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Living with Sickle Cell Disease
Dr. Rachael Ross didn’t realize that her sister, Rebekkah, had sickle cell disease until she was a sophomore in college. Rebekkah had asked her mother to keep her diagnosis secret from other members of the family.

Despite Rebekkah’s daily pain, she went to medical school and strived to live her life to the fullest. She wanted to have a family. But she miscarried and her organs shut down, due to complications from the disease. She was 35.

 
“Rebekkah chose to handle sickle cell by herself because she really didn’t want anyone to feel sorry for her,” Dr. Ross says.

Dr. Ross shares the story of her sister's silent battle with sickle cell disease and what she wishes she had done differently.

ER physician Dr. Travis Stork explains that sickle cell disease is an inherited disorder that affects the red blood cells.

OB/GYN Dr. Lisa Masterson explains the risks of pregnancy for people who have sickle cell disease.


Is someone you love at risk for sickle cell disease? Learn the difference between having sickle cell disease and carrying the sickle cell trait and why genetic counseling is so important.

• Learn about GirlTalk , the foundation Dr. Ross and her sister created to help teach girls in their hometown of Gary, Ind., health and life skills.

 

A Son with Special Needs Inspires a Teacher's Greatest Lesson
As a high school physics teacher who is clearly passionate about his job, Jeff Wright inspires his students every day. But, every year he teaches one lesson that is likely to stay with his students for the rest of their lives. It's a lesson Jeff learned from his 12-year-old son, Adam, who has a rare genetic brain disorder called Joubert syndrome

 

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