Mandee  I was so excited  ( I guess thats what you would call it...) to see people that have the same crazzzzy issues that I have as far as sleep eating goes.  Many a mornings I will wake up with fudge rounds in the bed and pudding cups and spoons.  I dont find that I stand in the kitcken and eat this stuff.  I always wonder back to the bed.  The other day  found a candy bar on the floor that I did not eat all of.  It's just crazy and can be embarrassing and i thought for sure I was the only one who does this.  My husband thinks it cute but I hate it.  I am just glad to know that this really is a condition and I am not just some fat over eater who eats at night as an excuse.  Now if I could just go after the carrots...............

Ok trying this for a second time. I am glad I dont sleep walk and eat. I would weigh twice what I weigh now.  I would like to sleep exercise though.

Mandee,

     I am a Registered Sleep Tech, and I find your story very upsetting.  Where did you have your sleep study?  It's pretty hard to misdiagnose someone with Sleep Apnea.  If in fact a sleep lab gave you a misdaignosis, they should be shut down.  Your condition doesn't sound a whole lot like narcolepsy.  If you really have sleep apnea it would explain the problems you are having too, extreme fatigue, needing to take a nap, falling asleep while driving, and parasomnias including sleep eating and sleep walking or talking, and if you do have another sleep disorder, until that is adequately treated a diagnosis of narcolepsy can not be made.  It is much more common due to prescriptions, or another sleep disorder to be misdiagnosed with narcolepsy, then with sleep apnea.  Was your MSLT done in the same lab that misdiagnosed your apnea?  I speak at national sleep conferences and if this is really happening something needs to be done, because reading a sleep study for sleep apnea should be obvious to the Recording Tech, the Scoring Technologist, and the Diplomate of Sleep Medicine.  It would be very hard for sleep apnea to be seen when it's not there by all of these personel.  If your diagnosis is wrong sleep apnea vs. Narcolepsy, it could mean major health problems down the road, and take years off of your life.

     On a personal note, I sleep walk, sleep talk, slep eat (occasionally), and have sleep sex, since I started taking Ambien.  The Sleep walking and talking I've done since a child, the others are new.  This is not uncommon with Ambien.  All of these disorders occure in Slow Wave Sleep (deep sleep) which we have a lot of as children and less and less of as we get older.  So these disorders a lot of times improve with age.

Thanks, Michele 

hi mandee

i used to sleep walk and eat i did it from 12 to 18 it used to drive my mum nuts she would get up  each morning to find renaments of food and wrappers all over nobody really knew why i started or suddenly stopped but lol i used to eat stuff id never dream of eating when i was awake  lol wonder i didnt give myself nightmares too

hope we can  be freinds

aj

mandee...Can you give an update? I want to know how the zyrem double dose worked for you. My daughter's doctor prescribed zyrem recently and so far it seems to be working great!! Did you ever get anything to work for you?

I too have excessive daytime sleepiness. My symptoms started way back in elementary school and my teacher would send home comments to my parents that I was just plain lazy. It wasn't until I was working as a police officer in 2006 when I noticed something was wrong. I started to fall asleep in the middle of my shift in the cruiser! I would pull over in a dark spot and snooze for 15 minutes to 1/2 hour. Mind you, I worked the swing shift 6pm-2am and I thought it was just my body trying to get used to the shift. But, on my days off, I would feel as if I didn't sleep at all after an 8 hour night sleep. I went to a neurologist and he advised me that I had insomnia and gave me some caffeine pills. I didn't like the way they made me feel, so I relied on 5 hour energy drinks, until I got immune to them. In 2007, I got to the point where I became a liability with my symptoms and decided to retire. In 2009 I met with my 4th neuro and he put me through all kinds of testing, especially one for epilepsy. I seeme to have a problem with carrying on with conversations and memory. He put me on depakote and did another eeg which showed a little spikeage. After that, I went for a sleep study and it showed my oxygen levels were extremely low and was put on a CPAP machine. I have been using the machine for 3 months and don't see a difference. My doctor thinks I have narcolepsy but needs more evidence. I can totally understand what you're going through an I empathize. Narcolepsy, insomnia and even epilepsy takes so much out of a daily life. I am now considered disabled due to the fact that I NEED sleep at least 3 times a day!! Best of luck to you and let me know how you are doing.

I also have excessive daytime sleepiness and went for a sleep study. The first one showed sleep hypopnia, where the O2 levels a re low. The next time I went I tried a CPAP machine to see if that helped. It has extended my night time sleep, but I am still exhausted during the day and need naps through out the day. My neurologist thinks I have Narcolepsy but isn't 100%. I have memory loss and daytime foginess all the time. It is really hard to go about daily living like this.