About Me

In 2006 I woke up one day with a massive headache that has never gone away, then other symtoms came, my eye would droop until it was almost closed and then the corner of my mouth would also droop this is when the more severe my headache become the more my eye closes, it is only on one side. I suffer from memory loss, speech problems and I get sharp pains that last for a couple minutes and I look like I had a stroke. I have seen several doctors for this and I have had 4 MRI's, EEG, blood work...etc and I take ALOT of medication and nothing works. They call it "Daily Chronic Headache Syndrome with Migraines". So basically I have a headache everyday.

I am a strong independant person and I try so hard to deal with it I do what I can to enjoy life but it's so depressing and I have been having a little trouble dealing with it lately, infact I have been having Alot of trouble dealing with it. I feel useless sometimes.  I have a great family, my husband understands and my children help out but it's getting to the point that I just want to feel Normal again! I am not the same energetic mom that would laugh, dance around, be outside all the time, work outside in the garden, I just miss being ME!! Could this be something beside Chronic Daily Headache Syndrome? I am tired of trying new meds, getting no where, still having the pain, people looking at my face, feeling stupid because I have to be reminded all the time because I forget and having trouble speaking. The new meds from Canada are not even working! Now What???

Recent Blog Posts

Just Tired Of It! Worried About Son!

I am getting no relief at all for the increase in meds. I saw my Psychiatrist yesterday and we talked alot. She seems to think that I do need to find a new Neurologist because she thinks that I could be having mild seizures with my daily headaches/migraines. This would explain the facial drooping. I will mention it to my Neurologist and I am also going to be looking for a new one just incase he does...
read more

Pain, Pain...Go Away!

The pain is getting worse, not any better! When I saw the Neurologist, he said he's doing his best and to increase the medication. I have and nothing is working! I am so tired all the time and now I have been taking my blood pressure.  I just started to not feel right, besides having the headache I just felt really bad. I took my blood pressure and it was so low. Right now I...
read more

Profile Comments

Add Your Comment!

Log in to leave a comment or Create an account

Trophy_small
ElizabethW

Hi, I was just thinking of you, how have you been.

Liz :)

Trophy_small
ElizabethW

 Hi Mcarr,

I was just readying about your headaches and the symptoms you are having with your face, it really sounds like you need to maybe think about getting a second opinion. As you said you have a lot of concerns that this shouldn't be happening to you, listen to you concerns I would if it were me !!!

Take care, Liz :)

Trophy_small
juli1004

Hi~

I was just wondering how you are? hope you are doing well...

Trophy_small
juli1004

thank you but i already have a doctor and neurologist. i have taken medication for my headache but it didn't work so i don't want any more medication anymore. i'm just frustrated that doctor still can't figure out what's wrong with me. as long as my doctor doesn't ignore me. i'm going to stick it out for a awhile. i'm taking vitamins for the headache and i'm feeling a lot better than i used to and since i'm off the medication now. i feel much better but i have problems with back pain, neck pain and numbness and tingling. a

mcarr

I am really starting to get concerned because of the facial drooping and the memory loss that I do experience. I have to be reminded all the time to do things and still sometimes I forget or I will put something away and then I can't find it even tho I just put it away.  I have the tingling in my feet and hands and I had a stress test done because I was having chest pains and pains running down my left arm. I asked my Neurologist if it could be medication related but he said no. So the only thing I could think was it was my heart. But I passed the stress test. I get piercing pains in my head that last for a few seconds and they just come out of no where. But the headache every day and the drooping of my face and the closing of my eye has me really concerned.  All my Neurologist said was that this is not new.  But to me there is something wrong! My face should not be doing this, I should not be having a headache every day! I am waken from a severe headache in the middle of the night or when I do wake up...I have a headache. If I wake without a headache...by noon I will have a headache. I am never without a headache. And all they do is put me on more medications...increase the dose!

I am so tired of feeling useless, being in pain...I just want to be normal, a wife, a mom and a friend!!

Pamjones

Hello mcarr i am not a doctor or nothing but i would like to tell you from experience, i myself had some pretty strang things going on with myself for years headaches, weakness on one side no feeling on the right side of my limbs and numerous other things test after tests were done finally after seeing differents neurologists one that actually listened to me diid i finally get help and answers. I myself was diagnosed with MS i am in no way saying that is what you have i am mearly saying that maybe it is time for you to see a different neurologists or have different tests done maybe it doesn't have to do with your head perhaps it is your neck i don't know but i would look elswere

 

 

                                                                Your friend Pam

mcarr

SusanneAngelina thank you for the information. I am always looking for any information to help with this pain.  This will be short because I am having a bad day. I wake up lately with the headaches and they seem to get worse as the day goes on.  I am just tired of all the medication they continue to give me and nothing seems to work. I have tried the pressure points and it seemed to make it worse. I would love to have some relief. I feel useless...I don't work so I am no help there, I have days when I can't get out of bed...so no help there, so I feel like I am a failure to my family. I just want to feel normal again, I want to be able to take care of my family and enjoy life again.  I am really tired of taking pills and nothing working. I will be looking for my 3rd Neurologist if Monday when I see my Neurologist, he does nothing but put me on more meds.  I just feel like he's missing something!  I have days when I need to go to the hospital but I can't afford the co-pay. With just my husband working things are really rough right now. Well, we will see what happens.  Thanks again for the information. I hope you find some relief also. I pray every day that someone will find something for all of us that suffer from this.

SusanneAngelina
Sorry to hear about your headaches. I also suffer from cronic Migraines and muscle tension and stress headaces. So I to am also in constant pain and understand how you feel. I used to go to a doctor in Connecticut. Neurologist. Drs. Alan M. Rapoport ( the one I saw) and Fred D. Sheftell are the cofounders and codirectors of The New England Center for Heachache an institute devoted solely to alleviating the pain of chronic headache sufferers. They wrote a book called Headache Relief. You might get some benefit from reading it. I was so bad a few years back that Dr. Rapoport hospitalized me two times. They have a beautiful suite in the hospital in Greenwich. It can be expensive if you don't have insurance to cover it; but it is definitely worth checking it out. At least try to get the book. I bought it, but I believe you can find it in your local library. I have had headaches for 29 years now and they sure can wear you down. I also have other medical issues, but I'll get into that another time. Hope this is some help to you and feel better!!!! SusanneAngelina Write back and let me know what you think.
mcarr

I was getting Migraines when I was in my teens but they weren't often and it does run in my family. But there is also seizures that run in my family.  So far I am the only on that has this disorder Chronic Daily Headache Syndrome with Migraines.  My son is starting to have issues with headaches so I have him seeing a neurologist. I have a pending case for disability now.  I have not been able to work since 2006. 

It must be hard for you having to walk the dogs with your chronic pain, do you have any help? I guess that is why I love my cats, they are indoor cats.

I guess I am just tired of people telling me that I am depressed and it's just tension or the doctors putting me on different medications, when one doesn't work they try a different one and so on. Right now I take 9 in the am and I take 3 in the pm., from beta blockers to channel blockers. My memory is not good, I have slurred speech and if I bend over to do things it's instant headache. I went to court after my denial for disability and I went there with a massive headache, eye drooping and I was denied again! Even though there was people there that said I WOULD NOT be able to work because of all the time I would miss, most companies will only allow 3 days per month and I was way over that.  Well, I am now waiting for another date. 

saleha77

Hi! I never got migraines until I was 28. During the first few years I kept battling multiple Drs./therapists. They kept say it was 'stress headaches'. GGGRRRRR....I knew better. Then out of the blue,my mom suddenly says,"You know MY mom used to have migraines so bad." AGH! Why did she not tell me this years earlier? Hormonal migraines are hereditary. So as soon as I told the Drs. that I was treated differently.Of course back then,nothing helped."Triptan' drugs were not legal in the USA yet.

I have never had any issues with my eyes drooping and I also never get auras like most people.

As for my pets,I wished I only had 1 dog.Not that I don;t love my dogs but they are a lot work.The worst is,they need walking and I have issues with chronic pain(I am disabled if you did not realize it).

 

» All comments
» Comments RSS

mcarr

Mom_on_a_good_day1_medium

My Details

My Friends (6)

saleha77
saleha77

Single mom,divorced in 2000, disabled since 2003,one son 14,1 cat...

Brittanybb
Brittanybb

 

Trophy_small
juli1004
juli1004

Hi! I'm Juli. I also have a korean name (Yoon...

Pamjones
Pamjones

I am 43yrs old, I am busy raising my niece...

abundantlife
abundantlife

  Hello all, my name is Aquil. I am married...

See All

My recent comments

Trophy_small
melissaw72
To :melissaw72
On: Migraines (Post)

I have the same thing...when I have a headache my eye on the right si...

Trophy_small
juli1004
To :juli1004
On: desperately need help (Post)

I'm sorry....I just re-read what you wrote...Ask your insurance compa...

Trophy_small
juli1004
To :juli1004
On: desperately need help (Post)

I know it get frustrating when you have no idea what or why this is h...

Trophy_small
juli1004
To :juli1004
On: desperately need help (Post)

I have had been thru it all and they never find anything. My Neurolog...

mcarr
To: mcarr

I am really starting to get concerned because of the facial drooping ...