I would love to see this. I've met this lady scuba diving in Cozumel and she has an amazing story to tell.

Showing this would bring much needed awareness to NF2. Becky is an amazing gal & is beyond inspirational. I am certain we can all learn a great deal about NF2 & even turn the wheels in the specialists heads and hopefully find a cure.

I have known this gal since she was a child. She is a walking miracle and an inspiration to everyone, especially those facing major health concerns. Telling her story would be a great opportunity to raise awarness of the fascinating yet devastating disease NF2. She has quite the story to tell. I have often thought she should write a book. I truly hope this does not become a missed opportunity for all the viewers and the producers of the show.

Jay, This would be such a great story to help educate everyone about NF2. Becky's story could inspire the world!

Becky is a tremendous inspiration to all you have had the pleasure of meeting her. My wife and I have known her for many years now, you can rest assured that her story is important and inspiring!

I also have NF2 - I have had 1 brain surgery so far but still have 2 more tumours on my brain. I have lost hearing on my left side and also have balance issues. The other 2 tumours are on an optic nerve and the nerve that controls facial movement. I also have many other tumours thru my body (shoulder - arm - spine). Rebecca is amazing and inspirational. While I have never met her (As I'm in Australia) we have been comunicatiing and she has given me hope! Good luck Beck!!!!! - Trent (Aust)

Becky has survived so much from the time I met her as a student in college. She managed to complete her school year despite undergoing cancer treatment for Hodgkin's. Her voyage through NF2 and the resulting complications have made her even stronger.

This would be an amazing and inspirational story. I hardly know her and from what I know and what I have read in local news papers she is a medical miracle. I generally don't go out of my way to recommend stuff like this however this is a story made for TV. Someone who was completely normal went from Normal to completely death in a short period of time. She has a tough time seeing and walking and from what I understand most people who have such an advanced case are bed ridden. Rebecca can talk, walk, run, and communicate as though she doesn't have the disease and I think that is in large part to her staying active and working to bring NF2 to the public. An Amazing story which would make great inpirational TV.

good idea

This would be a great story as a person also with nf2 and have under gone 3 brain surgeries and gamma knife..This is a big disease with little awareness..

Your own family and friends can learn and take inspiration from you. May God bless you kiddo!

My twin brother, Patrick, has NF2. He has been fighting this disease his whole life. My family has many questions because there is so much unknown about NF2. We understand that there is no cure, but some answers sure would help!

I like your attitude. Those brainstem compressions are nasty stuff with all-l-l the multiple side effects. Yes a show is a good idea and maybe a popular science journal can pick up on it too.

This would be a great idea! I have had 8 surgeries and had radiation twice. We need public awareness, general practitioners need to be educated about our illness to diagnose early and we need funding and research as there is no cure. It is an anxiety provoking illness as we are constantly watching and waiting for the next tumor, or surgery etc PLEASE SUPPORT THIS CAUSE!

Please tell the world about the devestating issues associtaed with NF2.

We have and will have you in our prayers. Your story need to be told. We admire you and all that you do. Our very best, Joan and Mike Krawcheck ps I did vote!

My beautiful daughter has been on the NF2 journey for 10 years. Daignosed at 14, she has had 8 surgeries and 2 bouts of radiation treatment. With a large number of brain tumours and countless spinal tumours, the future holds many more surgeries. This silent illness affects not only hearing, but also vision, balance, nerve damage and cognitive function. The effects include physical, psychological and emotional trauma, not to mention extended periods away from school/work and social isolation. We would like to see the profile of NF2 raised and more research undertaken to find a cure, or at the very least a way to slow down tumour growth. Becky, we hope you make it on the show and bring your story to the public. All the best for your surgery - Treacy (Australia)

Becky has been an inspiration to me for a long time now. I've been a part of Becky's life since she was around 8. She became my niece when I married her Uncle Al. Her perseverance is what makes me most inspired. Sharing her story will bring NF2 to the forefront.

Thank you everyone for your votes and wonderful comments! I especially appreciate those who have shared their NF2 stories and further explained how it affected you or your loved ones. That is a really great point treacyb brought up - NF2 affects more people other than the patient alone.While I was fortunate to be diagnosed in adulthood, many are diagnosed as a teen or child and it is quite an emotional ordeal for parents to deal with as they are laden with the burden of heavy decisions to make. From my adult standpoint, my husband has been equaily affected as he has had to totally relearn how to communicate with me, help advocate/setup appointments until I was readjusted to a deaf self, take care of important personal life issues during my moments of tramua and "brain fog", help to problem solve/implement strategies to help me with memory loss, contend with my emotional dissappointment at physical loss and much more all while grapling with the uncertainty that exists in what time together we have. After I had cancer back in 1993, I saw the emotional toll it took on family members. It seemed as though in a way, the cancer was more difficult for the caregiver than it was for me as patient. I am sure in many ways, NF2 is more difficult for spouses, parents, and partners. As treacyb states, there are also psychological and emotional effects as well as physical. Those are the unseen which can be just as burdensom as the physical losses. When I compare the NF2 to my experience with cancer, the cancer for me was much easier. After 6 months of chemo followed by radiation, it was over - I was in remission. Sure there was the yearly checkup and the waiting out to be clear at the 5 year, 10 year, and 15 year mark. But as time progressed every year, my chances of staying cancer free became more and more favorable. Also, after the cancer I was able to go back to my normal life and have the same abilities. It is not so for NF2. For one, there is not a cure yet so it never ends. Therefore, one must develop the ability to persevere again and again and most especially adapt to major changes due to the physical losses. Further, because there are so many tumors and they continually grow making future uncertain, one must learn to really live in the now and make the most of life. Life with NF2 is very mentally draining so we tend to seek out positive forms of mental relaxation/endurance to survive. I think all of these aspects are important to highlight as it is a large part of understanding the impact NF2 has and why it is more than a disease that merely causes deafness. Knowing about and understanding this disorder, will help support continued research to find better treatments or a cure and also enable the entire medical community to correctly diagnose patients, communicate with them, care for them, and also refer them to the appropriate specialists. Thank you very much to the producers for giving us an opportunity to present this idea to your show and for your sincere consideration.

May God bless and keep you. I pray that your surgery gets produced and we can raise awareness of NF2.

I too share the same condition as Becky and several of the others that have written these comments. Most of us have never met.Although we ovten find ourselves traveling to the same surgeons or specialists just because of their knowledge on NF2. They are few and far between. There is a severe lack of awereness of NF2. I myself have had 4 brain surgeries this year alone.At age 27 I have been un-able to walk since a stroke cased by an NF2 surgery 1 year ago. I'm now unfortunately looking forward to undergoing yet another surgery. This time it may leave me deaf. Just as most other people with NF2. It's a hallmark sign of NF2. There are many others. I believe Becky can bring out to you exactly what NF2 "means". She has had or seen most of these problems.. I believe in you to spread the woed.Awareness can bring on true miracles. We need funding for more research. Our Dr.'s also need newer and better training. Your help can go a long way..

I have to say I have no ideal what NF2 is and well kinda don't want to find out. Not a grouch and not that I don't care but I too have someone in my family who has something where tumors grow. That's how I came across this. My child has TSC. With this she too is being looked at for Brain surgery. I think they really need to look at how do you prepare for this and how do you set thing's up for families who undergo this. I know that both cases are different but so are every brain surgery. I can only imagination what it could be like for you or anyone who has done this already. My child turned 3 this year and on a hand I could count how many thing's are normal for us. We try so hard but have really NO way of getting her ready for this. How can you tell a 3 year old who don't talk and dont understand most what you ask of her to understand we are going to do brain surgery to fix her seizures? WE need help! Also how do you handle the after math of this?