About Me

Hi folks! My name is Jill Osborne and I've been an interstitial cystitis support group leader since 1993 and now run the largest support group in the world through the IC Network website.  I was diagnosed in 1992 but am one of those few patients where IC is genetic/hereditary. Most women in my family also have bladder issues. 

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tessenna

I was diagnosed four years ago and was treated for about a year with elmiron and vesicare and felt better but now all the symptoms are back and keep getting worse... I dont know what to do Im trying to continue the normal life as much as I can for a 25 year old, but with no insurance I really dont know what to do. Please any comments would be great. Also is it wierd that I have all the symptoms except pain of IC

realmedics

Hi jill my name is Jamie and I left out one part of that when I wrote it yesterday.  I was also diagnosed with intersricial cystitis and I did do treatment cause my docs said that most people with endometriosis have this too.  So I did treatment for 4 weeks which included going to the dr 3 times a week to do the treatment I didnt ever help.  I dont know what to do know cause they told me after my hysterectomy that there was no chance of it growing again.  But I still from time to time get the same old feeling I thought my life was through with.  So I just wanted to say thanks for the comment.  Where do you live?

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