Maggie's Mommy.
Helen
Sep 10, 2009 8:11am
People need to know that this happens and it happens alot.Whoever said childhood cancer is rare never visited or lived on a packed oncology floor of a pediatric hospital.We lost our 4 1/2 year old daughter to neuroblastoma after she fought hard for over 2 years.We need better research and better funding and we need you to get the word out there!Do the right thing.Maggie's Mommy.
cassiecat
Sep 10, 2009 8:26am
Please do a show on pediatric cancer and how it affects entire families. We lost our son 5 years ago. Our lives will never be the same. We need more awareness. Please help us with that. Children should not be dying from cancer. We need better research and funding. There is NOTHING worse than burying a child, especailly after watching them fight so hard to stay alive.
cassiecat
Sep 10, 2009 8:26am
Please do a show on pediatric cancer and how it affects entire families. We lost our son 5 years ago. Our lives will never be the same. We need more awareness. Please help us with that. Children should not be dying from cancer. We need better research and funding. There is NOTHING worse than burying a child, especailly after watching them fight so hard to stay alive.
okisunflower
Sep 10, 2009 9:46am
am a pediatric oncology nurse at Inova fairfax hospital near washington DC and I agree that this is a very important topic to discuss on the show. We just lost one of our lil angels last night in her fight and I am so amazed to have come across this topic today of all days. Pls consider this topic for your show. Also it is important to discuss that so many of these children and family are victorious in there fight! it's the reason i do what i do, i witness miracles and work with angels both the patients and their familiies as well as the nurses and doctors.
carolleanne
Sep 10, 2009 11:57am
Please do a show to raise awareness on Childhood Cancer! My son was diagnosied jan 29 2009 at only 21/2 yrs old with Rhabdomyosarcoma! Please lets raise awareness and help with funding!!
carolleanne
Sep 10, 2009 11:59am
Support Childhood Cancer! My son 3yrs old is fighting from Rhabdomyosarcoma. Please help raise awareness! www.caringbridge.org/visit/masynliedke
kpoynter
Sep 10, 2009 12:04pm
My daughter, Maddie, was diagnosed with Wilm's Tumor on June 20th. She was healthy untill then, everything normal. Her cancer has devastated our lives and the lives of our community. It is not fair that a 2 year old girl should have to endure 30+ chemotherapy treatments, weeks of radiation, and surgeries. I hate what has happened to my daughter...but at the same time, am learning so much from her. She is amazing, strong, and brave. Our entire community has rallied around us...friends near and far. It has renewed my faith in people and shown me a light of hope that I have never known. Unfortunately, it has also shown me how small a priority the topic of childhood cancer is to the powers that be. Shameful. Help us conquer Kids' Cancer - awareness is the key! Kelly Poynter Mother of Maddie, courageously fighting cancer since June 20, 2009 www.caringbridge.org/visit/madelinefinleypoynter
taykay
Sep 10, 2009 3:15pm
I lost my 10 year old daughter Taylor Baum November 13th 2 years ago to aml leukemia, we need to bring attention to this issue, I have watched so many families suffer, be told no more options, take your kid home and enjoy quality of life, its ot fair, we need more light on this subject. On this journey that has been pure hell. www.caringbridge.org/visit/taylorbaum
Vasantishura
Sep 10, 2009 4:32pm
The carepages and caring bridge websites of children battling cancer was the beginning of my journey to know incredible families, stories of children braver than the bravest, each surpassing the other in their fight, each one so unique and special. These kids and their families are the true stars who teach us so much, inspire and humble us, not the celebrities on whom our modern society is hung up on. These are the kids who are sent on battle fields without enough ammunition, because we still know very little of this beast cancer. Why it strikes our kids (bad luck we were told)? Why they recur or relapse? What is the optimum level of chemo needed to prevent secondary cancers or relapses? Why can we not treat only the bad cells and protect the healthy cells in their growing bodies? Why can we not have vaccines to prevent it? We have come a long way, but as long as there are angels we still have miles to go. We have to reach the goal of 100% cure, not resting on our laurels of 80-90% success rate. Because when its your child, these statistics do not matter. I remember when my 5 yr old son was first diagonised at age 4, his oncologist said to me, "Cancer is the worst thing to have, but Wilms tumor is the best of the worst. It has a 90% cure rate. When he recurred in treatment he was termed "salvageable". We have been relentlessly fighting this battle over 15 months without a break. Hurtled from the frying pan to the fire. When a child falls ill for a few days parents agonise . Can you imagine the plight of the cancer families where the diagonises is the beginning of a new life, if any, and we have to live through the fight for years, and if our child manages to survive then its a lifetime toll of battling the late effects of the treatment. There is no end to it. So, Enough is Enough. What troubles me most is the lack of public awareness on childhood cancer. Over a year ago I did not know of the childhood cancer world, till I got hurtled into it. Also, people in the outside world, are afraid to know about it. Cancer strikes fear into everybody's hearts. One finds comfort in being blissfully unaware of it. It is scary, I agree. It robs a child of their childhood. Agreed, given an option none of us would want to have anything to do with it. Though, now we have no choice but, follow the road we have been destined to. The battle of cancer is fought by the little kids physically, emotionally and mentally along with their families - parents, siblings. It is worse than a nightmare. A beast that terrorises you not for hours or days, but years and years to come. Ask any parent of a child with cancer, as to what happens to them even when the child is off treatment and there comes the date for scans. They are mental wrecks. Scans are like days of deliverance. It is unbelievably nerve-racking. Nobody can imagine what our kids and we as their families go through except for those in our shoes. It is sad, because we are tied by the chord of cancer that has affected our children. We are tied by a symbiotic chord. Troubled times bring people together. These families are our soul brothers and sisters. We cry for every child's pain and rejoice with every NED scan, as though it is our own. We have to do everything possible as humans to help make the lives of these warriors who are fighting and the angels who have succumed for lack of enough knowledge and treatment options, worth it. We need to spread the word, Save these Children and Conquer Childhood Cancer. Let us begin by lighting the lamp through the media and spreading its brightness far and wide. The light of knowledge and awareness lit should dim the fear and ignorance of childhood cancer and raise funds for research. The Pen is mightier than the Sword. Let's unleash it. A picture is worth more than a thousand words. Let's wield it. There's nothing that can't be done if we raise our voice as one. Let us then use our power of unity. The souls of humanity have to be stirred to give our kids fighting so bravely for their lives a chance to live, to see the world and to pursue their dreams. Let there be only stories of triumph and courage against all odds, happy endings and not lost lives. So help us in our mission, of spreading the word, saving a child and conquering cancer by creating huge awareness on childhood cancer amongst your readers and viewing audience, publishing stories of these little heroes in your esteemed show. Do all you can, as Doctors and Producers, in the coming month of September for the Event: Media Mania - September 2009 - National Childhood Cancer Awareness Month, "5 min to help save years and years of life...." Thank you, Regards, VASANTI S. mother to Rohin, 5 yrs old. Wilms tumor, St IV(07/11/2008); Recurrence 02/11/2009.
lattelandlady
Sep 10, 2009 4:44pm
Please do a segment on childhood cancer. It would shed light on this all too important topic, raising awareness and hopefully money specifically donated to childhood cancer research. Please also include how it affects the entire family, siblings included. My brother David was diagnosed with medulloblastoma at the age of 5. Through 3 1/2 years of brain surgeries, radiation and chemotherapy, he finally lost his fight at the tender age of 8. On his grave marker, we had inscribed "God needs little angels too." While God does need little angels, there has GOT to be something that can be done about this human tragedy. Maybe if more people were made aware by your show, it would get the attention it deserves.
kimlloyd4
Sep 10, 2009 5:04pm
I think a show on Pediatric cancer would be sooooooo needed!..As a mom of a 6 year old cancer patient ( he was diagnosed the day after Christmas 2009) I KNOW the pain and suffering theses kids endure...my son is lucky, he is responding well to chemo and seems that he will make a full recovery...but it has been hard and he has endured so much... Parents need to have more info to save these kids...it strikes at anytime...any age..any class...any race,...theses kids are warriors!!!!
russellcc
Sep 10, 2009 5:32pm
Please do a show on Childhood Cancer. One of the major issues is that few people know just how big of a problem it is. Please tell their stories and speak for these innocent children fighting for their lives.
annie b3433
Sep 10, 2009 5:41pm
PLEASE DO A SHOW ON CHILDHOOD CANCER Our 12 year son Sammy was diagnosed with Acute Myelomonocytic Leukemia (AML ) in June 2009. As you may, or may not know, this is primarily an adult cancer and is treated with very intensive chemotherap. Sammy will be spending roughly 6 months in the hospital for his treatment. Pretty scary treatment plan for a healthy baseball player who had just a stuffy nose eh? Yes, a stuffy nose. Imagine being told your child had leukemia when you thought you were only dealing with a summer cold. No fever, no aches, and no pains.Just CANCER!! Sammy is the third child in 3 years from his elementary school that has been diagnosed with cancer. What is going on here??? Red flag or what?? Did you know that over 10,700 children a year are diagnosed with cancer. As everyone goes back to school, consider this: Every school day, 2 classrooms full of students will be told that they have cancer. Yes, every school day We need to do more for the children, they are our future. More must to be done to educate, and more research funding needs to be available. Let's bring this deadly disease to the forefront and hit it head on. It's just as important as other cancers. Let's make everyone more AWARE!!!!!!!
sypert4
Sep 10, 2009 5:49pm
My son has Leukemia, a form of childhood cancer. There needs to be more attention brought to this horrible diesease. He gets treatments at Akron Childrens Hospital in Akron Ohio. I highly recomment that you contact his doctor there for your show. Dr. Jeffrey Hord, Oncologist. He saved my son's life and countless other your children. Please consider this as one of you topics.
tinlizzy
Sep 10, 2009 6:06pm
Childhood Cancer is a topic no one discusses. That needs to change. My son had been to the doctor numerous times for what seemed to be small problems that wouldn't go away. Until one day he fell and didn't stop complaining that his stomach hurt. He was also vomiting and we thought he had a virus. Eventuallly the pain was so much and he was passing out. Finally the doctor told me to take him for an x-ray. His tumor was bleeding in his stomach and he was bleeding to death. He had emergency surgery and recieved a lot of blood. He had been to the doctor the week before, but it was never suspected that he could have cancer. He did have cancer, a HUGE tumor, but we had NO IDEA. Not even a clue. The doctor had NO CLUE because childhood cancer is not talked about or discussed. People need to made aware of this. IT IS A GROWING PROBLEM. Please help this problem of lack of awareness. Please. You will definitely be SAVING LITTLE ONES LIVES. He was only a cute little two year old.
mariafilorimo
Sep 10, 2009 6:10pm
I would really like to see someone step up and bring awareness to childhood cancer.My facebook page is covered in the gold support ribbons as our profile pics..My very healthy active 13 softball world series champ daughter got sick long story short had to have her kidney removed at Vanderbilts Childrens Hospital she was diagnosed with a RARE case of RENAL CELL CARCINOMA..she had to tumors the size of 2 softballs one attached to her right kidney and the other attached to her liver.It has never been before seen in a child ..only found in 50yr olds..She will need scans every 2 months..still has cells in her,,but she is our miracle and we are living in her moment of being CANCER FREE!! Her story is at caringbridge.org/visit/taytayfilorimo
vickicotton
Sep 10, 2009 6:22pm
September is pediatric cancer awareness month! When I tell people that, they sort of look the other direction. There is nothing about it on TV.... No one is talking about it....You dont see "gold" ribbons anywhere..... This cause needs your help! Help bring this cause to the people! Do a show in honor of our cancer angels, and the ones that are still in the battle for their lives.! HELP SPREAD AWARENESS! AND TRY TO DO IT THIS MONTH! Our goal is for the gold awareness ribbon to be as recognized as the pink one. More awareness, more money! More money, more research! More research, more treatments will be available. And without research, there will NEVER be cure. Some childhood cancer treatments are exactly the same as they were 30 years ago (diffuse intrinsic pontine glioma). This is the cancer that my 4 year old grand daughter was diagnosed with.... 36 days later, she died! PLEASE, THE KIDS NEED YOUR HELP! Thanking you in advance for your time, and for the show! Sincerely! Vicki Cotton
gibs38
Sep 10, 2009 6:34pm
PLease raise awareness for chidlhood cancer! The community in which I grew up in is now involved in a Cancer Cluster(Clyde Cancer CLuster) study to try to figure out why there are more than 20 children diagnosed with cancer. It seems that everyweek I hear of an other child in this region being diagnosed with cancer or read an obiturary about a child losing their fight here on earth due to this awful disease. Our neighbors 3 year old daughter is battling cancer right now and has been since she was 18 months old. What causes this at such a young age? I love our northern Ohio communities and the children growing up in this area should be worrying about being kids and making memories growing up not worrying about who will be next to be diagnosed with Cancer. PLease, this is National Childhood Cancer Awareness Month and people need to know just how many more kids are being diagnosed and how it affects them and their families. we need more money rasied to help find a cure! Thank you!
lydialimei
Sep 10, 2009 8:00pm
In August, 2008 Lydia Miyashita, my 5 year old daughter, adopted from China, was diagnosed with Acute Myeloid Leukemia (“AML”). After 4 rounds of chemo and a world-wide search which located her birthparents and siblings in China for a bone marrow transplant, Lydia succumbed to the disease on the banks of the Peace River in Punta Gorda, FL. As Lydia was dying, beautiful cranes came and fed along the banks of the Peace River just outside her window. It reminded me of the story of Sadako, a Japanese girl who developed AML after the Hiroshima bombing in 1945. According to Japanese legend, if a person folds 1000 paper cranes, the person’s wish will come true. Sadako died before finishing the cranes, but her friends completed the task, and Sadako later became a symbol of peace when the Japanese government built a statute of her in 1958 in Hiroshima’s Peace Park. When I blogged about the cranes on Lydia’s caringbridge site, classmates and friends from St. Mary’s School in Wooster, Ohio as well as Lydia’s grandparent’s neighbors, began folding 1000 paper cranes so that Lydia’s legacy, like that of Sadako’s, would live on forever as a symbol of HOPE for a cure for pediatric cancer. To raise cancer awareness and to spotlight attention on the lack of funding for pediatric cancer research into causes of cancer and treatments for the disease, I have asked 1,000 schools, churches and/or organizations to volunteer to fold 1000 paper cranes and to send those 1,000,000 cranes to Washington DC to make Congress sit up and take notice of our country’s most vulnerable and innocent cancer victims. I would love to see a show spotlighting pediatric cancer awareness so that a cure can be found for this horrible disease in order that children do not have to suffer and die in an age when so many diseases are curable. To read more about Lydia or Lydia’s Hope, check out the following websites: Lydia’s Hope: www.lydiascancerhope.com, a 501(c)(3) foundation benefitting pediatric cancer patients, families and research. Lydia’s Caringbridge site: www.caringbridge.org/visit/lydialimeieikomiyashita, a site devoted to Lydia’s story and her battle with leukemia
stacieritter
Sep 10, 2009 8:01pm
My Identical twins are both cancer survivors. They are facing a lifetime of challenges caused by the very treatment that caved their lives. The rate of childhood cancer is on the rise, yet treatments have changed very little in the past 30 years. And treatments specific to children are almost nonexistent. Apparently they aren't as profitable. SHAME on our country for allowing our children to die or be permenatley disabled from treatments meant for adults. All because there is not enough profit in treating our children. This will continue as long as childhood cancer is kept quiet. I ask you to take the first step, help your collegues who are on the front lines of this war everyday, help raise awareness on your show! Let people see that childhood cancer is not a puffy faced little kid who's hair fell out! It is children being treated with drugs used in Holocost experiments i.e. Mustard gas. Children who become so ill they look like they are from a concentration camp, children who become permenantly disabled, worst of all children that DIE! People need to see the real childhood cancer. Much like the disturbing images that are burned in our brains of starving Ethiopian children, causing us to give up cups of coffee every day to feed them because we are overcome with guilt. That' what we need to do for our children, I want to burn the real images into the brains of our society, forcing them to never forget the suffering of our children.
chameleon_blu
Sep 10, 2009 8:41pm
I would like to see this in the media a lot this month. Hardly anyone knows that September is childhood cancer awareness month. We didn't until a close family friend was diagnosed with cancer at the age of 16. Less than one year later we lost him. My son has chosen to do a awarness campaign in honor of Josh for his eagle project. What we thought would be a simple yet time consuming, project has turned out to be very difficult in many ways. Less than 3% of the money raised for cancer research goes to childhood cancers. Please help bring this out into the public more and help spread the word that September is Childhood Cancer Awareness Month!! Cancer knows no boundaries, it is always devistating, even more so when it is a child that is fighting for his or her life. Please help.
Shauna Martin
Sep 11, 2009 5:34am
I absolutely agree that there should totally be a show about pediatric cancer this month. No offense, but some of the other topics they have on the shows really have to go. And to be honest, I am not the biggest fan of the show. But, I do know that many people do watch it. My daughter was diagnosed with brain cancer a week before her 4th birthday. It wasn't until then, that I became aware of the hundreds of children just in the area who have some kind of cancer and how their families are affected by the horrible disease. People need to know it is out there, ESPECIALLY the pediatric doctor's who many times have no clue themselves. My daughter was diagnosed MONTHS after symptoms where occuring leaving her blind as well. I, to this day, blame that part on the doctor who never scheduled an MRI (unawareness that it could have been cancer!)- how can I not. Awareness is the key to nailing this monster. Let's get it out there and get a show on!
kmfriel
Sep 11, 2009 6:20am
Bald Kids Rock a T-shirt I wear proudly but wish I did not have too. I am a proud supporter of Frankies Fight and I am happy to raise awareness of pediatric cancer and the need for a cure.
cmeyer
Sep 11, 2009 7:51am
How can this country continue to ignore the #1 KILLING DISEASE OF OUR CHILDREN !!!!!!!!! Isn't it time childhood cancer gets the same attention and research funding as adult cancers!!!! As the mother of a Stage IV Neuroblastoma survivor and an advocate of childhood cancer through the Leukemia Research Foundation of DE, my best friend - whose daughter is a high risk ALL survivor and we were best of friends BEFORE either child was dianosed - two Moms have managed to pledge $1 Million dollars to childhood cancer research, why can't our government see that the stats are not going to get better by ignoring them?????? Please bring some national attention to this!!!!!
ladancemomma
Sep 11, 2009 9:47am
My son Jack was diagnosed with leukemia at age 7. On the last day of first grade, instead of going to the class picnic, he had to go for a lumbar puncture and chemo. Childhood cancer research is underfunded. Please bring awareness to this beast and help our kids.
angel2948
Sep 11, 2009 9:51am
More and more families and their children are being attacked by this dreadful disease. There needs to be more said and done to make others aware of this disease that is killing our children and some at such young ages. Since this is National Childhood Cancer Awareness Month, let's make it known worldwide.
facoop
Sep 11, 2009 1:12pm
I agree, I keep up with so many brain tumor inflicted children on care pages. I lost a granddaughter to glioblastoma multiforme 6 yrs. ago, surgery was not an option as this was on the brain stem, radiation gave her 10 months of very good life. Her older sister was diagnosed a few yrs before this with an ependymoma. Surgery went very well, with radiation following, she just celebrated 10 yrs brain cancer free. This is a cause that needs to be reckoned with..
baileygirl
Sep 11, 2009 1:51pm
We really need to find a way to stop all cancer however seeing these precious children fighting such a horrible and devastating disease is not acceptable. My precious baby girl fought cancer for half of her life. She was four when she was diagnosed with the most "curable cancer"...Standard Risk Leukemia which has an 85% cure rate. She was classified as one who "would not relapse" because of how well she responded to her initial therapy. Well almost four years to the day that she was diagnosed...she passed away. She went through 3 years of chemo and a Bone Marrow Transplant before she passed away at the age of 8. Her playmates where the kids at clinic or in the hospital. Cancer steals away their childhood but not their amazing spirits. Please help us raise awareness. Awareness=Change=CURE
skittil
Sep 11, 2009 4:43pm
I think this would be a great topic to discuss since it touches someone big and little lives.
Proud Mommy
Sep 12, 2009 12:12am
I don't know where to begin because honestly, I've written to numerous TV/news stations shows more times than I can count regarding the topic of Childhood Cancer Awareness in the last two and a half years. As you can tell by the other 5,559 votes, we are not alone in this scary reality we call ‘Living with Pediatric Cancer'. Unless you are directly involved somehow, it's almost impossible to put into words the daily struggles, the endless worry, the loss and in some beautiful (and rare) cases the miracles we see on a daily basis. This world became our reality in June of 2007 when our 3 year old daughter was diagnosed with one of the rarest cancers in the world (affecting up to only 20 children per year) called Clear Cell Sarcoma of the Kidney (CCSK). A 9 cm. mass was found on her left kidney, which was removed four days later. She started a rigorous chemotherapy/radiation regimen and finished treatment on New Year’s Day-2008! That is the day our SHPWDLWTMBS proclaimed to the staff at MSKCC in NYC that she ‘FIRED her Cancer Forever!’ Again, I can never fully express the emotions-the pure roller coaster ride that whisks a family affected by PC off of their feet. There are thousand of us-we have banned together on a website called PAC2: http://www.thepetitionsite.com/1/CureChildhoodCancer which was started by an amazing man named Bob who lost his amazing son, AJ, to Cancer. Please help us tell our stories, to get the gold ribbon nationally recognized as the symbol for these heroes’ fight. I know any one of us/all of us would be willing to share our children’s stories. You can read more about our Superhero Princess Warrior Diva Lexi with the Most Beautiful Soul at www.caringbrodge.org/visit/alexareneemoore. There are videos on her link of St. Baldrick’s events and many other milestones we have experienced through her valiant fight. Thank you for your time and consideration. I know for a fact that a show on Pediatric Cancer would open people’s eyes and let the see that ‘reality’ sometimes hits too close to home. GO GOLD!
Kahless
Sep 12, 2009 5:53am
I am 35 year Cancer Survivor. I was diagnosed at 15 w/Osteogenic Sarcoma (Bone Cancer). I was given a 20% chance of living TWO YEARS. My Left was amputated at the time & I endured a reoccurence in the Lung & nearly 3 years of Chemotherapy. I am living proof that there is indeed HOPE. But, we need more awareness. A show dedicated to this subject would be most helpful.
abbybrown84
Sep 12, 2009 5:56am
PLEASE consider this idea!!! My family lost our 11 year old sister/daughter just a month ago to Medulloblastoma brain cancer. 1 IN 330 CHILDREN WILL GET CANCER AS A CHILD!!!!!!!!!!!!!! People are NOT aware UNLESS they have a child or know a child with cancer. CHILDREN ARE THE FUTURE. Please Please Please consider this idea. I am SURE you would have many families that would be willing to be on this show. www.caringbridge.org/visit/alexabrown Abby Brown Clyde, Ohio
kathih9272
Sep 12, 2009 6:41am
I am a mom who has a child with many medical needs. He does not have Cancer, but I have read about many other children who are affected or died of Pediatric Cancer. Dante and Alex are two of the pages I follow, as well as many more. Dante's mom is right that KIDS GET CANCER TOO! I think you should do a show about Pediatric Cancer. Although my son does not have Cancer, I want to help spread awareness of this terrible disease. I have read too many kids who have have suffered through treatment and unfortunately have died. It breaks my heart to see the pictures of these children and then realize that they are no longer here on earth to take anymore pictures of their beautiful face. These children are so brave. and my hero. They always have a smile on their face. If I didn't follow these children's journies, then I would feel like I am missing out on the special lives they have or had. We need to be an advocate for these children's parents since they need to focus on their children with their treatments, etc. All you need is 2 children's battle with this disease and boom, so many will help find a cure for this disease. I hope you will consider doing an episode about Pediatric Cancer. Thank You!!
AngelHugs
Sep 12, 2009 6:45am
Awareness needs to be raised for this beast that steals our youth 's childhood...and lifes. I run a non profit that works with childhood cancer and I pray for the day I am no longer needed. Just this morning upon reading my email....I find another child has gone on before us. My daughter along with too many others has paid the price of little funding and community awareness...please help us raise this to the top of the funding budgets....
AngelHugs
Sep 12, 2009 6:45am
Awareness needs to be raised for this beast that steals our youth 's childhood...and lifes. I run a non profit that works with childhood cancer and I pray for the day I am no longer needed. Just this morning upon reading my email....I find another child has gone on before us. My daughter along with too many others has paid the price of little funding and community awareness...please help us raise this to the top of the funding budgets....
tfaler
Sep 12, 2009 7:04am
My daughter, Khloee, was diagnosed at the age of 23 months old with brain cancer. There needs to be more people being made aware of what does happen to these children. If more people knew about it, there would be more money for research to try and stop this ugly disease. Please help the children. Tara Faler the_falers@yahoo.com
susansadler
Sep 12, 2009 7:42am
This is an absoultely ESSENTIAL topic to discuss. You think it can never happen to you, until it does, and it DID happen to us. We lost our 16 year old son to Medulloblastoma in 2008. We went from living a normal life to learning about brain cancer, surgery, MRI's, and then the horrors of complications, coma, g-tubes, and the frightening reality that our son would probably die. Please consider discussing this important topic on your show!
Justinsmom
Sep 12, 2009 7:50am
My fourteen year old son died July 29, 2009 of a brain tumor. He fought almost two years to live, we tried many clinical trials in an effort to save his life. If more people were aware of childhood cancer maybe there would have been a treatment to save my son. Please promote this issue!!
regalapreciosa
Sep 12, 2009 8:20am
There are many families out there that would be amazed and grateful if you would give time to Childhood Cancer awareness on your show. This is Childhood Cancer Awareness Month, but who really knows? I did not know until I was told my child had cancer, and another Mom at the hospital told me! Some things that would be good to show would be the childrens beautiful faces, their stories, (many are on Caringbridge), what a typical day is like (sorry- none are typical and each holds new suprises). The kids go through so much in treatment and with so much hope that they will survive. Families face diagnosis, surgery, chemo, side effects, bone marrow transplants, radiation, organ failure, regrowth, dressing changes, shots, IVs, NPO times, CTs, MRIs, waiting, the death of their children, disabling of their children, and the need for better research and clear answers to their questions. The general public is not aware that childhood cancer is so prevalent. It is a hard topic to face. The stories of the families and children faced with childhood cancer (many types) are inspiring. Please help the public to understand that it does exist and that they can help in many ways like, bringing a meal, mowing a lawn, bringing crafts-toys to the hospital. We were in the hospital unexpectedly for surgery on Christmas day, and people had left gifts for us! My daughter was diagnosed with Wilms tumor at such a young age it was scary! Cancer treatment is scary for adults, but when you have to watch your child go through it- it is a whole different story. We do not know what outcome the treatment will have on her growing body. We pray she never relapses and we are thankful the cure rate is hight, but I am not sure what that means because I have known quite a few families to relapse and lose their kids even to this. Her site is http://www.caringbridge.org/visit/babyruthie
beaniecrafter
Sep 12, 2009 8:54am
This is very scary for all parents- Mason Woods, Seth Harris, Zac Mason, Grant Degler, and many other children have lost their lives just since January 2009. I am voting for this in memory of them and many others as well as to hopefully get more research going on the childhood cancers and what is causing them ( immunzations possibly? Plastics used on our foods, etc.) I am a home economist and this really concerns me. I am also a grandmother!
ladybulger
Sep 12, 2009 9:38am
Thanking the good Lord above that I have not lost a child to cancer as some of the parents that have posted on here, but I am a Mother of 3 and my kids are just as vulnerable of receiving that diagnosis as their children and hopefully my voice will be heard! We as a country need to let ALL of our voices be heard, the money is out there and we need to ensure that it is going to allocated to the proper places. I feel it would be so beneficial to air this show especially during Sept. We must end the suffering of these beautiful children and all of those to come.
teambravery
Sep 12, 2009 10:36am
Please consider this as a show. Having stories of Hope and the heart breaking truths of childhood cancer. The Reality of the treatment to a Cure. What happens after treatment is over. The MRI's every 3mo, the after effects of radiation to a 5 year old brain. The gut wrenching choices a parent has to choose for their child. The effects on a family. We choose Life and went with the heavy chemo and rads. Thank God for our friends, community, and church to get us thru the hard day's. We live everyday as if it may be our last and hold on to Hope that our child will live. Even if at a cost. What resources do parents have when faced with this. Bring awareness to the Gold Ribbon...like that of the pink. Help our kids Please! www.caringbridge.org/visit/averygallagher
Mannheimkathy
Sep 12, 2009 11:21am
I suggested this subject on twitter to Jay a while back and am very glad to see this as one of the most popular. I contacted multiple people on twitter to honor her and view the www.caringbridges.org jounal of Alexa Brown. Wendy and Warren Brown went through an incredible journey with their daughter. If you choose this topic for your show, it will be another wonderful way to celebrate her life by making others aware of this horrific disease. Children are so vulnerable in their youth, but unfortunately Alexa will be 11 years old forever in our hearts. Please focus on this topic. Thank you.
jaimejamie
Sep 12, 2009 1:00pm
Please use your show to bring more awareness. As a mother to a 5 yr old with cancer, I believe your show would be a great platform to help us to bring awareness and to possibly, one day, find a cure.
mcafeev
Sep 12, 2009 1:21pm
I have seen the impact one 11 year old young lady's life made on so many people in our community and eventually around the world through her CaringBridge website. To honor her life and the lives of all our "Little Heroes" I ask you to PLEASE choose to do a show on childhood cancer. I proudly wear my ALEXA is my HERO button and gold ribbon today and everyday but it's time everyone learns what a gold ribbon represents.
cajun_57
Sep 12, 2009 1:25pm
September is childhood awareness month. please do a show on childhood cancer, and St. Judes research hospital.
sugarcookies
Sep 12, 2009 1:31pm
Having watched my 13yr old son battle Osteosarcoma, a rare pediatric cancer, I see the incredible need for more funding and how neglected research has been for our children. They need our advocacy for them now!
mspenning
Sep 12, 2009 1:32pm
Childhood Cancer Research is grossly underfunded. Children have little voice in speaking up and as such research dollars do not flow to childhood cancer research. It is true, only 3% of national funding for cancer research goes to childhood cancer research. Clearly we need to evaluate that priority! Our son who suffered with Ewings Sarcoma was receiving the same treatment that was given over 20 years ago! Not acceptable! Thank you for your consideration!
gerardstowell
Sep 12, 2009 1:34pm
You should highlight pediatric cancers regularly. At least as often as child safety issues. Cancer is the second leading cause of death of people under the age of 20 after accidents. It is the leading disease killer of children. 44 children will be diagnosed today with a form cancer. The number of children being diagnosed with cancer is increasing. My son was diagnosed with osteosarcoma in 2006 at the age of 6. Last year L-MTP-PE was given Compassionate Use permission from the FDA. It is the first chemotherapy drug for osteosarcoma tro make it this far in 20 years. I would be happy to speak with anyone at your organization about childhood cancer.
crazy4acure
Sep 12, 2009 1:38pm
My son Kenny has been fighting Osteosarcoma for three years We really need more research into this disease and there is a great need for better treatments and a cure. It can start as young as five years of age. No child should have to deal with cancer. Please make this a top priority for one of your shows this season. September is National Childhood Cancer Awareness Month. Thank You -Teresa
brianernstmom
Sep 12, 2009 1:59pm
This month (September) is only the 2nd year of "National Childhood Cancer Awareness Month". Cancer, in any form, deserves attention, but being the parent of a teenager with cancer, his and our lives will never be the same. Other cancers get their time in the spotlight to bring awareness, and I think it's time to address childhood cancers so that more resources can be made available for these children and their families. No parent ever wants to hear the word cancer in the same sentence with their childs name, yet I know all too well what a nightmare that is. More Doctors need the be aware that cancer should not be the last thing you look for in a child just because they think that's the last thing it would be. The particular cancer my son has, Ewings Sarcoma, is very rare and most of the time the way it's found is after some type of injury. Also, unfortunately, lots of the time because it takes so long to get a proper diagnosis, the disease has matastisized and in later stages, making it almost impossible to treat successfully. Any thing to get more awareness for these children and unfortunately the ones that will be affected should be done.
donnaj65
Sep 12, 2009 2:24pm
This is an issue we REALLY need to get out there and make people understand....next month we will see pink ribbons and breast cancer awareness EVERYWHERE - WHICH IS WONDERFUL - we just need to do the same for Childhood Cancer Awareness month which is September....right now.....I haven't seen many yellow/gold ribbons or the advertisements....my 19 year old daughter was diagnosed with Osteosarcoma 3 years ago and lost the right side of her pelvis and right leg in 2007...I am writing to you from Children's Hospital in Pittsburgh as she recovers from her third thoracotomy.....we are looking for the perfect trial medicine to start her on as she as she is able....SOMETHING needs to change....we need better choices than these kids have now....please HELP spread the word....I would love to see an audience all wearing shirts with yellow ribbons....we would be happy to be two of them if you do!
jjarn
Sep 12, 2009 2:35pm
More attention needs to be focused on Childhood Cancer, my son has been fighting osteosarcoma for the past 3 years. Do you know that only one new chemo has been added to those to treat Osteosarcoma in the last 30 years. That is aweful. Also the reason so many children are dying every day of this cancer and yet the world comes to a stand still for the swine flu. Unbelieveable, when whose number can't even compete with the number of kids and young adults fighting for there very lifes.
jpweir3
Sep 12, 2009 3:26pm
Please, please highlight childhood cancer. Everyone sees nothing but pink during the month of October, but so few have any idea that September is Childhood Cancer Awareness month, symbolized by the ribbon of gold. I recently attended the funeral of an 8-year old who lost his 4 year battle with neuroblastoma. It is heartbreaking, devastating, and so incredibly unfair to these young people. My son, diagnosed at age 5, is a 5-year survivor of Ewing's Sarcoma. We are so fortunate that he is still here, but he has paid the price for his survival. He has partial, permanent hearing loss, scoliosis, chronic pain, leg length discrepancy and cardiomyopathy -- all caused by the cancer treatment. In fact, after a year of inpatient chemotherapy and major surgery, he could face a heart transplant, because of the cardiomyopathy. MUCH more attention needs to be brought to childhood cancer. MUCH more research must be funded ... not only to cure these kids, but to allow the survivors to lead normal lives without the devastating 'late effects" they face. Let the chiildren's voices be heard!
cinjnaylor
Sep 12, 2009 3:29pm
46 kids each and every school day get diagnosed with a deadly Childhood Cancer. There are no known causes. NO known Cures. Not enough ADEQUATE FUNDING for the children fighting for their lives everyday. We must bring awareness to the public and our legislators as soon as possible.
carajudith
Sep 12, 2009 3:41pm
Please bring awareness to childhood cancer. Pin on the Gold ribbon. We are losing our treasures and our futures.
momofadam
Sep 12, 2009 3:55pm
I lost my son, Adam, almost 5 years ago. He was only 4. I lost him to a monster called Rhabdomyosarcoma. I was so shocked to learn of the lack of research into Pediatric cancer. People believe that giving money to ACS and doing the Relay for Life, etc. helps the children, but what they don't understand is that less than 1% of all the research funds raised goes to pediatric cancer research, and that funding goes to the more "popular" cancers. The orphan cancers receive barely any funding. The pharmaceutical companies will "flat out" tell you that it is not a "big market" item for them to invest their money into pediatric cancer research. September is National Childhood Cancer Awareness Month, and we never even hear about it. September 13th is National Childhood Cancer Awareness Day. September 13th is also my son's birthday. Instead of being at a birthday party, we will be at a cemetery, once again shedding tears over the loss of our son. I have started a foundation in Adam's honor to raise awareness for pediatric cancer research, but I can not do it alone. I (we) can use all the help we can. Please address this as an important topic on your show. The world needs to know that children are dying, right here, right now. Thank you for your consideration. Thanks you, Nancy McGugin, Adam's Mommy - FOREVER!!
kathye
Sep 12, 2009 5:30pm
Please bring awareness of childhood cancer. There are children all over the world suffering from this disease. The St.Baldricks foundation is dedicated to all forms of childhood cancer. My grandson has leukemia, he is doing great, but will be in treatment for 2 more years. He was diagnosed at age 3. Another granson, Aaron who is 9 had his head shaved at a St.Baldricks event to raise money for the foundation. He was the top fundraiser raising over 3000.00. Check out the site and read some of the stories. www.stbaldricks.org/ Thank you, Kathy E
bellafesta1
Sep 12, 2009 5:35pm
Well, it has been a while since I got all “mushy” and introspective, so look out ... today is an awesome day! I visited our really good friend Noah the other day in the hospital. He has been fighting really hard as of late against “the Beast” and since Bryce was tied up in the MRI scan room, I wanted to take the opportunity to stop by and wish him love. Although he was tired and full of pain meds, he seemed to recognize me and I was so glad that I saw him. To be honest, it was very difficult for me, but who am I to complain. I stepped out of the room and started to cry. Some of my favorite nurses were there to hug me and help stop the tears from engulfing me, but the pain doesn’t stop. As I write this ... days later ... I see Noah’s sweet face in clear view and I pray for him. My sadness stems from so many places, but mostly from a spot of love so deep in my heart that it physically pains me when it is poked at. And believe me, every time I think of one of these brave warriors taking a turn for the worst ... it is a knife to the heart. They are my kids, my sisters and brothers, my friends and my loved ones. You see, my dear friend is only one of a long list of children that I have come to love in this past year and a half. These kids (and their families) are not from my neighborhood, not from my high school or college, not related to people I knew at work, they don’t play with my kids, I don’t see them in local restaurants, nor are they people who grew up or live near friends of mine throughout life. Each individual has one thing in common with me and my family ... something that has forever changed my perspective on this world I live in ... CANCER. None of us has chosen this path, much like you do not choose a cavity, a flat tire or a lighting bolt to crack down the huge oak next to your house that when it falls to the ground takes with it your guest bedroom, half the bathroom, the living room (along with the 72” plasma TV) and your brand new Porche (after you just sent the first payment in the mail). However, I think we can all agree that this last example seems a bit more like hearing the words “your son has cancer”. All of us in the “cancer family” understands one thing above all else ... we need to NOT SWEAT THE SMALL STUFF. As I thought about my fellow comic book loving, movie quoting pal stuck in a room on 3CN making some really huge decisions about the course of his treatment, I am constantly reminded of how unimportant sooooooo many things are that we tend to “covet”. Cell phones and other technological “toys” ... computers ... name brands ... types of cars ... where we last vacationed ... who paid the check ... who said what to whom ... who didn’t return a call we expected ... the size I just went up on my jeans ... the number that makes up my bank balance ... the comment that was sent my way from an angry driver through the window on a highway full of other drivers going to wherever ... the fact that I did NOT get told today how “special” I am. As I think of ALL of my friends who are fighting, have fought (some won and far too many lost), and those who will fight against this “bastard” cancer ... I realize that that we are blessed by every soul we meet. Every brave child warrior who has lost his/her battle has instilled a fire in the heart of their parents and the people who have shared in their journeys. I am reminded of a particular mother who has been an inspiration to Nicole and I throughout our own perilous journey. Even on the day that she lost her baby girl, she spoke of hope and joy and a promise of a better day ahead, and on the days following her baby’s funeral she was a source of inspiration to all the other families fighting against “the beast” ... ours included ... and she continues to fight! And this is just one Mother. There are millions more. Today is a day of remembrance, of the warriors who have lost their lives and those who have yet to live their lives because they are caught up in the fight, and of hope -- and determination -- that we WILL FIND A CURE. I am the proud father of a small MAN. He has lived a life that has been full of drama, sadness, pain, frustration, trauma and less than perfect circumstances, and through it all ... he smiles and perseveres! Our family will forever be changed because of cancer, and for the better. We are wiser, we love more, we are open to more love and kindness and we reject negativity and resentment. I will never see the world the same because of cancer. My life’s goal will always be to find a cure because of cancer. That is our life ... the card we’ve been dealt ... and I am honored to live it! I am a better person because of the precious people I’ve met that I now call friends, because of cancer. You have all helped us to reach a better understanding of love and compassion, just by simply standing at our side throughout this journey. However, I must ask you ... especially today ... to do something more! Send a donation as little as $5 to: CureSearch Attn: CureSearch Walks 4600 East West Highway, Suite 600 Bethesda, MD 20814 We need a cure so that these babies of ours never have to endure any more pain and suffering, and the only way to do this is to get money to push forward the research towards a cure. Please help! Continued love and blessings to all of you! Much love, Michael
BethUSA
Sep 12, 2009 6:36pm
Please do a show on pediatric cancer. We havea family member who has terminal cancer, and while he is not a child, it is frustrating, heartbreaking, and life-changing for all of us. I look at my children and cannot imagine what it would be like for them to go through this. But there are-- lots of them. WAY too many. Even 1 is to many.
lifestooshort
Sep 12, 2009 7:32pm
So many people have made wonderful comments and I share their passion and commitment. Thank you for considering this very worthwhile topic. It's not the sympathy we need. All of us could become better people if we could become more aware of the seriousness of this childhood threat to ALL children. Better yet, many of us want to mobilize to do whatever we can to help end these large number of deaths of children. Thanks so much for considering this topic.
weakestlink52
Sep 12, 2009 8:01pm
PLEASE! I would really like to see more awareness out there. There are so many children dying from many forms of cancer.
jcbaltz
Sep 12, 2009 9:01pm
It is good to see how quickly the parents are mobilized, the internet has connected us. Let's keep this the top voted IDEA....I pray they are hearing us loud and clear! I am Ben's dad, he is my inspiration. http://www.caringbridge.org/visit/benbaltz http://www.teamunite.net Many families---ONE Cause! Cure Childhood Cancer!
jcbaltz
Sep 12, 2009 9:04pm
It is good to see how quickly the parents are mobilized, the internet has connected us. Let's keep this the top voted IDEA....I pray they are hearing us loud and clear! I am Ben's dad, he is my inspiration. http://www.caringbridge.org/visit/benbaltz http://www.teamunite.net Many families---ONE Cause! Cure Childhood Cancer!
MomtoRoro
Sep 12, 2009 9:25pm
What will it take to bring childhood cancer into the forefront of America's consciousness? There are pink ribbons and consumer items absolutely everywhere but NO gold! WHY? Surely it doesn't need to require some celebrity's child being diagnosed with the number one disease killer of children?! My daughter died on April 23rd, my only child, my extraordinary almost 11 year old Rowan. Grieving her loss is as unpredictable and chaotic as a roller coaster ride from hell. I hate it. She was so close to the finish line, for the second time, and we lost her to a common virus 4 weeks after she received a lifesaving bone marrow transplant from a total stranger for relapsed leukemia. I cannot comprehend how or why this happened to her. After all that she'd been through, all that she bore with grace and courage and joy, she died... Shelly, mommy of amazing Rowan Grace
bdwyer
Sep 12, 2009 10:17pm
I was never aware of how many children have cancer until my daughter was diagnosed last year. No child should have to go through the chemo, the side effects, the pain, the uncertainty. Better treatments need to be found. A cure needs to be found. We need more research to find better treatments and the cure. Everyone needs to be aware of what is happening to our children.
kemptonmac
Sep 12, 2009 10:24pm
We just lost another friends child to cancer......and we continue to battle cancer with our 3 year old Noah....funding for cancer research for children is pathetic and if it wasn't for hospitals like St. Judes, where would we be? The government needs to wake up and open their eyes and realize that more funding is needed to find a cure for this horrific disease....I wonder if things might change if someone in a high political offices child was diagnoised and killed by this disease? please do a show on this topic and help americans open thier eyes.
marijeighn
Sep 13, 2009 4:50am
These precious children are the future of our nation. I challenge anyone to listen to what these children go thru on a day to day basis and not join the cause for Childhood Cancer Awareness. We NEED to find cures for these little ones who are fighting this monster
katdyes
Sep 13, 2009 4:59am
Please consider doing a program re: childhood cancers. My 7 year old daughter is fighing the fight now. She was diagnosed in March 2009. She has endured many surgeries, horrible chemotherapy, and is being left with some unpleasant memories. She has also been blessed with a loving, caring community of friends and family. Everyone in the small town where we live, from the hospital where I work to the many business and churches have adopted her and our family. The out pouring of love and friendship has really been amazing. You can follow her story at www.caringbridge.org/visit/unstoppable She has brought so many people together and inspired so much love and support. Thank you for considering this idea. We need the support and cause to grow as large as breast cancer support and research!! We need help getting the word out. Thank You. Elizabeth's mom Kathy
topdem
Sep 13, 2009 7:16am
Dr. Lynn Harter at Ohio University has just completed a documentary, "The Art of the Possible" about children living with cancer. Five children were featured, two of whom passed away before the documentary was complete. Childhood cancer is a horrible disease that we need to focus more attention on. I lost my only child to sarcoma in March after a three year battle. He would have graduated in June.
mgoat
Sep 13, 2009 8:20am
Childhood cancer would be a great subject. Not only is it important for society that we raise awareness and increase research funding, but it's hard to think of any subject with more potential to move people emotionally. Every parent's worst nightmare would be to have to watch, helplessly, while a much beloved and trusting child suffers through pain and harsh, damaging treatments for months or years - and and then dies anyway. There are so many stories of children who have died from cancer - and of childhood cancer survivors - that would touch people's hearts. (p.s. My daughter, 18 years old, was diagnosed with brain cancer at the age of 10. She is now a sophomore at Yale. We feel very, very blessed...
sewnyahh
Sep 13, 2009 4:44pm
I had childhood cancer, a type of bone cancer when I was 14 years old. Funding is seriously inadequate, as is awareness. I am DETERMINED to never let another child go through what I've been through, and I am DETERMINED to find a cure!
kedenburn
Sep 13, 2009 5:12pm
Our eyes were closed to childhood cancer until our daughter was diagnosed with Acute Lymphoblastic Leukemia on November 26, 2007. Now they are wide open and it is devestating to see it all around us. It breaks our hearts. Our daughter is doing great and we are so THANKFUL for all of the support we have received and the many doctors and nurses that continue to care for her. See for yourself at carepages.com LuciKathleen.
kedenburn
Sep 13, 2009 5:12pm
Our eyes were closed to childhood cancer until our daughter was diagnosed with Acute Lymphoblastic Leukemia on November 26, 2007. Now they are wide open and it is devestating to see it all around us. It breaks our hearts. Our daughter is doing great and we are so THANKFUL for all of the support we have received and the many doctors and nurses that continue to care for her. See for yourself at carepages.com LuciKathleen.
lisabmolina
Sep 13, 2009 6:22pm
Please do a show on Childhood Cancer and in particular, the lack of funding for research. See Cure Magazine artilce "No Child Left Behind" in which the statement is made regarding research and development of chilhdood cancer drugs: "Children will never represent a market force." As the mother of a 13 year old son now battling leukemia for the 3rd time in his short life, reading this statement -while my son was receiving chemotherapy treatment in the hospital surrounded by numerous other sick, bald, battling children- made me realize that the public needs to be informed of the realities of childhood cancer and the lack of funding it receives (regardless of the many poster children seen when the large cancer organizations need to raise funds, mostly for adult cancers) I urge you to highlight these amazing warrior/heroes and also the lack of funding they receive from public and private funding. Although cure rates are 78% currently, they have stagnated over the past 20 years, and less than 4 cancer drugs have been developed for children in the past 20 years. Less than 3% of all cancer funding is allocated to pediatic cancers. Childhood cancers are completely different from adult cancers, and are treated differently, and most people are not aware of this. Children also suffer myriad lifelong late effects from the very treatments that saved their lives, which again, most people are not aware of. Please give these children a voice. They have been through so much, and too many have died already, and they deserve to be heard. Lisa Molina - Mom to Thomas, age 13, battling leukemia for over 10 years and still fighting! Austin, TX www.carepages.com/carepages/thomasmolina
gjmolina
Sep 13, 2009 6:31pm
My Son has suffered two relapses with Leukemia. It is amazing how little some people know about childhood cancers. I think this would be a great topic.
amybechelli
Sep 13, 2009 7:22pm
Please make this a priority! We need more awareness and funding! As a mom that just lost my child to cancer, we have to stop this horrble disease and bring it to peoples attention. Breast cancer gets so much funding and acknowledgment, they have everything from shoes, toilet paper and candy to appliances with the pink cancer ribbon, why cant we get this going where our children and the GOLD ribbon is noticed everywhere!!! Im not saying that breast cancer isnt a good cause, BUT KIDS GET CANCER TOO!!!! And they are not getting the awareness they need......read my ANGELS story a www.caringbridge.org/visitlaurenbayonbrown
alanadill
Sep 13, 2009 9:26pm
I am blessed to know SO LITTLE about childhood cancer, but it appears from these comments that it's only a matter of time before it will strike a family I know and love. Parents and pediatricians should know what to look for. Our best doctors and scientists must come up with better treatment that fosters good health instead of nearly killing the patient. Awareness is the first step toward any change.
martylandry
Sep 14, 2009 4:20am
Childhood cancer is a family disease. It will affect each member differently during treatment and afterwards. Our family was very fortunate that our child survived some terrible complications during treatment, for which we are very greatful. However, now we are all dealing with the effects of treatment. Some success has been acheived with the increased the survival rate of childhood cancer, but I am not sure if we understand the effects these treatments have on young, growing bodies. Treatment affects the brain which it is formulating, the nervous system, bones, muscles, etc. When an adult is treated for cancer, these body parts are already formulated and mature. A child has chemicals and radiation introduced into their bodies at toxic levels during critical growth periods. This treatment, while it MAY save a childs life, can be devastating to their future. It does affect their life choices. Children with cancer are not 'small adults', which is how treatment started. Their body make up is different from adults & they should be treated differently. This will only be solved through research. Research will only be increased with increased awareness and increased funding. It does make a difference when it is your child that recieves the diagnosis.
garzaveronica
Sep 14, 2009 6:11am
I work at Roger Maris Cancer Center in Fargo Nd. I have seen enough of our children being taken away from us by these awful cancers! Angel Perez, www.caringbridge.org/visit/angelperez. Morgan Kolling, www.caringbringe.org/visit/morgankolling. Dakota Fossum, www.caringbridge.org/visit/codyfossum. Alexa Brown www.caringbridge.org/visit/alexabrown. I could go on and on! Truth is most parents are not aware of the signs and sypmtoms associated with these cancers! Diagnosis depends of how well parents know their children, and when tot recognize that need further tests than just being told they have a cold or virus! How I hate those words.....we don't know what it is so we will just say it's a virus going around! Please help make parents aware!!!! Thank you!
rishkel3
Sep 14, 2009 6:56am
I am a mom of a child with cancer. Her battle began at seven years old. She is now nine and still fighting. Everyone needs to know that this is a horrendous disease that doesn't get as much attention as it should. For God's Sake's these are our babies. Anyone who allocates the small amount of funding for pediatric cancers should spend a day in the pediatric cancer ward. I am sure some eyes would be opened!!!!
pcollinscolorado
Sep 14, 2009 7:48am
We NEED the gold ribbon of Childhood Cancer Awareness to be as ubiquitous as the pink ribbon has come to be. Your show can help us do that. Please consider a segment this month for awareness month and maybe even consider a series following a childhood cancer patient through several months of their treatment and their outcome. These are compelling stories that will touch your viewers and make them watch for the next update and use their DVR to see your show AND allow your viewers to understand how tragic it is that in a country that treasures children so much, we are letting so many of them down day in and day out.
CHRIS81
Sep 14, 2009 8:21am
My son lost his battle with Ewing's Sarcoma only 3 weeks ago. I don't understand why we have to fight so hard to bring awareness to this underfunded desease that is killing our babies!! Does it only get reconized if you can get Deanna Favre or Michael J FOx on board?!
judymescon
Sep 14, 2009 9:21am
I think that a show highlighting pediatric cancer would be heart wrenching, interesting, widley viewed and it is responsible programing; as much is needed to bring attention to the killer of children. How terrible that about 35 parents will be told today that their child has cancer. And tomorrow, and the day after. This life altering news devastates a child, a family, and a community. My 19 year old daughter is enjoying college after battling cancer almost her entire life. She is active in fund raising and speaking on behalf of this cause. She cannot believe how little money is given to research to save the lives of children. Please do a show to help raise awareness of this problem and how underfunded it is.
LORILOU
Sep 14, 2009 9:41am
As i work in the medical field i see more than i care to of childhood loss to cancer. I believe we need to putforth more effort and more awareness to to this ugly gene.
JackieLoveQuilts
Sep 14, 2009 9:48am
I work with an internet group that makes quilts for children with life-altering illnesses. The vast majority of those kids have cancer. Just because many childhood cancers are considered "rare" doesn't change the fact that those cancers are killing our most precious gift ... our children. More funding MUST go to the research and treatment of these killers. PLEASE do what you can to bring more awareness of the need.
pat28658
Sep 14, 2009 9:48am
It is time you do something to shine more light on these kids going through HELL fighting this disease!! I wish I could take all of what my Son has had to go through, I would in a heartbeat. It's time to stand up for our KIDS!!!! Thank You, pbowman@airt.net
hopin4acure
Sep 14, 2009 10:25am
Not much to say that hasn't already been said in previous comments. My 19 yr old son is back at college after treatment for brain cancer, and while we are elated that he's responded to treatment so well, one of the things we're learning is that children with cancer can suffer multiple side effects of the treatment for years and years to come! Fertility issues, loss of cognitive functioning, vision and/or hearing loss, hormonal functioning... and the list goes on and on. There has to be a better way to treat this! Please shed some light on this subject and help raise awareness so we can spare our children the horrific experience that is childhood cancer.
lisac5412
Sep 14, 2009 11:41am
We really need to promote awareness for childhood cancer, it affects so many children, yet it seems as though no one wants to talk about it because it is too sad. I used to be one of those people, until my son was diagnosed with Wilm's Tumor in 2005. If we can get more awareness, like October being breast cancer awareness month, then maybe we can get more funding for more research. Childhood cancer is more rare than adult cancers, so it is more difficult to get funding because of the statistics. Unlike most adult cancers, childhood cancer is not related to lifestyle; these children don't do anything to cause their disease. Please help us raise awareness!! Before another child has to die from this "Beast".
pesupe
Sep 14, 2009 11:53am
I hope they produce this. So many people are clueless when it comes to childhood cancer. I lost my son nearly 2 yrs ago to acute lymphoblastic leukemia. I have been wearing a gold ribbon every day this month and I had one lady ask me what it stood for. As soon as I said childhood cancer she walked away. Was she shocked? I don't know but we need to make the public aware. They need to find a cure. Children should not be dying!!
iansmommy
Sep 14, 2009 2:49pm
The numbers are shocking. Everyday approximately 2 classrooms full of elementary school children are diagnosed with cancer. In 2005 my then 3 1/2 yr old son was one of those. He was diagnosed with a rare form called a Wilms Tumor. He successfully completed chemotherapy and radiation. Today he is a happy, cancer free, 7 yr old. I was one of those parents that thought "It will never happen to me." Boy was I wrong! Cancer can strike any child, in ANY family! We must raise awareness!
CarolSpaulding
Sep 14, 2009 4:53pm
I would like to see more awareness especially during September, but any month will do. 46 children each day are diagnosed with cancer. That's 2 classrooms of children each day. 12,500 will die from cancer each year. More funding should be made for childhood cancer research. The families of these children feel like they need to raise the money and awareness. Gold ribbons should become as popular as pink. These are children whose lives are cut way too short or suffer long term effects from treatmemt. Thank you.
mgardiner
Sep 14, 2009 7:01pm
My daughter was diagnosed with a rare brain tumour 18 months ago. There is very little to no information on her tumour as it usually appears in the ovaries or prostate it appears in the brain .01% of the time. With no inforamtion on this tumour it was very hard to treat and was a guessing game for the doctors on which meds would help. With more research I would think these problems could be lowered. My daughter is one of the lucky ones that survived her battle with cancer and has minamal side effects from it but we know many we were not so lucky.
Jlbrown6
Sep 14, 2009 7:30pm
One in 300 children will have cancer. This cause needs more awareness and research.
donnacriner
Sep 14, 2009 7:36pm
This past weekend I participated in the Curesearch Milestones Walk to Conquer Kids Cancer. Over 600 people attended, more than 180K was raised yet one network reported for about 15 seconds on the 10 o'clock news. Unless people have lived this nightmare, they just don't get it, nor do they seem to care. Cancer is the #1 killer of our children by disease. A child dies every 3 1/2 hours. Please help us spread the word. No one ever thinks it will happen to them.. Most of us will bury a parent, some of them too soon from cancer. Some of us will bury a sibling, some of them also too soon from cancer. Some of us will bury our spouse. NO ONE SHOULD HAVE TO BURY THEIR CHILD. Please help us raise awareness. In July 2008, President Bush signed the Carolyn Pryce Walker Conquer Childhood Cancer Act for 30 million dollars a year for 5 years. No money has been allocated.
mpocgn
Sep 14, 2009 7:49pm
I have a child with cancer. I have seen firsthand the devastation that cancer brings. My once active son was rendered motionless - totally unable to move voluntarily. He did not speak for 15 months. 3 years later we still do not know if he will ever be able to ride a bike or walk independently. We are dealing with hearing loss, growth hormones and thyroid issues. The most devestation has been cognitively. He has to work twice as hard as the other kids in his class to learn. Even now, in fifth grade, he has been unable to learn to read due to short term memory loss. We must find a cure!
mcwinter
Sep 14, 2009 8:04pm
Too many children are being diagnosed with cancer. Too many do not survive. More needs to be done to find a cure. More funding must be made available.
trazee
Sep 14, 2009 8:09pm
Alexa Brown from our community has recently earned her angel wings. Her family has shared their struggles with the community through the Caring Bridge website and in doing so has made this horrible disease a reality to so many people. Many of us think that while it is a terrible thing, it won't happen to them but when we read their personal journal about Alexa and her fight, it makes this a reality and we realize that this could be my daughter, or yours. Childhood cancer (and all cancers) are a horrible disease and we MUST be warriors together and eradicate it! So many of our innocent children are becoming angels too soon. Please help!!!
tmfarell
Sep 14, 2009 8:14pm
Please do a show, a week of shows, on pediatric cancer. It is so prevelent yet receives so little attention and even less funding. Here in Ohio, the city of Clyde has an EPA confirmed children's "cancer cluster". The number of cases is high and we just lost another child on august 6th,2009, Alexa Brown. Alexa was 11yrs old and there are more chiildren still fighting this terrible disease. Please go to Alexa's site : http://www.caringbridge.org/visit/alexabrown for a first hand look at the journey of this wonderful child. Thank you.
Mannheimkathy
Sep 14, 2009 9:05pm
http://www.caringbridge.org/visit/alexabrown She got her wingss as an angel at the age of 11 and passed 6 Aug 09. She was loved by her family and was known in Ohio as the "littlest reporter". Now it's time to report on her journey to make America aware a child can be normal and then in a short period of time be lost. Now it's time to nationally spotlight and celebrate her short life and her surviving family who were with her 100% all the eway. Her uncle even was the presiding Reverand at her memorial service.
gayllynn
Sep 14, 2009 10:25pm
This subject MUST be brought out to the public in anyway possible. These children are suffering beyond most peoples imagination. Unless you have been involved with or had a child have cancer people do not realize, as I did not, what these children and families go through. Bless these children. Gayl Indiana
debido13
Sep 15, 2009 3:56am
I would like more people to be made aware of the childhood cancer cluster in Clyde, OH. Our best friends ended up with 2 children with cancer and a classmate of our 10yr son died just a couple of months ago from this awful disease. We need to raise awareness about it and get the government to do something about it!
cateyes1013
Sep 15, 2009 4:23am
I feel people need to be aware other then the ones going thru this because there was a family in clyde ohio who lost there daughter Alexa about a month ago very sad she battled cancer for awhile and we all miss her she had impacted so many people that it was amazing. We also haso have what you call a Clyde Cancer Cluster going on a hole bunch of kids with cancer and no one can tell anyone y so please we need MORE ATTENTION TO THE CHILDHOOD CANCER AWARENESS MONTH
bluekitty90
Sep 15, 2009 5:07am
Please do a show on childhood cancer awareness... there are way to many children out there fighting this disease and too many families stricken with the loss of losing a child. We need more funding to find a cure for childhood cancer, we need to fight as hard as these children do to live, no child should endure this pain and unless it has affected you personally you justy don't understand. I have no children but belong to a volunteer group who work really hard at encouraging our friends with prayers, cards, etc. We have lost too many friends and children to brain tumor cancer - we went on a journey with a brave, courageous and forever 11 year old girl who just lost her battle to childhood cancer, we need to fight as hard and even harderso that children can be "children" again without worry, without MRI's, needles, hospitals, doctors, nurses, operations, medicines, etc. Let them play, romp around, learn, grow and just be kids. Please this is a subject that NEEDS to be out there, we need to discuss this and we need to make families aware they are not alone and we can and will fight for a cure.
zimboindy
Sep 15, 2009 5:10am
My son Brendon Knight died October 23rd 2008 of a brain tumor. The Dr's at his hospital are still using the same treatments they were 10 years ago and more children are dying now! Please do a show. Make folks aware of the importance of good healthy nutrition early in ife. Junk food accelerates the growth of cancer and that is what they allow the children to eat in the hospital. Our son survived longer once we took him off the chemo and radiation and anti-biotics, and was healthier than the previous 2 years of treatment, the cancer growth slowed down a lot too. Please see www.caringbridge.org/visit/brendonknight for his story
TheLeibacherCrew
Sep 15, 2009 5:18am
~Cancer SUCKS~ Our babies are being robbed of their precious little lives...HOW CAN THIS SHOW NOT BE ABOUT CHILDHOOD CANCER AWARENESS?!?!?!?
Laura Lee Stenberg
Sep 15, 2009 5:50am
I know of children with cancer, specifically brain cancers, and this would be a wonderful way to increase awareness.
sherribeckley
Sep 15, 2009 6:03am
RIP Alexa Brown & Shilah Donnersbach! We miss you! God Bless!
Lisa Hisey
Sep 15, 2009 6:21am
I've seen the devastation childhood cancer can cause an entire family. My brother has 2 children that have been diagnosed with leukemia within 2 years. Tyler was 12 when she was diagnosed with AML in February 2006. Tanner was 10 when he was diagnosed will T-cell ALL in August 2008. The amount of sadness this disease brings is unimaginable. I watched my brother's face as he received the news Tanner had cancer--it was horrible to know once again, they would have to travel the long and excruciating journey to save his life just as they had done for Tyler. We need to help bring awareness to this so more children don't have to suffer. We are grateful for every day with Tanner and Tyler and want them to have a chance at a terrific life. They are 2 of about 20 children in Clyde, OH that have some form of cancer. Please help bring awareness to this before many more children lose their battle.
warren
Sep 15, 2009 6:29am
As the parent of a recent victim who suffered for 3.5 years under the scourge of brain cancer and all of its debilitating effects, there is nothing more important than drawing attention to this issue.
dasantos
Sep 15, 2009 6:41am
Parents aren't aware that children can get cancer...I wasn't. My son was 1 year and 2 months old when we found out. I NEVER knew children could get cancer... my son died on 6/26/2006. We need to raise more awareness to this so that people can donate to help find a cure.
Lnd43
Sep 15, 2009 7:06am
An excellent resource for more information about childhood cancer go to: http://curesearch.org/ http://acor.org/ Also I like to suggest Jeffrey Dome, MD Children's National Medical Center Division Chief, Oncology Principal Investigator, Children's Research Institute (CRI), Center for Cancer and Immunology Research (CCIR) http://www.childrensnational.org/research/faculty/bios/ccir/Dome_j.aspx I am in total agreement what everyone has been writing here so far. People need to be made aware, our Nation, our leaders need to be made aware. They need to hear the truth about Childhood Cancer. It affects not only the young patient, but the whole family, parents and siblings. Emotional, psycological and financial. A parent often has to travel far from home to get treatment for their child, even relocate to another city out of State to be closer to the Cancer Treatment Center. This is especially the case when the child has a rare form of cancer and the Children's Hospital does not have the experience in treating that particular cancer. The whole family gets uprooted, One parent usually has to give up their job to be able to take care of their sick child full time. This can cause tremendous hardship, especially in a single parent household. It can happen to anyone, at any time, without any or little warning signs. Symptoms are often overlooked or brushed aside as some other common illness by pediatricians because chances are that they never diagnosed a child with cancer. By time a diagnosis is made the cancer has often spread making a cure more difficult or impossible to achieve. Pediatricians need to be educated about what to look for, to be more sensitive and open to the parent of the child and listen instead of brushing the parent's concern aside telling them...oh it's just a 24 hour virus. Parents need to know that it is OK for them to listen to their inner voice when it tells them, "something is wrong here". School officials, teachers, anyone involved in a child's life need to be educated about childhood cancer, during treatment and the years afterwards. They need to know that once treatment is over, it's not OVER. Neurocognitive late effects can include trouble thinking, learning, problem solving, remembering, paying attention, and concentrating, heart problems infertility, secondary cancers are just a few of the Late Effects Children who survived cancer now face. A parent as well as the child with cancer many times suffer from PTSD (Post Traumatic Stress Disorder) during the treatment and long time afterwards. My daughter was a healthy, happy 22 months old toddler, barely ever sick, not even with a common cold. I took her to the doctor for a stomach virus and got the horrible devastating news she has bilateral Wilms tumor, meaning the cancer is in both kidneys. After 15 months of toxic, harsh treatment she is left with one half of a kidney and some of the Late Effects as a result of her treatment. http://www.caringbridge.org/hi/mickenzie_uptowngirl Please be the voice for our children. Thank you ! Awareness > Funding > Research > Cure
johnanderluh
Sep 15, 2009 8:22am
Please combine the totals for Childhood Cancer Awareness Month and Pediatric Cancers. The disparity in funding research for childhood cancers vs. other cancers is shocking. My daughter (15) has been fighting Hodgkins Lymphoma for 13 months now. She's the strongest person I've ever met, but I know that there are thousands others like her, kids fighting for their lives, who would benefit from more advanced, less toxic treatment protocols. Let's do this for the kids! www.caringbridge.org/visit/sheaanderluh
kwitek
Sep 15, 2009 8:48am
Our son had leukemia at 4, relapsed at 6, had a bone marrow transplant. He had 7 cancer free years and then was diagnosed with a PNET brain tumor which was secondary to the radiation he received prior to his transplant. He went to heaven March '09. The kids that battle this disease are heroes and need to be recognized. The staff in our hem/onc dept need to be recognized. We loved going to the hospital. They made it an enjoyable experience.
clk1257
Sep 15, 2009 9:08am
Childhood cancer is devastating to families. The child is usually pretty resilient, taking all the poking and proding, tests, surgeries, and all that comes with this horrible disease. Most people don't even know that cancer is the leading killer of children. They have no idea, and I pray they never have to understand the depths of the pain and suffering these kids go through. We need more awareness in order to increase the funding which will help with research so that they will have a chance. Please help us gain this awareness. This is personal because my 2 y/o great nephew is fighting for his life right now. Neuroblastoma has no cure. Please help!
ldsdeb
Sep 15, 2009 10:04am
My almost 3 year old grandson has lost most of his vision, has a scar that runs across the top of his skull from his left ear to his right ear, and can tell you the name of many of the drugs he's been taking for the past 21 months. He can show you the location of not one, but two ports in his chest...where many of those meds were administered. He can pronounce stethoscope, IV pole, temperature, blood pressure, and many other terms that most 2 year olds have never heard, much less know how to pronounce. All this because he was diagnosed with Stage IV Neuroblastoma when he was 11 months old. You never pick up your grandchild and expect to be hearing that his little body is COVERED inside with tumors and lesions on every bone surface. You never expect to LIVE at the hospital for weeks, and weeks, and weeks...surgery after surgery, chemo treatment after chemo treatment. You don't ever think you'll have to shave his head so that mommy and daddy won't have to pick him up and see most of his hair on the pillow. Something needs to be done to make more funding available for the many types of Childhood Cancer that aflict our babies. Go to a Children's Hospital and see the beautiful faces of these babies....warriors for thier own lives....and be touched to the core of your heart. This is what you should do a show about. This is important!
teresakamps-chica
Sep 15, 2009 10:30am
I think it should be on this subject as there are too many children battling and dying from cancer. More attention needs to be put on this subject after all what if it was one of our kids. Wouldn't you want attention focused on curing your child's suffering. I write this in memory of Zach White,Alexis Brown and Garrett Chanley all who died this year after battling cancer. They were just kids.....Teresa Kamps-Chica
kathy bisignano
Sep 15, 2009 11:05am
Please make this a priority. These children need help! The parents are exhausted from the grueling schedule of treatment. They endure tortuous treatments only eventually losing their battle. 3000 die every year! TellOoprah to help, tell Dr. Oz to do a show to help find a cure so. PLEASE someone needs to warn America about this dark secret,
ChildhoodCancerMom
Sep 15, 2009 12:53pm
Please go to this site: www.caringbridge.org/visit/christianlosurdo to see a beautiful face of an innocent child affected by cancer. Thanfully, he is in remission now 3.5 years. But not without the threat of long-term phyical side effects, not to mention emotional and psychological damage. And he is considered one of "the lucky ones". I urge you to read his story and look at his pictures. I have also listed many childhood cancer facts that will leave you dumbfounded!! Like the fact that Childhood Cancers are the #1 disease killer of children - more than asthma, cystic fibrosis, diabetes, and pediatric AIDS combined. Or the fact that only about 20% of adults with cancer show evidence that the disease has spread to distant sites on the body at diagnosis yet 80% of children are diagnosed with advanced disease. The list goes on... Please help our children by bringing awareness to this deadly disease!! Especially during this month, September. Let people know the symbol is a GOLD RIBBON. Next month we will see pink EVERYWHERE...yet breast cancer isn't even the leading cause of death in women. I would love to see September as GOLDEN as October is pink!!
jbarr
Sep 15, 2009 1:31pm
Please do a show on pediatric cancer. There are so many children dying every day, and there is not enough funding available for doctors to research and help these kids. Our son Matthew has been battling brain cancer for 2 1/2 years, and he's only 4 years old. Thank you.
jlplmt
Sep 15, 2009 2:18pm
We really need to take this issue seriously. Each day I pray for a list of children that continues to grow. And unfortuneately each day another child from that list becomes more ill. And at least once a week I hear of another child who has died from this monster. These children are our future, we need to make research a priority if we want them to be with us.I am blessed because a child I love is in remission, but the agony and torment that got him there was awful to watch. The public needs to be informed that we will never give up the fight to help these children see their next birthday. And we need them to join us in letting the government know that they need to fund this research immediately. If not me, then who ? If not now, then when?
lorischroeder
Sep 15, 2009 7:20pm
I think this is an important topic for many reasons but especially because of the fact that our son's leukemia took over a year to diagnose. I stopped counting how many doctors I had taken him to when I hit 45. Not only is it under-funded, but many of the childhood leukemia masks themselves as other illnesses, such as viruses and periodic fever syndromes. If anything it would be great to highlight the constant need for people to give blood, platelets and become registrants on the National Donor Marrow Program. That is where we got our son's donor from and we are, obviously, so grateful for that program.
sherribeckley
Sep 16, 2009 6:14am
RIP ALEXA BROWN & SHILAH DONNERSBACH! GOD BLESS!
LisaClarke
Sep 16, 2009 8:13am
I would love to see a show on childhood cancer awareness! Childhood cancer had never been a topic of discussion between my family and friends until my girlfriends 3 yo son was diagnosed with Stage IV Anaplastic Wilm's Tumor. When he was diagnosed he was given a very poor prognosis and the parent's were told he would not live to see kindergarten. This amazing young man is now in his third week of kindergarten and his scans are "clear". He is due for another scan in two days and if you want to see the effects and reality of childhood cancer you should see the fear and anxiety in his parents eye's! We are trying desperately to educate the public about pediatric cancer and the lack of funding for research through a Foundation in honor of this young man but we cannot do this without shows like "The Doctors" speaking out across the nation and fighting for OUR KIDS!!!!!!!!!
cindybrad
Sep 16, 2009 9:17am
Have a show on pediatric cancer. We have lost friends to these terrible cancers.
cindybrad
Sep 16, 2009 9:17am
Bring attention to our children dying of pediatric cancers!
SpaceyMommy
Sep 16, 2009 10:14am
We definitely need more awareness about childhood cancer. I believe ALL parents would be interested in watching this episode!
Helpchildhoodcancer
Sep 16, 2009 11:33am
PLEASE do a show bringing more attention to Childhood Cancer! We need you to help make childhood cancer as well know as breast cancer so more funding will be allocated AND save more familes from losing their precious babies at any and every age. (as you see below in these heartbreaking posts) PLEASE consider each and every one of these stories - I think it will move you to produce a show for this important topic. THANK YOU.
wmarecle
Sep 16, 2009 11:37am
We need a cure and / or better treatments, but we can not get to that without awareness and funding. Please consider helping our cause to further educate the public. I am glad that many people do not understand the devastation a childhood cancer diagnosis because that would mean it was far more common. However, as a parent that has lived with the tornado effect that the diagnosis brings I know we need to fight for our kids. They are our future. My daughter like many others experienced many complications while on treatment which included heart damage that could lead her to a transplant need and we know that there will be further complications caused by the treament as she gets older. My daughter was fortunate in that she is a survivor today, we have experienced the loss of so many friends and acquaintances over the last year and a half due to cancer. We continue to fight for more awareness and hope you will help us in that fight! Thank you!
wmarecle
Sep 16, 2009 11:37am
We need a cure and / or better treatments, but we can not get to that without awareness and funding. Please consider helping our cause to further educate the public. I am glad that many people do not understand the devastation a childhood cancer diagnosis because that would mean it was far more common. However, as a parent that has lived with the tornado effect that the diagnosis brings I know we need to fight for our kids. They are our future. My daughter like many others experienced many complications while on treatment which included heart damage that could lead her to a transplant need and we know that there will be further complications caused by the treament as she gets older. My daughter was fortunate in that she is a survivor today, we have experienced the loss of so many friends and acquaintances over the last year and a half due to cancer. We continue to fight for more awareness and hope you will help us in that fight! Thank you!
jamies
Sep 16, 2009 2:04pm
As a parent who has watched her baby girl at the tender age of almost 3 yrs old die from childhood cancer and many other families go threw the same thing, i would love to see more coverage on this topic!! There are so many many families and children who go threw this daily and many more to come. what if it was your child? your neice or nephew, grandson or granddaughter? What would you do to save them? THE ANSWER IS SIMPLE ANYTHING!! This is one more way to help one more ray of hope for these kids to get more funding and support!!
connorsmom
Sep 16, 2009 3:35pm
Before my 2 year old son was diagnosed with cancer, I thought kids could only get leukemia, and I thought it was always curable. I was SO ignorant! Too many people think like I did, and need to be educated on the realities of pediatric cancer----how these children fight for their lives and what they endure, not to mention the effects on a marriage and family when their child is diagnosed with cancer. We are one of the "lucky" ones: our son has been in remission for 19 months and his prognosis looks good. Now we have to live with the side-effects of the chemo and worry about the day that he develops leukemia because of the chemo. People do not want to know that there are children suffering and dying everyday to a disease we could cure IF THERE WAS ADEQUATE FUNDING FOR RESEARCH! We need to educate these people, make them aware that when they take their child in to the doctor's office tomorrow to check out some obscure symptom, they just may end up as one of us who has been told, "You're child has cancer".
Pat Burkhart
Sep 16, 2009 4:02pm
Cancer sucks... We need more awareness. The cure is within reach for our children. We can't give up. Pat Burkhart (Fan of Alexa Brown)
nvansoest
Sep 16, 2009 4:16pm
My vote is for a special angel named Alexa Brown and a little girl named KateMacrae who is hurting because of a brain tumor. I want to see more awareness out there to help my friends whose children are suffering from this dreadful disease. Please make this a priority!
kecklo
Sep 16, 2009 4:22pm
Please do a show, a week of shows, on pediatric cancer. It is so prevelent yet receives so little attention and even less funding. Here in Ohio, the city of Clyde has an EPA confirmed children's "cancer cluster". The number of cases is high and we just lost another child on august 6th,2009, Alexa Brown. Alexa was 11yrs old and there are more chiildren still fighting this terrible disease. Please go to Alexa's site : http://www.caringbridge.org/visit/alexabrown for a first hand look at the journey of this wonderful child. Thank you.
kecklo
Sep 16, 2009 4:22pm
Just to be clear, 1 in 330 children will be diagnosed with childhood cancer before age 20. Cancer kills more children than asthma, diabetes, cystic fibrosis, congenital anomalies, and pediatric AIDS combined. Yet funding for childhood cancer is woefully inadequate.
cincinbrad
Sep 16, 2009 4:35pm
Please bring this terrible problem to the nation's attention. It is more horrendous that imagined.
mswalwell
Sep 16, 2009 5:01pm
Please, Please take this opportunity to help the thousands of families that deal with childhood cancers. WE NEED A VOICE!! You can help, please do! Prayer warrior on CarePage CaringBridge
cindybrad
Sep 16, 2009 5:03pm
Pediatric cancer needs to be brought to everyone's attention!
uncgal
Sep 16, 2009 5:03pm
Most people do not have a clue about National Childhood Cancer Awareness. Please help bring this issue some attention. I am writing in honor of Nathan S. and in memory of Montana A. both who have or had cancer. Lets get some funding out there to help these children.
lauriehaas
Sep 16, 2009 5:07pm
My only child, a beautiful 13 year old daughter, has incurable brain cancer. The amounts of funding for research to cure these cancers is spread quite unevenly across the cancer diagnoses. Maybe you should look up the NIH figures? I think breast cancer gets somewhere around 586 million dollars a year in research funding...all 24 childhood cancers get 171 million...that means my child's disease gets approximately 7 million in research funding from the NIH per year. I will bury my child because our lawmakers do not seem to believe that children's cancer deserves at least an equal amount of funding as adult cancers. I wonder about that...alot. Please help us raise awareness for these children. They are the bravest warriors you'd ever want to meet. Laurie, Kat's mom www.caringbridge.org/visit/katherinebarnard
livgtown
Sep 16, 2009 5:08pm
I'm suggesting a show on pediatric cancer. No child should have to suffer this horrible disease. Recently I've been reading journals on www.caringbridge.com and cannot believe the strength the parents and families have, to shed light on their child's journey with very unhappy endings. I also didn't realize that 11 children can have the same type of cancer in one very small town (also scary that it's close to where I grew up). The only way to raise funds and get legislation passed to designate money to research is through awareness. Your successful show could be just that avenue. PLEASE PLEASE read some journals on the Caring Bridge website and I promise you will come away moved as thousands and thousands of us across the whole world have been.
jjdortch
Sep 16, 2009 5:44pm
Voting for ^^Alexa^^ Brown who is playing with angels tonight.
dlstyler
Sep 16, 2009 5:59pm
My 14 year old son Seth Simpson died of leiomyosarcoma 10 months after his cancer was found. I had no idea about childhood cancer prior to this. We have to let people know. We have to find cures because when your child's life is on the line we don't ever want to hear the words we heard. Sorry, there is no cure
sarahgee
Sep 16, 2009 7:17pm
If you want to know how childhood cancer is affecting our children, attend a child's funeral. That's all you will need to convince you that we NEED awareness! Our kids are DYING every day!
birdygirl
Sep 16, 2009 7:28pm
I am voting for this because it is an issue that doesn't get enough attention in this country at all! Please do this show for the hundreds of thousands of families dealing with childhood cancer! We need a cure and the more publicity it gets, the closer to a cure we will get! Also, we have lost too many children to this disease, including a wonderful 11 year old little girl named Alexa just last month. www.caringbridge.org/visit/alexabrown
francastillo
Sep 16, 2009 8:56pm
WE NEED TO KEEP OUR KIDS ALIVE. OUR KIDS ARE OUR FUTURE. SAVE OUR KIDS, THANK YOU, GRANDMA
CyrClan
Sep 17, 2009 4:50am
MMy 15 yearold son died three weeks...YES I SAID THREE WEEKS, after being diagnosed with ALL. We were told he had an 85% chance of recovery. My husband I both felt "Wow 85%, if we were betting people, those are good odds." We couldn't have been more wrong!! Our son was an athlete, healthy (so we thought) active and had a job working with kids. One day he had a stomach ache three weeks later we were burying him. PLEASE DO THIS SHOW!!!! Talk about the cancer, the lack of funding, the lemonade stands, the lack of public awareness, the poisions our babies are given to "cure" this beast and their lasting effects on our kids. They are left defenseless against germs ( in the case of Tyler), vision loss, hearing loss, and learning disabilities as well as delayed speech or in need of speech therapy. I could go on and on. Please visit www.tylercyr.com and read his story. Everyday I miss my son!!! ^^Tyler's^^ Mom
sherribeckley
Sep 17, 2009 5:53am
RIP Alexa Brown and Shilah Donnersbach! GOD BLESS!
sherribeckley
Sep 17, 2009 6:21am
CANCER SUCKS! HELP THE KIDS!
jleibacher
Sep 17, 2009 6:29am
My son is a pediatric cancer patient. Through the grace of God and the knowledge and expertise of the medical staff, he is in remission. Through our journey we have witnessed too many young people, babies, toddler, preteens and teenagers, not survive their battle with this dreaded disease. We need to increase the awareness of childhood cancer. We need cures! Our children are our futures and they need a fighting chance.
kimminks
Sep 17, 2009 7:42am
This would be a great way to get the word out about Childhood Cancer. Not many people are aware of how many children are dealing with cancer.
downeyseven
Sep 17, 2009 7:58am
Out of respect for the COURAGE of the children affected with all kinds of childhood cancer, please do a show - These children are AMAZING considering what they have to go through. www.caringbridge.org/visit/chloedowney
TheLeibacherCrew
Sep 17, 2009 8:01am
Voting in memory of ^ALEXA BROWN^ ^DELANEY YEATMAN^ ^COLLIN RYAN^ and ALL the children who have been ROBBED of their precious lives... ~CANCER SUCKS~
downeyseven
Sep 17, 2009 8:17am
Out of respect for the COURAGE of the children affected with all kinds of childhood cancer, please do a show - These children are AMAZING considering what they have to go through. www.caringbridge.org/visit/chloedowney
ereid08
Sep 17, 2009 8:17am
There needs to be more awareness for childhood cancer and all cancers...It is devastating to go to a funeral for a young child who has long there life to something so sensless and something that with enough research and awareness could be curable. Christi Thomas from Tiffin Ohio fought for four years against neroblastoma, on september 19th 2006 she lost her battle. Words can't describe the feeling of going to a funeral for a nine year old child. In Clyde, OH many children are batteling cancer, when they should be out playing and riding bikes and going to see movies. There should be some more research and awareness so children like Christi Thomas and Alexa Brown don't have to suffer! So parents don't have to carry there seven year old decessed child to the back of a waiting funeral car! There NEEDS to be more awareness
jdesombre
Sep 17, 2009 8:29am
As a parent with a child with cancer, I have found that our children are not being given a fair chance. We are their voice and no one seems to hear us. Why is it that October can be plastered with pink ribbons and everywhere you turn you hear about breast cancer. Don't get me wrong... I think it too is important. However, why is it breat cancer funding gets 12% of the Federal funding and all 12 major pediactric cancers combined get less than 3%. We need to start doing more for our children....our future!
honbune
Sep 17, 2009 8:34am
I would like to see more awareness out there regarding childhood cancer.
karinschichtel
Sep 17, 2009 9:42am
We lost (he's not really lost because we know where he is) our son Patrick in 2007 to AML - adult form of leukemia. Please bring more awarness to this issue. We know of way too many children that are suffering or who've gone on to get their "cure" from the greatest phycician of all tiime. Patrick, Austin, Bryce, Caleb, Robert, Marissa, Mackenzie, Kara, Alexia the list can and will go on and on. Please help our children. www.caringbridge.org/visit/patrickschichtel
kmcguff
Sep 17, 2009 9:55am
I think the lack of funding for research should be brought to attention. There are so many children who die EVERYDAY! from childhood cancer. On top of that, the treatments are for adults and there have been no forward strides in medicines or treatments. I visit a ton of Caringbridge sites and keep up with a ton of children in the midst of fighting this horrible MONSTER-the courage and bravery shown by these kids and their parents is truly remarkable. Alot of these kids lose their lives not to the cancer but to the treatments. HELP GET THE WORD OUT!! Money is needed to fund research so these precious children won't have to suffer in vain!
tlpotts
Sep 17, 2009 12:26pm
in honor of alexa brown the most beutiful child that lost her battle. please help the rest of the kids so they dont loose their battle
tlpotts
Sep 17, 2009 12:26pm
in honor of alexa brown the most beutiful child that lost her battle. please help the rest of the kids so they dont loose their battle
tlpotts
Sep 17, 2009 12:27pm
to all the kids that have childhood cancer please help them find a cure for them so they can live a regular life just like we do.
Timeka
Sep 17, 2009 12:50pm
My 5 year old Daughter has been battleing Leukemia for one year. It sucks. We need more attention brought forward to increase funding for childhood cancer research. Children are dying everyday from this horrable disease and I don't want mine to be one of them. We need a cure for all types of cancers, but childhood cancer needs to be at the top of the list, they are our future, and they deserve a chance. It's a very painful way to spend your childhood. We need to be noticed. Thanks for considering this topic for one of your show ideas.
uncgal
Sep 17, 2009 1:09pm
Please visit carepages.org and caringbridge.org and read about only a small number of children diagnosed with cancer. I have been reading about Natha, Alexia, Max, Alexa, Morgan, Carter, Caleb, Ravyn, Andrew, Ella, oh my gosh, the list could go on and on. You only need to read one update to feel the bravery and strength of these young children. These families are having to do things I could only imagine. I pray you would take the time to do your part in helping these children. It would be a huge start in helping to get funding where it needs to be to find a cure for childhood cancer. Thank you and God Bless You.
dahmer89
Sep 17, 2009 1:25pm
There are way too many kids in Clyde, Oh who have this disease. We just lost a little Angel, Alexa Brown to it. Our children need to be able to live their lives, just as we have. We need to stop this horrible disease haunting so many peoples lives!!!!!!!!!!!!!!
emg95
Sep 17, 2009 2:35pm
you really should do a show on this.. It should have been done a long time ago! Please do it for all the kids out there suffering! Victoria Sutton has AML M5 Leukemia 11q23 with MLL. She is only 8 years old. She has finished her chemo therapy, but now she is very sick. Her temperature has stayed at and around 104.2 degrees, and she has a rash all over her entire body and a very painful cough. Her website says that she has spells where she coughs so badly that she can't stop is is constantly struggling for air. The doctors have put her on all types of medicine and antibiotics, but they don't seem to be helping. Pray for her and her family. Pray for a quick recovery for Victoria, and please pray that soon she will be her bubbly self. It amazes me how strong her family's faith has been through all this. Prayer does make a difference, and they need a lot of it. just how fortunate we are that we don't have to endure this. Cause we really are.
cindybrad
Sep 17, 2009 3:05pm
Help bring awareness to our children dying of cancer!
philphan
Sep 17, 2009 3:35pm
as a person who visits sick children on caring bridge & care pages i must say that childhood cancer does not get the attention it so needs and deserves.they are the kids of our future.not only that it is so very sad to see a little baby go from normal to so sick and dying in 2 months,kids playing,swimming,riding their bikes one day and then the next having portacaths put in to start chemo all because they started walking funny or said their belly hurt.please jay do a show on these children that so need help to live to bring the attention to america and our president for funding.thank you drema pearson
kathi96
Sep 17, 2009 3:56pm
I hope you will consider doing this show on childhood cancer. Please talk about typical warning signs. Please tell children's stories, survivors and angels. Please talk about life long side effects the survivors endure. Please talk about funding, or lack of, for childhood cancer. Please talk about Childhood Cancer Awareness Month. Really anything could make a diffference for our kids. All of these children's health issues that are being voted on deserve our concern, don't you think...??????????
tamus67
Sep 17, 2009 4:10pm
You know 1 in 330 is really a large number of children affected by this, then you think of those who have had someone lost to cancer or those even affected by this and the thing that gets me more than anything else... As an EMT and as just a person who is never short of feeling.... THESE ARE KIDS. That in it self gets me. If you cant be moved by cancer or by anything else Kids, Kids bodies have a coping mechanism in of itself with dealing with traumatic things I know this as an EMT yet people dont get moved... I just dont understand. As Kids continue to fight when instead they should be laughing running jumping and doing all those kid things that give grown ups headaches or goosebumps, we can debate health care...yet fail to care. In the medical field we have to start promoting the cure, I find it hard to believe when we can send people and things to mars and other planetary areas we still can not find nor develop cancer free state of being. So when is enough enough.....? Alexa you know we were and are still here for you... We have not nor will we ever forget You or any child...Yellow is for the month, but cancer was for their life...... so bring on the show, Bring about a change and lets do something.... for failure isnt an option....its life, and our future. Alexa Brown I love you.
lucyeb
Sep 17, 2009 5:35pm
Please consider doing a show on childhood cancer. There is a lack of awareness and funding. Our children are so important and they deserve better!
honeyroze
Sep 17, 2009 6:02pm
Pediatric cancer is underfunded and something needs to be done about it. This show would be a good medium to spread awareness of childhood cancer.
regalapreciosa
Sep 17, 2009 6:40pm
Please help people be aware that childhood cancer exists! We do not hear it spoken of outside of the childhood cancer community. Please show the suddeness of diagnosis... they may be very very young. Please show the choices parents must make and sometimes it seems like there are no good choices! Please show the reality of treatment, surgery, chemo, radiation, loss of limbs, organs, life. Please show the effect this has on siblings and marriages. Please show the long term effects of treatment on the children, the chance of relapse extending over time, secondary cancers. Please show the amazing parents and nurses and doctors that work with these children each day. Please show the resolve of the parents that their child is not forgotten and that more research is done and that a cure is found. Please show examples of programs that help these families like Allies House, Oklahoma Family Network, St Judes, Alexs Lemonade Stand, Coles Foundation, Lighthouse Family Retreat, Super Sibs, Songs of Love. They all have great stories and reasons why they are helping families. Even though Childhood Cancer is such a hard issue to face, it is a worthwhile cause filled with tons of hope. Thank you!!
sarah_dbd
Sep 17, 2009 7:40pm
This topic NEEDS attention. There are way too many children in our nation that are passing away, or, like my son, suffering long treatments due to not enough awareness/funding for this cause. Sarah
cldusek
Sep 17, 2009 10:12pm
I am ashamed to say that I never thought about children getting cancer until my 3 month old grandaughter was diagnosed with cancer one year ago today. The tv public needs to be AWARE of how many children get cancer, how awful the treatment is, and how many lose their battle. As a breast cancer survivor It makes me mad to see pink ribbons everywhere already but no gold, the ribbon that represents our children who suffer with cancer.
ChildhoodCancerMom
Sep 18, 2009 2:10am
Cancer is devastating and just about everyone has had their lives touched by it. Watching a loved one (or enduring it yourself) go through the harsh treatments and battle of cancer is just horrible!!! NOW IMAGINE a >CHILD< having to go through this!! Or having to watch a child...YOUR child... go through this!! It is TRAGIC!!!! PLEASE PLEASE PLEASE... the time to shed some light on this subject and much needed awareness is long over due. I feel like this is the "elephant in the room" no one wants to acknowledge. Some think it is just "too sad" or depressing..>TOOOO BAD!! We've LIVED IT! Others don't want to face the fact that their children aren't immortal like we like to think... That isn't going to STOP this beast or find a cure!! I know others in the "childhood cancer community" have tried to get this topic on that "other" little talk show ("O") to no avail... I would much rather see it here presented by DOCTORS!! Thank you for your consideration!! Rene' Losurdo - Mommy to Cancer-Suvivor-Hero, Christian-8, Devin-6, Brendan-3 and baby due in 3 weeks...
ladonaweisenberger
Sep 18, 2009 4:26am
This problem is something children shouldn't have to deal with. This issue needs ALOT of attention!
tytaymom
Sep 18, 2009 5:41am
I'm fortunate to have 2 healthy children, but I am well aware of the fact that could change in an instant. A family here in Delaware had a 14 year old healthy, active son who played all weekend in a soccer tournament. Sunday evening he wasn't feeling well so they took him to AI DuPont Children's Hospital where they got the worst news of their life. Their brave young man fought hard for several months and he never left the hospital. His parents and sister I have never personally met or known, but I kept up with their CaringBridge site and they are all absolutely AMAZING! They started the B+ Foundation to help cancer families out with the cost of the disease. You need parents/families like this that have been on the front lines and know the high cost paid. Just take the time to read their journal entries from the beginning of their nightmare and you will see what a true Hero their son is and what an inspiration the family is. http://www.caringbridge.org/visit/andrewmcdonough
rachiesmom1
Sep 18, 2009 10:08am
Most parents will never hear the words, "I'm sorry. Your child has cancer." But everyday the parents of 46 cvhildren will hear these words. One in every 330 American children will develop cancer before the age of 20. Each year, about 2,300 children and teenagers die from a childhood cancer. . Most parents would never even consider thiat this could happen to their children. I was one of those people-until December 1, 2001, when I was told, "She has Hodgkin's lymphoma." We were also told if someone had to have cancer, this was the best kind to get. My daughter died on July 28, 2005 - nineteen days after her 22nd birthday.
hchristian
Sep 18, 2009 10:40am
Up until January 2008, I was totally unaware of how many children were battling cancer – that was until my own child was diagnosed. I was shocked to say the least. Hospitals are overflowing with pediatric cancer patients. The chemo treatments wreak havoc on the bodies of our children. Too many of these children die, not just from the disease, but from the treatments meant to save their lives. It’s a sad truth that nobody wants to hear about or acknowledge. America needs a wake-up call. Who better than “The Doctors” to make that call? What better stage to discuss childhood cancer than your show? Step up to the plate and show us that you support our cancer-warriors and Childhood Cancer Awareness Month!
wendywarren
Sep 18, 2009 11:25am
This is the kind of awareness childhood cancer needs. Just last month my little sister, Alexa, died from brain cancer. She was 11 years old. I will not stand back and watch thousands of other children die. We must do something! And the time to do it is now! Funding for research is not there. We must stand up to childhood cancer. Please help us because we need you. The kids battling this terrible disease need you. www.caringbridge.org/visit/alexabrown
ambider02
Sep 18, 2009 11:59am
Please do a show on pediatric cancer.Cancer kills so many kids in a year,in my home town of Clyde,Ohio,alot of out children are dieing and are sick from cancer and we need more help to find out whats going on with our sweet children.I sweet little girl Alexa passed away from cancer in our small town,how many children do we need to lose to this cancer.Please think about doing this show. thank you very much from the bottom of my heart. amber y RIP Alexa Brown..God Bless you all.. www.caringbridge.org/visit/alexabrown small town in ohio
ambider02
Sep 18, 2009 12:00pm
Please do a show on pediatric cancer.Cancer kills so many kids in a year,in my home town of Clyde,Ohio,alot of out children are dieing and are sick from cancer and we need more help to find out whats going on with our sweet children.I sweet little girl Alexa passed away from cancer in our small town,how many children do we need to lose to this cancer.Please think about doing this show. thank you very much from the bottom of my heart. amber y RIP Alexa Brown..God Bless you all.. www.caringbridge.org/visit/alexabrown small town in ohio
sherribeckley
Sep 18, 2009 12:38pm
RIP ALEXA BROWN AND SHILAH DONNERSBACH! GOD BLESS! CANCER SUCKS!
msmom75
Sep 18, 2009 12:57pm
Please consider a show on Childhood Cancer. 18 years a go my niece died at 10 years of age from leukemia. Changes have come since then but funding is still embarassing low for a nation such as ours! Our children deserve better. Just as inspiring and a great sidestory would be on the Network these families develop through the internet websites created for their use - Care pages/ caringbridge. Follow just a few of their stories and you will understand the need for more awareness of Childhood Cancer. Thanks for your consideration !
trinity64
Sep 18, 2009 1:27pm
I am a kindergarten teacher. The P.E. teacher asked me how long one girl had been limping and did she hurt herself. We noticed her thigh was swollen and told the parents. It turned out to an osteosacoma and she is now in the second grade and walking, playing on the playground equipment and has a lot of her hair back. It's been a journey with the parents and students. Just a simple comment by another teacher and a child's life was saved!
Patty A
Sep 18, 2009 2:37pm
For Alexa Brown, Clyde,OH
pennyjosh
Sep 18, 2009 5:16pm
I would really like to see you do a show on this. I have a 5 year old daughter that was diagnosed with Neuroblastoma in April 2008. So many people do not know how serious childhood cancer is and how much there really is out there. Everyone knows about breast cancer and not that it isn't important, but what about our children who are the future of this country. Why isn't cancer research for children more funded?
jrlee
Sep 18, 2009 5:33pm
I am one of millions of families affected by childhod cancer. My son was diagnosed with Bi-lateral Wilms tumor ( one of 25 cases a year) he currently is cancer free but we know that can all change in a heartbeat. Please help us bring more awareness to this awful disease and help our families get the awareness out there. We Need Help!
weakestlink52
Sep 18, 2009 5:37pm
Please do this important show.
kmr18
Sep 18, 2009 8:58pm
I find it ironic that there are currently 330 comments. 1 in 330 children will be diagnosed with cancer.,only it is not just that child who is diagnosed, it is that family. On July 29,2008 I stood in The Oval Office with my son, Wyatt, a childhood cancer survivor, as President Bush signed The Conquer Childhood Cancer Act into law. After 3 years of work, the bill passed in The House, and The Senate by unanimous consent. As of today The Conquer Childhood Cancer Act has not been made a part of the Presidents budget. It still remains unfunded. Childhood cancer is the number-one disease killer of our children. Childhood cancer kills more children every year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined. With awareness comes support and funding, with funding comes research, and with research we will get closer to a cure for our nations most valuable resource, OUR CHILDREN! Will you please consider helping parents raise awareness for our children on a national level? Will you stand with parents of children with cancer and help make September known as National Childhood Cancer Awareness Month? Kris Rech Mom to Wyatt, a Wilms Tumor Survivor
kmr18
Sep 18, 2009 8:58pm
I find it ironic that there are currently 330 comments. 1 in 330 children will be diagnosed with cancer.,only it is not just that child who is diagnosed, it is that family. On July 29,2008 I stood in The Oval Office with my son, Wyatt, a childhood cancer survivor, as President Bush signed The Conquer Childhood Cancer Act into law. After 3 years of work, the bill passed in The House, and The Senate by unanimous consent. As of today The Conquer Childhood Cancer Act has not been made a part of the Presidents budget. It still remains unfunded. Childhood cancer is the number-one disease killer of our children. Childhood cancer kills more children every year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined. With awareness comes support and funding, with funding comes research, and with research we will get closer to a cure for our nations most valuable resource, OUR CHILDREN! Will you please consider helping parents raise awareness for our children on a national level? Will you stand with parents of children with cancer and help make September known as National Childhood Cancer Awareness Month? Kris Rech Mom to Wyatt, a Wilms Tumor Survivor
Mandan914
Sep 18, 2009 10:38pm
My little Brother Nickolas, was diagnosed with Osteosarcoma at the age of 16 in 2006, he is still currently battling this horrible cancer.
marie canyonkeg
Sep 19, 2009 1:22am
Please consider doing an episode on Childhood Cancer during September, which is Childhood Cancer Awareness Month.
MaryLee
Sep 19, 2009 6:45am
My son is a SURVIVOR of childhood cancer. He was 11 (old) when he was diagnosed with T-Cell Acute Lymphocytic Leukemia. He is now 19, but suffers from the emotional trauma and is find life hard to adjust to after chemo. We must find a way to treat these kids without bringing them to death and back over and over to cure them. What about life after chemo? Mary Lee Shand www.caringbridge.com/mn/davis.leukemia
DROMAN55
Sep 19, 2009 7:29am
I can't stress enough how much we need funding for childhood CANCER. Research for Pediatric Cancer is extremely important. Tooooo many of our children are dying due to this ugly thing called CANCER. My son was on the cusp of being and adult when he was diagnosied with a rare Spinal Cancer. He was 21 in 2005. Caringbridge and Carepages help keep families informed. We find out about different treatments and keep up with other families who are all part of this ONE FAMILY called CANCER. The support is amazing. This is my sons site www.caringbridge.org/visit/ryanroman , We need as much funding as possible to try and come up with some cure for Pediatric Cancer. Childhood Cancer and Awareness should not be swept under the rug.....So many other Cancers are addressed on a regular basis....But what about our Children????? Your show can help us all by bringing awareness to this horrible disease that is taking our children from us. It can bring awareness to the fact that Childhood Cancer Research is underfunded. Keeping the Hope and Faith Alive....... Debbie Roman
kikisdad
Sep 19, 2009 11:06am
As I write this, a child will die from cancer. In another 4 hours another child will die; and another 4 hours after that. Every 4 hours, a child dies from cancer. Cancer is the number ONE killer, by disease, of children under 15. Yet the funding for research into improved treatments and possible cures has stagnated and dwindled. My daughter is just 11 months removed from having battled cancer for nearly three years. She was fortunate to have benefitted from past research into treatments for her cancer. We need to make sure that fewer children - indeed, no more children - and their families suffer from this disease, by raising the awareness of the issue of childhood cancer and the urgency to continue funding research.
kikisdad
Sep 19, 2009 11:06am
As I write this, a child will die from cancer. In another 4 hours another child will die; and another 4 hours after that. Every 4 hours, a child dies from cancer. Cancer is the number ONE killer, by disease, of children under 15. Yet the funding for research into improved treatments and possible cures has stagnated and dwindled. My daughter is just 11 months removed from having battled cancer for nearly three years. She was fortunate to have benefitted from past research into treatments for her cancer. We need to make sure that fewer children - indeed, no more children - and their families suffer from this disease, by raising the awareness of the issue of childhood cancer and the urgency to continue funding research.
MaryLee
Sep 19, 2009 12:08pm
I wanted to add to my comment earlier, I am now a 2nd year nursing student. I hope to work as a pediatric oncology nurse by this time next year! Thru my experience with my son, I want to HELP parents and HELP the kids get thru this horrible experience with someone who has been there. I hope I can pay back what was given to me by so many who cared and didn't know me from adam..... like another writer said... "The Cancer Family" - a family no one ever wants to belong to, but one of the most giving, caring and understanding families - even when they are going through their own hell, will be by your side whenever you call.
carajudith
Sep 19, 2009 6:24pm
Help bring awareness to the heartbreak of childhood cancer. Too many die.
baileygirl
Sep 19, 2009 9:06pm
Not only are these kids fighting a horrendous battle but they experiences the death of friends too often. My little girl was 4 years old when she was diagnosed. By the time she was five she had lost 5 little friends to cancer. When I told her that Shelsie had died, she buried her head in her arms and said, "Why are all of my friends dying?" These were her buddies that she spent hours with in clinic and in the hospital. Their whole lives become about survival and death. It shouldn't be that way. My precious little Miss Bailey died when she was eight years young. Please help us raise awareness of this horrible disease! God Bless!
danco1968
Sep 19, 2009 10:15pm
Childhood cancer remains the #1 cause of death due to disease in children. Childhood cancer does NOT discriminate on the basis of age, sex or race. Here are some statistics: * Each year cancer kills more children between 1 and 20 years of age than asthma, diabetes, cystic fibrosis, and AIDS, combined. * Every year, over 12,500 children and teenagers are diagnosed with cancer. * Each year about 2,300 children and teenagers die from cancer. This means that every 4 hours a child will die from cancer. Every day. * One in every 330 Americans develops cancer before age 20. * Some forms of childhood cancer have proven to be so resistant that even in spite of the great research strides made, most of those children die. Up to 75 percent of the children with cancer can now be cured. We need to raise awareness. We need increased funding. We need to be their voices.
crazy4acure
Sep 20, 2009 8:17am
I have been thrown in to the world too many moms and Dads and Grandparents come to know as Cancerland. I know new words like "Necrosis rate "and "Scanxiety". My life and the life of my child has forever been changed. Our lives will never be the same. My son Kenny was first diagnosed in 2006 and is still fighting cancer having relapsed 5 times now. in just three years. He has had two leg surgeries one where his leg was amputated and he has had tumors removed from his lungs THREE TIMES in three years. God willing that he is a "Survivor" he will have to be monitored for the rest of his life for "Recurrence" of his disease. He has OSTEOSASARCOMA which is BONE CANCER. He was diagnosed at 17. I know a young girl Madison that was diagnosed at just five years old with OSTEOSARCOMA. There are many types of childhood cancers and if you ask people there arent many who are even aware that children get cancer -even babies are born with cancer. This needs to change. We need public awareneess to change, to increase. We need more research and funding. We need better treatments and a cure. PLEASE, PLEASE make Childhood Cancer a main priority-Do a show to raise awareness. Help us help children and make a difference in every Pediatric Cancer Patients Life. We need your help. Teresa
Gina Beerbower
Sep 20, 2009 12:44pm
My grand daughter KK had Wilm's Tumor stage 5(cancer in BOTH kidney's) at the age of 15 months. By the grace of GOD she is healed and is now 4yrs old. Please give our kids fighting this disease the attention they deserve. Wilm's they say is rare, but if you look into it it's not so rare any more. Help us find a cure and get the attention we deserve for our kids. www.caringbridge.org/visit/caydencesorter
Saberleopard
Sep 20, 2009 3:16pm
I am the mother of a child that does not have cancer, but an autoimmune disease. I am writing this because, even though my son's life is rough and his disease rare, CHILDHOOD CANCER HAS TO BE THE TOP PRIORITY!! My son, who is 14, is in constant pain and has the immune system of an infant, his only wish in the whole world is for a cure to be found for all of his FRIENDS who are righting and dying from this monster! WHY has no one talked about this? Is it unhip? Not ratings sexy enough? I am amazed by these children and their families. I do not know how they cope from one minute to the next; or take a breath. I would ask that your show, "The Doctor's", that I DVR (sorry, sick kid) and find so helpful and informative to PLEASE look at your children and imagine if you were having to make funeral arrangements, keep their pain under control, ease their anxiety and still function...just take that in...these kids are DYING everyday, my son has had 14 very close friends die this year alone from osteosarcoma, rhabosarcoma, brain tumors, Burkitt's Lymphoma, ALL, and so too many others to name...here is a short list of fighters now in heaven: Brett, Tyler, Arden, AJ, Mira, Tiffany, Michael, Corey, and soon to be added to that list Valeria and one of his best friends, Jessica. PLEASE DO A SHOW TO HIGHLIGHT CHILDHOOD CANCER AWARENESS MONTH. If you don't, who will? Thank you very much for your time and consideration, Saber, mother or Zack (14)
queenfrog
Sep 20, 2009 4:27pm
J Foster, Children are our future. What else is there! More children are being diagnosed everyday with cancer and you don't see gold you see pink. Funds that are promised by the government are never delivered. Childhood cancer needs the support, it isn't going away soon and it can't be hid, so lets quit pretending and start acting.
Staceyra12
Sep 21, 2009 7:10am
We need more awareness of Childhood Cancer. September is Childhood Cancer Awareness month and you never see anything about it. Gold Ribbons represent Childhood Cancer and you see very few gold ribbons. Please help bring this to the forefront. We need more research dollars going to this cause.
Justinsmom
Sep 21, 2009 8:28am
Justin, 14 years old, diagnosed GBM (brain cancer) died July 29, 2009
serinaj1980
Sep 22, 2009 9:36am
For Alexa Brown of Clyde, OH!
Tanya Barnett
Sep 22, 2009 2:57pm
Our daughter Maddison Barnett was diagnosed with Osteosarcoma bone tumor in her rihgt leg just below her knee August 23, 2007 when she was 8 years old. She had her leg amputated from the knee down. Six months later while on treatment it spread to her lung. She had lung surgery and 2 months later it came back thaen she had another lung surgery. It came back again 3 months later. They would'nt do another surgery unless we could show that the chemo was working.It spread to her heart and her brain. She passed away on March 6, 2009. It is not fair that they are using the same chemo on her cancer since 1980. We live in hell with out her. We will spend the rest or our life raising money and awareness to Osteosarcoma research. We have raised $10,000. in the last six months for research. She was so brave and never complained, she changed alot of lives and brought alot of people to the LORD. For my angle love mom! Thanks Tanya Barnett (tanyabarnett3@yahoo.com)
dagger707
Sep 22, 2009 5:59pm
We definately need more attention brought to Childhood Cancer Research. Our kids our future and we have to fight for them!
tara19
Sep 22, 2009 7:52pm
We lost our son to childhood cancer at the age of nine....one year ago. Please bring awareness to this disease - too many children have lost their battle and too many our in the fight. Our children deserve this - our forever angels.
Mannheimkathy
Sep 22, 2009 10:18pm
You should focus your show on childhood cancer. Everyday a child's life is lsot to cancer. We need more government dollars to be designated towards childhood and all cancers. The answers seem so close and after all of these years of research, the scientists are clost, the FDA holds back possible treatments. Actions need to be taken to help beat childhood cancer and all cancers. This is absolutely a show that would give you high ratings. All you need to do is contact the parents whose children were stricken with the disease.
gonikki501
Sep 22, 2009 10:26pm
Our world was turned upside down when our teenage daughter was diagnosed with Ewing's Sarcoma (bone cancer) after a year of treatment she is going on 22 months in remission, but is now living with life altering side effects. She has spent the last year in bed due to unbearable pain in her back and hips, unable to walk, sit, or stand for more then 10 minutes at a time. These are the side effects from radiation and chemo, severe nerve and tissue damage, fragile bones, stress fractures. She is on 9 different medications including morphine just to get through each day. We continue to search for pain relief, as we have been told many times," years ago kids did not live through treatment, so this is now something new dealing with the side effects,but we're just not there yet with answers". So it is left to the parents to search for answers without a end in site. Watching your child in unbearable pain is heart breaking for the parents, siblings, family,and friends there has to be something someone can do to help! We need research for a cure and for the side effects of the life saving treatment. https://www.carepages.com/carepages/nikkiweinberg
Cathi_713
Sep 23, 2009 3:37am
This is a very serious issue for everyone involved with someone that is dealing with childhood cancers - I have been following a 'fighter of the disease' for over 2 years...please see her web site and help this young women win her battle! Nikki and her family have been on a tremendous road. God bless you all! https://www.carepages.com/carepages/nikkiweinberg
sherribeckley
Sep 23, 2009 5:51am
RIP Alexa Brown and Shilah Donnersbach! Cancer Sucks! God Bless!
lorischroeder
Sep 23, 2009 6:01am
My 3 year old son, Evan, had a type of leukemia that was so rare that it took a year to diagnose him. He went through a bone marrow transplant last year and is now in recovery and remission. I am writing to you because we recently met his bone marrow donor, a 22 year old college student from Lousiana through the internet. We have yet to meet face to face ye.. (but it is our plan to do so of course!) Anyway, he and his whole family seem wonderful and I know that If you were interested, both parties would be happy to share our story (signing up for the marrow registry, the actual transplant, etc.) so we can pass on the importance of registering and bring exposure to the National Marrow Donor Program and other programs like it. If Chase, Evan's bone marrow donor, had not signed up for the registry, I dont know where we would be right now as they were a perfect match.... Anyway, it is just a thought and my email is lorischroeder@columbus.rr.com I have a website for Evan and it is http://www.caringbridge.org/visit/evan2 Anyway, just hoping the childhood cancer idea will win and wanted to offer any help, as we never had a clue that one of our sons (who seemed to be "born healthy") would end up with cancer. Sincerely, Lori Schroeder
LilysDad
Sep 23, 2009 6:47am
Cancer is killing our children! There is very little funding for research. Nobody knows unless they are personally affected. Please help bring us out of the shadows. My 5 year old daughter has a brain tumor. There is no research for her. Our children need a bailout!!! A dad with a kid with a brain tumor.
randeedonovan
Sep 23, 2009 7:07am
My son Gabe died from AML four days before his second birthday. His wake was on his birthday and Mother's Day. It is shocking and insulting to me that the news is always talking about prostate cancer and breast cancer. So many children are affected by the horror that is cancer and cancer treatment. Please, please, please help bring awareness to the brutal truth of childhood cancer.
jspellman
Sep 23, 2009 9:05am
Please do this one. Children are our only hope for the future, the reason we get up everyday and fight the good fight. If only we all could see life thru the innocent of a young child, this world would be so much better. We need to find a cure for our angels on earth. Thank-you. Julie
mpocgn
Sep 23, 2009 5:14pm
Please do a show on childhood cancer. Show the bravery of our children. Show how devasting the treatment is to them to save their life, if it is saved. More funding must be achieved.
hatchercc
Sep 23, 2009 7:27pm
I was not aware that September was Childhood Cancer Awareness Month until September of 2005 when my daughter, Jean was diagnosed with a brain tumor. I had never been on an oncology floor of a Children's hospital until my daughter started chemo treatments. I was one of those people who thought it could never happen to my child, but it did. We need to help rasie awareness for research and treatment of the many kinds of childhood cancer. They do not seem so rare when it is your child.
Annette Mc
Sep 24, 2009 6:03am
Here is a link from an article that was in the Scranton Times about the dreams of a little girl who passed from a diffused intrinsic pontine glioma. Her wish to help stop all childhood cancer. http://www.scrantontimes.com/news/hundreds_work_to_raise_childhood_cancer_awareness These childrens voices need to be heard, and it shouldn't be up to the parents to bring about awareness, but as you can tell if it wasn't for the determination of all these parents, everyone would still be turning a deaf ear on the subject. The doctor's also need to become much more educate at finding the diagnosis up front, instead of treating it as if it was nothing serious. Far to many children are misdiagnosed for many months before the Doctor's say oh yeah maybe it's this. Which, I plan the insurance industry for controling what the doctor's can and can not do for their patient. I know this all to well since I have processed claims for 20 years. I was trained more on how to deny claims then pay them. Even if I felt they should be paid. Our children's lives are worth far more then the greed of the big business. You can't put a price tag on a child. I am sure you wouldn't want that for your child. Please, have a show about childhood cancer awareness. I would be more then happy to help you help us spread the word. Thank you for taking the time to listen. Looking forward to working with you on this. Much respect, Annette (angel aimees mom) annette@aimeesarmy.com
ruthoviatt
Sep 24, 2009 9:32am
I would really enjoy seeing more childhood cancer awareness. Although I barely missed the boat since I was diagnosed at age 18 with Stage 3 Melanoma, I have been a child that had to deal with the nasty "C" word. Luckily, I was treated at St. Jude Children's Research Hospital. I'm only 19 now, and I just finished treatment. I still keep up with many children and their stories. I've seen some very very very sad cases (every story is sad and unfortunate). Childhood cancer crosses my mind every single day, but some people never even think about it! Please do a show about raising awareness for childhood cancers!!!
SKThompson
Sep 24, 2009 11:15am
Childhood cancer is the no. 1 disease killer of our children - yet awareness is lacking. No one except the families directly affected know what it's really like to fight this battle. Only increased awareness will lead to the desperately needed increase in funding for childhood cancer research. This is your opportunity to make a real difference! - Mom of an 8-year old who died of rhabdomyosarcoma
GetzX4
Sep 24, 2009 2:19pm
Please hear our voices, please help our children. I am a mother of a child with Cancer. My Daughter has been fighting cancer since Jan 06. She was diagnosed with Ewings Sarcoma (a rare bone concer) in her left tibia. We had done a bone resection w/alograph replacement. The hours of recovery, the months of chemo & the weeks of radiation. Is more than anyone can endure..yet somewhere beneath it all, She still can find a way to smile. Then in Dec 08, due to a bone infection & finding that Sarah's cancer had returned, but this time in her lungs (which is where this cancer will relapse) we were forced to amputate her leg. A leg she had not walked on in almost 3yrs. Now Sarah has endured more chemo treatments, two thorocotomies and now we are facing possible stem-cell transplant. I was told that with her relapse she only has a 20-40% chance of surviving this relapse. Those odds are not good are they??? So where is the research we need to get Sarah's odds to 100%??? They are not there, and they need to be. We need to bring more awareness. Sarah is among so many children having to live a life of "what ifs". Childhood cancer NOT ONLY affects the kids....it's takes over everyone around it. It consumes every moment of our day, of our night. Every possible moment we stop & think. Because we have to live in the moment, because cancer can take our children at any time.. So many people take forgranted their everyday....for us, our everyday means so much. SO PLEASE hear our voices...bring attention to Childhood Cancer. One day, you too could be standing right where we are today. WWW.Carepages.Com/SarahT95
oscar0183
Sep 24, 2009 5:58pm
Th leading cause of death in children for the US, and the most underfunded in research-WHY? I vote for this for the way to many kids I know who have fought this battle. Jessica Easley is the face of what a kid should never have to fight. This is for you Jessica- http://www.caringbridge.org/visit/jessicaeasley
tbeamer
Sep 24, 2009 6:51pm
I can give you over 12,000 reasons to do a show on childhood cancer. Each reason has a name, a face, a mother, a father, grandparents, maybe siblings, and a story. Many people like myself with children with cancer had no clue that their child could have cancer before they were diagnosed. There is no screening, no testing, no reason to think that your child could get cancer. There are some cancers in children that have no cure. This information needs to be shared with the world. Our children are dying and the drug companies are telling us that it isn't profitable to research new drugs to help them live.
kristja
Sep 24, 2009 9:31pm
My 10 year old daughter was diagnosed with Metastatic Osteosarcom. As I sit with her in the hospital, I urge you to do a show to bring awareness of what these children and their families go through as that fight this battle. More funding and research needs to be done to save our precious children.
carver
Sep 24, 2009 10:45pm
My son underwent treatment for T-Cell ALL (leukemia) after he was diagnosed in 1993. The two-year treatment stretched to two and a half because low blood counts caused delays at times. He had two illnesses that were related to his almost non-existent immune system - a type of pneumonia that is seen mostly in AIDS patients, and a respiratory virus that was usually only life-threatening in infants and the very old. Throughout his treatment, he was scheduled for bone marrow tests and spinal taps every nine weeks. But, he's now a healthy, normal 22 year old male! He graduated from high school on schedule, and was extremely athletic. He's in the middle of taking an engineering program - so he wasn't affected academically at all, and was probably one of the most popular kids in his class. The doctors have mentioned at times that they would like to have various professionals talk to him and maybe do some tests - not because there's anything wrong - but because they'd like to see if there is something about him, or what we did during treatment that helped him come through so amazingly well. Unfortunately, even though it's been almost 15 years since he's completed treatment, they still don't have enough resources available to do that. They barely are able to keep up with the kids that need help! It's too bad ... Not to say that he has no ill effects - he has some migraines, and is somewhat absent-minded and forgetful at times, but who can really judge if those would have been part of his being anyway, or if they resulted from treatment. More funding might help them find some useful knowledge to help other kids through treatment while minimizing some of the late effects!
edrouillard
Sep 25, 2009 1:45pm
my sister has cancer and we NEVER see anything about childhood cancer anywhere but yet it is the number one killer of children. Please vote so this issue gets out there please and Thank you SOOOO much!!
JDCross
Sep 26, 2009 10:29am
As I am writing this note, another child will be diagnosed with cancer or die from cancer. For my grandson Tyler Cyr it took three weeks from diagnosis to his passing. W were all so hopeful for his recovery, but because of the Beast, he contracted Fornier Gangrien, a nasty infection. So you see cancer isn't just cancer...it comes with all these horrific infections that young bodies can't fight off. You who have your children and grandchildren to hold and love remember this is your fight too. You need to fight to protect your loved ones from contracting this disease. My family and our friends are doing what we can, but it takes a lot of money and research to kill this beast. Think of ways you can help. If you can't afford the donations, then jump on the volunteer band-wagon. Don't let the Beast win!!! Write your President and other elected officials to make this a priority in their budget. Tyler's light will always shine and so will the light of all the other Angels who have passed...it is up to us to make that light blinding. #32's gram...
jdesombre
Sep 28, 2009 10:50am
Having trouble finding children suffering from cancer?!! You don't need to look very far. 46 children are diagnosed with cancer every school week. There are thousands of children fighting each day....many of which don't have much time left on this earth. We desperately need your help to bring awareness on this aweful disease. September is coming to an end and very little has been said about September being Childhood Cancer awareness month. I just don't understand why! We are begging you for all our children.....PLEASE PLEASE help us bring awareness and maybe together we can finally get closer to finding a cure and if that isn't possible at least find treatments that have less long term side effects. These poor children go through enough just to beat the cancer, they shouldn't have to live in pain for the rest of their lives. Thank you for giving us the opportunity to share our opinions on here! This is a wonderful foundation that supports children and their family's during these horrible times. The family that started this foundation lost their child to cancer in a matter of 8 extremely short weeks of being diagnosed. They are now paying it forward! www.colesfoundation.com Thank you, Jen DeSombre www.caringbridge.org/visit/caseydesombre
jbarr
Sep 30, 2009 8:30am
There needs to be a show on Childhood Cancer Awareness and not just in September during Awareness Month, but any time. My son is 4 years old and has been battling brain cancer since he was 18 months old. He has had 4 brain surgeries, 5 rounds of chemo, a stem cell transplant, 6 weeks of radiation and countless blood and platelet transfusions. I am writing this now from the hospital - he was admitted last week because he has strep pneumoniae in his blood - most likely caused by his low blood counts and weakened immune system not being able to fight off the infection. As of today, he still has a tumor in his brain, but his platelet count is too low for any kind of treatment. His scans has been stable, so there is no new growth, but it isn't going away either. His next MRI is on October 20th. You can go to his CaringBridge site for more info - www.caringbridge.org/visit/matthewbarr. Thank you for considering this topic for your show.
eventide
Sep 30, 2009 12:00pm
Three of five shildren who survive pediatric cancer will develop another cancer, a chronic or terminal illness as a result of their treatment before they are 20. People think your child is off treatment it is all better. It just doesn't work that way. We need gentle cures, not little doses of big people meds.
Vasantishura
Oct 1, 2009 12:03am
Save our children from this killer disease. Help them. Give them a voice. They are our true heroes. Why, then are they not getting their worth for the battles they are fighting. Do we forget that we have kids too, or if not we were once kids too. Thimk how painful getting through a flu was for you as yr kid and yr family. Now imagine pain and worry multiplied over a million, billion times. That's pediatric cancer. Whar are we still waiting for? Whether voted as No. 1 or not, as a medical show its long over due that the No. 1 disease that kills children has to be shown, highlighted and awareness bought about. The children may not have a voice as yet, but they do have a right. It is up to you now to salute their bravery and give them their due. For all that they go through, this is the least we can do, bringing awareness to their situstion. To the Evil Monster called Cancer that wants to eat the little bodies of Children.
dld313
Oct 1, 2009 6:10am
Please highlight the lack of funding - there has not been any new treatments in 20 years!!!! Debbie M/o Alyssa Medulloblastoma survivor dx. 5/05 http://www.caringbridge.org/visit/alyssadennewitz
hollynsmom
Oct 1, 2009 6:56am
I am glad to see this at the top. I hope you let us all know when you chose which had the highest votes, and when you will have this on Doctors. September is past, which is National Childhood Awareness Month, our color is Gold. You didn't see stories or products bearing the gold ribbon. Yet these kids are fighting many different types of childhood cancer, and their voices go unheard. We hope you hear us, and will produce a show honoring all these kids and their plights. Thank you, Jennifer mom to Hollyn, my 3X cancer survivor at 9
Vasantishura
Oct 1, 2009 7:17pm
THE DEATH OF ONE MORE CHILD TO CANCER IS FAR TOO MUCH TO BEAR, AND THOSE WHO SURVIVE DO SO AT A SACRIFICE TO BOTH QUANTITY AND QUALITY OF LIFE. • There are 15 children diagnosed with cancer for every one child diagnosed with pediatric AIDS. Yet, the U.S. invests approximately $595,000 for research per victim of pediatric AIDS and only $20,000 for each victim of childhood cancer. • The National Cancer Institute’s (NCI) federal budget was $4.6 billion. Of that, breast cancer received 12%, prostate cancer received 7%, and all 12 major groups of pediatric cancers combined received less than 3%. • Cancer kills more children than any other disease, more than Asthma, Cystic Fibrosis, Diabetes and Pediatric AIDS combined. • Cancers in very young children are highly aggressive and behave unlike malignant diseases at other times in life. • 80% of children have metastasized cancer at the time of their diagnosis. At diagnosis, only 20% of adults with cancer show evidence that the disease has spread or metastasized. • Detecting childhood cancers at an early stage, when the disease would react more favorably to treatment, is extremely difficult. • Cancer symptoms in children – fever, swollen glands, anemia, bruises and infection – are often suspected to be, and at the early stages are treated as, other childhood illnesses. • Treatment can continue for several years, depending on the type of cancer and the type of therapy given. • The cause of most childhood cancers are unknown and at present, cannot be prevented. (Most adult cancers result from lifestyle factors such as smoking, diet, occupation, and other exposure to cancer-causing agents). • The average age of a child being diagnosed is 6, the average age for an adult is 66. • Three out of every five children who survive cancer will be diagnosed with another cancer, a chronic illness or another life threatening illness before they are adults. • Currently there are between 30-40000 children being treated for cancer. • Every day 46 children in this country will be diagnosed with cancer. That is two classrooms full. This number increases 1% every year. DO WE STILL NEED TO WAIT TO DO THE SHOW?????
jdesombre
Oct 3, 2009 5:45am
You shouldn't be having trouble finding information on this topic. If the subject of children dying from cancer isn't enough.....what about the families that have had to take matters into their own hands after science and medicine have failed them. After our son was diagnosed with cancer, we have met so many families going through the same thing we are. There is one family we have come to know whose 3yr. old son has AML. www.jaymun.com They sent him home one year ago August, with no other options. It was only a matter of days/weeks and they expected to say goodbye to their son. His father was not going to settle for that. He is not a doctor, but in my eyes he should be. He researched into natural supplements and has kept their son alive for over another year. His knowledge of different herbs/natural drugs is amazing for never going to school for any of that. He slowed down with his supplements and this horrible disease has yet again taken over his little body, leaving the child unable to breath on his own and fighting again for his life. Even though I am sure they hate to admit it, the doctors agreed what he was doing was keeping the leukemia away. Unfortunately, doctors aren't willing/able, ...maybe too scared....whatever the reason is they will not work with the father and his supplements and they have asked him to stop the one thing that has kept their son alive for the last year, so they can use their drugs to try to keep him alive. I believe, as well as the family, that we need the science and the drugs. What I don't understand is why this country doesn't look more into the natural medications we have all around along with them. Our children, if they do survive, will have so many long term effects from the drugs. I just feel like there are better ways to treat our children out there. For some reason this country is turning their backs on what I feel could be better options for our children. The drug companies can experiment with different drugs they have come up with, why are they too afraid to experiment with natural supplements?!
Devinfrank
Oct 7, 2009 5:02pm
Thankyou so much for doing this to bring attention to childhood cancer. My grandson was diagnosed with leukemia (ALL) in January of this year. He is currently being treated by St. Jude and doing great. We are grateful that the form of cancer he has does have such a good prognosis, but we have lost close to 20 kids that we have had contact with since January. More needs to be done to bring awareness and funding for this terrible disease. Devin (my grandson) is only 4 years old. No 4 year old should ever have to endure the things he has to endure. He will be receiving chemo for 2 1/2 years by IV weekly and takes po chemo nightly. It is hard to watch the side effects that he lives with (without a complaint) such as nausea, vomiting, diarrhea and bone pain, not to mention the fear of long term side effects such as secondary cancers, organ damage, and sterility. Thank God for St. Jude-a place of HOPE!! You can visit Devin's caringbridge site @ www.caringbridge.org/visit/devinfrank.org Thankyou again for doing this show!! Angie (Devin's Mamaw)
lcalbaza
Oct 7, 2009 7:05pm
Thank You! My daughter was diagnosed Black Friday 2008 at the age of 3 with Medulloblastoma, a brain tumor. It is crazy how much these children have to endure. More people need to realize that kids get cancer too. That very little funding goes to children's cancers yet 1 in 5 diagnosed will die. My daughter, Olivia is now 4 and is still in treatment fighting for her life. At 4 years old she is fighting for her life and doesn't know it. She should be playing and having fun. www.caringbridge.org/visit/oliviacalbazana
maidencalif
Oct 7, 2009 10:11pm
My name is Sinjin, I am 15 years old and I battled cancer from may 2007 till Now 2009. I had a bone marrow transplant and I had a less than 5% chance to survive. So many of my friends have died because of cancer and I think a show on Childhood cancer would help so many people see that cancer takes more childrens lives than any other disease. I have a web site at www.caringbridge.org/visit/sinjinandrukates. It is so hard to be a kid with cancer because you miss out on so many things and are sick alot. All the chemo drugs are so hard on our body that We almost have to die just to live and so many kids do not survive. please do a show on Childhood cancer. Us kids are getting left behind in reasearch money and we need to find a cure because 1 child that looses the battle with cancer is one child too many. with courage Sinjin Andrukates
Dannysmommy
Oct 7, 2009 10:36pm
My son was diagnosis with Acute Myeloid Leukemia on July 17th, 2009. He is 6 years old. The type of cancer that he has is a rare cancer in children. Only 500 children get it a year. It is mostly found in Adults over the age of 40. September was Childhood Cancer awareness month, but hardly anyone knows it. I think we need to bring awareness to this so that we can find a cure for childhood cancer. Our children should not have to worry about something like this. They should be out playing. We have been in the hospital since July 17. He started Kindergarten here, this is where we spent his 6th birthday. I have lost my job due to this and our 3 year old son is now living with my husband's brother and his girlfriend since we have been at the Sanford Children's Hospital in Sioux Falls SD, and we live in Lakefield MN which is 90 miles on I-90 going east. We know that we will spend Thanksgiving here and possibly Christmas. He is just ending his second round of chemo, he is not in remission, and we have one more round to go. Then if he is in remission, we go directly up to the University of Minnesota Children's Hospital for another round of Chemotherapy and then a Bone Marrow Transplant, that hopefully will reduce his chances of relapse. He is considered High-risk because of a FLT3-ITD Gene that if he does not get a bone marrow transplant he will relaspe. To read his story and the long road we have ahead of us please check out our website at: http://www.caringbridge.org/visit/hansendanny This is the hardest thing we have had to deal with. HE had no other symptoms except for bruising and petichia. The type of leukemia is a fast moving cancer, so there is a good chance that had we had him tested when we first noticed the bruising, all of the tests would have come back negative and we would of just thought that he was being a 5 year old boy and by the time we would have found it, it could have been to late. I want to work on getting the word out about Childhood Cancer. More needs to be done to educate the public and get information out to the Country. Cyndi Hansen http://www.caringbridge.org/visit/hansendanny
tbolan
Oct 8, 2009 7:22am
Thank you for considering this overlooked, extremely important topic. I lost my son Willem 2 years ago to Infant Leukemia. His prognosis was bleak and there was no viable treatment available. Even with a 100% matched donor for his BMT he relapsed only 1 week after returning home and died 1 week after relapse. He was 8 months old when he passed and 7 weeks when he was diagnosed. Most of the population doesn't realize that babies get cancer too. He never talked, walked, crawled, ate food, or even sat up. He endured high doses of chemo for the majority of his life and suffered seizures, mucositis or mouth sores and ulcerations in the mouth and throughout the digestive tract, extremely painful and prolonged diaper rash, and a host of other side effects and complications. I believe that childhood cancer is ignored because it is too painful for people to listen to, but it is too important for the children that battle and the parents and families whose lives are turned upside down. I miss my Willem, more needs to be done so other children don't have to go through what he did and so families don't have to endure what we continue to – the loss of our baby, our child, our son, and our future. Sincerely, Ted Bolan (Willem's Dad) Bloomfield NY http://www.caringbridge.org/visit/willembolan
charchar321
Oct 8, 2009 9:04am
Thank you!!! Finally, some awareness for our kids. My son is a cancer survivor, he was dx with osteosarcoma in September of 2007, at the age of 14. He has been very fortunate and is currently showing No Evidence of Disease but unfortunately so many are not so fortunate. No one ever imagines this could be their child, I know I didn't. Since dx, we have met and made some lifelong friends. So many have lost their battles at such a young age. NO child should ever have to endure this and no parent should ever have to watch their children suffer. I know the treatment for osteo has not changed in 15 years...WOW...unbelievable; but we can send a man into space. Our children are dying and the funds are NOT there. Millions of dollars and 3% goes to all childhood cancers. I could rattle off about 20 different cancers that no one even knows exist unless they've lived it. Did you know there are about 5 different types of leukemia-I didn't until my son started his battle. Hopefully your show will raise awareness and the Gold ribbons can be as prominent as the pink. Let's do this for our children, unfortunately, it could be your child. My son's story is at www.caringbridge.com/visit/dustinwarren
hpearson
Oct 13, 2009 7:04pm
I would like to see a show for childhood cancer. We lost our niece to rhabdomyosarcoma last year. No child should ever have to go thru this.
1concernedmum
Oct 20, 2009 11:32am
The last research I saw was that for every 6 research dollars every AIDS patient gets and for every 1 research dollar each breast cancer patients get, A child with Cancer gets only 30 cents. Each school day, 46 children are diagnosed with cancer. 1 in 330 children will develop cancer by age 20. Cancer is the number one cause of non-accidental death in children! The mortality rate is 25% within 5 years of diagnosis. I will repeat... Cancer is the #1 disease killer of American's children! 12,600 children will be diagnosed with cancer in the U.S. this year. 80% of children have metastatic disease at the time of diagnosis. September was Pediatric Cancer Awareness Month...the color of their ribbon is Gold....did you know that....... This needs to be known!!!!!! Their needs to be a fight like their is with breast cancer and with other diseases that are robbing people of their lives! These are poor children that are suffering! My friend and I have started a care package ministry for pc patients but we are only two.....More need to join the fight. Please help us get the word out!!
melkaiya
Oct 20, 2009 6:00pm
I am looking at the topics to the left here and cannot think of any topic more important than childhood cancer. How could this show not be done? I lost my nephew at the age of 20 this Christmas Eve from Chondroblastic Osteosarcoma. It was a 3 year struggle. He did everything from Chemo, Proton Beam Radiation, changed diet, Holisitc, Acupuncture and the list goes on. To go through something like this is unexplainable. While he went through this ordeal I got in touch with SLASH from Guns and Rose/Velvet Revolver/Guitar Hero as my nephew loved him. SLASH met my nephew and formed a friendship. They played music together and stayed in touch. I think if you decide to do a show on childhood cancer SLASH may be willing to speak. Here is my nephews website, please check it out and his journey. http://heathsupdate.blogspot.com/ My email is: Melkaiya@aol.com if you would like to reach me.. Thank you so much
hookemhills
Nov 24, 2009 1:25pm
I think this is an awesome idea. My husband and I have childhood cancer on both sides of our family. We often wonder how would we know if our child had cancer. We do not want to be worry warts but we know what a silent killer cancer can be. We would love some more information!!!
jdesombre
Dec 20, 2009 7:49pm
It has been over three months and still no sign of a show on childhood cancer. It appears that the Doctors tv show is going to let us down like so many others have. I don't know if you are afraid to face the truth when it comes to childhood cancer, but it is a reality that too many have to face. Why is it when October comes around, no one is afraid to speak out about breast cancer. I pray no one elses child has to face this aweful disease, but I do wish the rest of those that are fortunate had a glimpse into our world for just one minute. Maybe more would be done to fund research for pediatric cancers. Sincerely, A VERY disappointed parent of an innocent child struggling with cancer.
jmariep72
May 26, 2010 2:38pm
If you need information about pediatric cancer please go here http://curechildhoodcancer.ning.com/ As a member of PAC2 and one of the many who requested you do a show on childhood cancer I can tell you I am very frustrated with waiting. There are 46 families that heard today that their child has cancer some of the kids won't make it others will live with lifetime side effects and others will relapse several times and receive chemotherapy until their bodies cannot tolerate it anymore. I am also one of the 46 mommas, please see our Team Captain's post below or go to 46mommas.com. We have waited since October and can wait no longer again thanks for your time and we are eager to hear from your show!