About Me
I am 48 years old and 8 years ago I was diagnosed with Myasthenia Gravis, which is a neuomuscular disease. It falls under the Muscular Dystrophy Assoc. and they do a lot of research and help. I was just married when I found this out. I am on oxygen due to 30+ years of smoking and now I have COPD, with asthma and bronchitis. I am very proun to pnemonia's due to not having a immune system due to the steroids and other meds, I have to be hospitalized in the I/C/U several times and the last 3 times the dr.'s thought I was going to die. I have a very wonderful wife and believe me, I really need someone to help me with all my meds, which I no kidding take over 20 pills a day. This takes a lot of work and special care to rember what pills I take when. I never use to take pill for anything and was healthy as can be before that one day that I woke up and my eyelids would not open. I now also due to takeing the Predinisone (steroids for my lungs and Myasthenia Gravis), have severe Osteoperosis and diabetes and severe sleep apneia. I will break a bone just from coughing if I am not careful. Since I can no loger do the physical things and sports that I use to do and love so much like bowling, fishing, Volleyball, Baseball, etc. you name it and I loved doing it. I just started bowling on the pro tour right before I got my disease. Now I love watching The Doctors, Nascar, Judge shows, and working with flowers. I am very limited on what I can do becuase of the severe double vision, muscle weakness, and being on oxygen, but I do what I can. But I do love socializing when I can which I don't do much because of not working and not being able to drive or go anywhere, my resources are limited, and I also love spending time with my wife and family, and I love doing things with them like going to Sea World, Zoo, or anything that I can do. I am very outgoing and friendly so having to be confined to house is really hard as well as all of the other drastic live changing things that I had and have to go through. I try not to let all of this get me down, but sometimes with dr. appointments every day of the week if not sometimes 2 dr.'s a day or tests, I get medically burned out sometimes. Because of the diseases and all of the complications from all, my live has changed and the dreams that I once had for myself were tossed out the window overnight, and I had no control or nothing to say about it. But I do all I can now to take one day at a time and I try to find things I can do to make me feel good and positive about myself, so I do try to keep positive and I keep going on.
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To :jeffpenwell
On: This is my wife at the ocean which we both love. (Photo) Lori, my wife and everything.
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- jeffpenwell says:
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Lori, my wife and everything.
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