About Me

I am a 30 year old female with two precious children.  I have a liver disease (intrahepatic cholesastis) that I was born with and within the last three years I haved been diagnosed with COPD.  I have chosen to live my life happily and like there is no tomorrow because even if you dont have illnesses like these up against you there is no telling when you can walk outside and be hit by a bus or be shot.  My youngest child that is 6 faces a life of doom every day although he knows no difference.  He has congenital myopathy, epilepsy, he is autistic and is very developmentally delayed.  I feel alot of the time this is because of me and the medication I was having to take at the time I was pregnant with him to keep from going into liver failure.  Life is rough, you are dealt with a hand of cards and we play them the best way we know how.  I have managed to keep off 100 pounds for 3 years (I used to weigh 250)... i go and exercise every day and try not to gain anymore weight.  Its hard exercising when my lungs dont want to push the air in and out but I hate the way my body looks from losing all the weight.  I know things will never be the same for me... but I also know and I try my hardest to remember that I have 2 beautiful kids to struggle for and a beautiful family that pushes me everyday not to give up even though some days I have to sleep all day because I have pushed and done too much for too long and need a break.  Life is the highway that I want to ride to the fullest with all of those that I love!!!

bagwellbaby

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