i have a 6 yr old who was diag. at 5 days old with Hyper IGE,Degeorge,Verlocardiofacial syndromes.And with the doctors telling you have a very sick son and to ready for the worse...and having 21 specialist come in to see him we where told that they only seen this once but the infant didnt make it thur there infant mos. soooo im writtin to you. i need to find a specialist somewhere...my son gets chronic sinus infections and has serve ezema. and other issues too long to list. so we are looking for a doc to help us, we had a great one but like all the great ones they leave to do research and raise there children..im so affraid of losing my lil man....we been thur ALOT......please help me help him... Also i've looked everywhere for information, I only get a little information and we dont know of anyone with these syndromes i know by reading theres only a few out there, like only 6 in the U.S.

if you need more information just ask. his medical issues is a long list, and i've just put him in public school with his sisters which they dont have health issues like there brother. please help..... Thank you all....