I have been living with RSD since 1999 and it is a very dibilitating disease. Just finding a doctor to diagnose it took years. I have RSD in my left ankle and I have had countless casts put on because doctors just didn't know what else to do. I have had doctors tell me that it was all in my head and I just needed to get over it, that I was a drug seeker, that I was just looking for attention, that I was just pretending. As a person that suffers great pain, this just about crushed me. I began to question my own sanity until I was referred to a pain management doctor. Walking into that office on July 3, 2002 was my freedom day!! I was told that I wasn't crazy, that I had RSD. RSD is reflex sympathetic dystrophy and untreated can lead to devasting results. I was put on medication and had several rounds of nerve blocks. Unfortunetly, none of these worked for me. I am a veteran and went to the VA hospital in my area and dealt with pain management for several years exhauting every known treatment known for the diaease. Last month I had a spinal cord stimulator put in and for the first time in 10 years I am living pain free. What a difference to the quality of life I have. The recovery from 2 major surgeries has been trying at times and I had to sleep in the recliner because I couldn't lie flat, but I would sleep in a recliner for life if it meant a pain free life. I am so grateful to all the doctors who helped me find a way to deal with the pain and for the advancements in modern technology!!
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The Chi Machine really helped another gal I know. Since it's your ankle, you would want to use the Chi Machine with just one ankle. You could also use it with your wrists. Try sitting down and putting your feet on the chi machine and if that feels Ok you can do it that way.
I too have RSD. I have been living with it since 2007. I have in my Right and Left hands. It seems to pop up after any really severe amount of swelling in my body. I take daily medications for it, and I thank God that for me, that does the trick. There are some days, that are worse than others, and if I don't get my meds on time, I am usually in pain, but for the most part I got lucky.
I am really glad that you found a solution for your RSD. It sounds like we had the same type of experience at first, but you had it worse. My doctor just told me that there was nothing wrong and he didn't know what to do or why there was pain, and then he and an ER doc thought of RSD which was eventually confirmed.
Brianna
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