My name is Stephanie. I am 33 years old. I have a genetic diorder called Neurofibromatosis. I am in pain evey day of my life . I was recently in a car accident and the increased pain has been over whelliming. I am tired, depressed and very much so overwhelmed. No one ever knows how to help or what to do. I am a single mom struggling to raise two kids on disability payments.    I take may narcotic persription drugs (as directed) but send much of my day in bed unable to move or to drugged to drive. This is no way to live or parent. I am hopeing someday to be off medication and feel half way normal.