krimsonmom's Blog

reaching out for the life persever

well i finally felt vindicated , saw the director to my local va , i had mentioned my prior conversation with my dr i was so livivd after my appt , took the psycologist to get me some help for the pain after i had discussed with my dr our treatment plan and how the specialist discussed keeping me on some kind of daily regimant to avoid more out breaks because to have 2 shingle out breaks with in 6 weeks there has to be something more i went with all my research at hand and he just didnt want to hear it his response was the medications should help with the pain and stop by when you have an out break ........i've been fervant on learning what i can and i've just lost a freind to similar symptons shingles because it effects the nervous system it it reaches the brain ( its a virus ) it can also cause ensephilitis ( excuse my spelling) and when i expressed i want to get to the bottom of this and manage this and his response was i was just unfortunate to be one of those people who got shingles early in life .....that was it i'm suppose to spend the rest of my life on 24 to 30 pills every other month til i die and just except my fate , no i'm sorry not me been to close to dying so many times to sit here and just eccept this at 36 yr i have 4 kids graduations to go to 4 weddings and who knows how many grand kids ( if there anything like me they'll be tons lol ) but in its due time this was wensday , thursday i go with my husband and saw the director she could not beleive my treatment ( the psycologist couldnt either) she plainly said treating only the symptoms will end my life early and we cant , we wont have it ( good thing she's had the chance to meet my younger kids) so as of now i have to write all my episodes and how everything came to play so we can prove the service connection ( if i do have an episode and worse case sanario my kids will be taken care of ) i'm scheduled to see a neurologist from there we will see a gastrologist ( shingles can cause lowering of stomach acids making it difficult for digestion which means i dont get the nutrients from foods i eat weakening my immune system triggering more episodes after we will see a dermatoligist  my original dr (not the director) it was like pulling teeth to get him to schedule my appt with a neurologist in fact my last episode he sent me to a rhumatologist and he was stumped why i was having nerve damage ...................i did get the green light on my trip out of town for my hs alumni get together in fact her words it would be good for me , i need to pull out of my depression because it makes this worse i feel so enpowered , i still hurt but with my records from my duty station here now showing even then i complained the lab work showing the dormant virus the amount of times i had gotten sick its been a hard road and i'm not done still have a long road ahead of me but for so long i have felt like i was drowning and nothing to grab onto and i havent stopped reaching out i am not going down with out a fight no matter how low i've gotten and i've hit pretty low with this but if i survived loosing my son splitting up with my husband only to reconsile 2 yrs later and rebuild from litrally rock bottom this to shall i over come some how some way i guess it does pay being suborn headed , lol well i'm off for now its 3 am and my son is still awake ( just found out ) going to let him crawl into my room and watch a movie just him and me ........find my kids are staying up later and later ( its easier for one on one mommy time ) and it big distraction to my restless night .....now it comfort time for them to feel they are watching mommy and for me to get any valuable time with the people who i am fighting for happy fourth every one