Ok so yesterday my 9 month old daughter had her pre-op for her cleft palate repair and possibly the laser removal of her blockage above her trach. This will be her 6th and 7th surgery since birth. Surgery is scheduled for June 24th. I am looking for more families who have children with similar challenges that my daughter struggles with i love to hear of other children going through the same struggles as she faces everyday. Abagail has Chronic Respiratory Failure so she has a trach, she is gtube feed and had a Fundoplication cause her acid reflux was really bad, had a cleft lip repair but still has the cleft palate, she is almost blind and suffered hearing loss, she also has contractures of her hands all the way to her shoulders, and well just many other abnomalies