About Me

Hi my name is Jamie, I am 32yrs old and I was born was born with neurofibromatosis type 1. When I was yunger it really didn't affect my life too much. But now it seems to be causing more problems. I found out late last year that I have tumors growing on the nerve roots in my spine in the lumbar area. Some days just sitting or standing for a few mintutes is a chore. I get tingling in mostly my fingers and I have problems with my right knee so I wear a brace to help keep it steady. Outside of all of my health issues I love to listen to music. My favorite group is The Jets, has been since I was 9 years old. I love to read. Right now I am reading the Vampire Huntress Series by L.A. Banks. She is sooo good. I like to draw, but I haven't done it in a while. I also love watching movies, My favorite is The Notebook ( I'm not big on love stories) , but this one won me over.

Recent Blog Posts

Migraines

Today's the first day in a little over a month that I've had a migraine. I've had them since I was 17 and I always hate it when I get them.With this one the light is making it worse. Put the fact that my back is hurting on top of it and pain is just a part of the day for me. I'm used to my back or knee hurting, but not my head. With...
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My Details

My Friends (7)

sakineh1990
sakineh1990

Hi Dear Drs, I am 19-year-old girl from IRAN.i study...

loribeth
loribeth

i live in greenville,sc im 24 years old,a mother to...

kwangelface
kwangelface

Single mom of 2 teenage girls.  I had carpel tunnel...

sstott
sstott

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Jeffhubbydaddy
Jeffhubbydaddy

My name is Jeff. I am a 36 yr old and...

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My recent comments

DawnNREMTD
To :DawnNREMTD
On: neurofibromatosis type1 pt and mom (Post)

It would be nice to see something that I can relate with being talked...

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Jeffhubbydaddy
To :Jeffhubbydaddy
On: I've been in the hospital... (Post)

get well soon

Renee2009
To :Renee2009
On: I have NF1 and have Vibrating Nerves Sensations? (Post)

Renee,

if you lived out here in Los Angeles maybe you'd be ab...

Renee2009
To :Renee2009
On: Does anyone else have NF1 or 2 (Post)

Hi Renee, I'm new here and I just came across your post this morning....