The information the docs gave toay on Lyme's Disease was good, but far from complete.  I am now post 15 plus years with Lyme's Disease.  It went 5 plus years misdiagnosed by the NJ and NY doctors.  I never saw the bulls-eye rash even though I was well informed regarding the disease and its' symptoms.  The Internists and Rheumatologists diagnosed me with Lupus, Arthritis, Rheumatoid Arthritis, Giant Cell Arteritis and other illnesses.  The Lyme titer was never present in my blood.

At age 47, the disease was finally diagnosed by an Infectious Disease Specialists by finding the Lyme titer in my urine (the titer hides).  It was off the charts as being extremely high.  Once confirmed, a spinal tap was done and the fluid did contain large amounts of the titer.  Additionally, a Spec Scan of my brain was done and the disease infected 5 parts of my brain, ie both temporal lobes, both frontal lobes and the parietal lobe.  Several courses of intravenous antibiotics were given, but it was too late.  I developed seizures, bradicardia, drooling, speech problems, brain to hands, legs, mouth and heart connections were compromised.  Many nerve ending were inflamed and a severe case of fibromyalgia was diagnosed.  (FYI every person I know who has fibromyalgia also had some degree of Lyme's Disease...they go hand in hand).  I had upwards of 20 hospitalizations including 2 stays at Kessler Institute for intense rehabilitation for walking, talking, hand use (typing) as well as cognitive rehabilitation and was picked for a cognitive study conducted by Kessler Institute.  I also lost my gall bladder due to excesive antibiotic use. I was declared permanently disabled in 1999 and continued to require hospitalizations due to severe pain.  I was on morphine and other narcotics.  The trauma to my body with pain and muscle spasm was so severe that I was actually hospitalized and placed in intensive care because the intercostal muscle in my back spasms so bad that it pressed on the left lung causing me to have an oxygen saturation rate of someone with advanced emphazema.  

Lyme's disease is serious business and misunderstood by many doctors.  I now live in NV because the dry air does help with my pain management, but I am still disabled from this horrible disease that still needs much research and the docs need to be more informed.