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User Comments - canucklymie

kds_usa

Hi, my name is kacy and I live in lafayette, LA. I've had chronic lyme for 15 years and its really hard to find people around here with chronic lyme so I thought id add u!

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Cooter
If you support the call for a Lyme debate, please add a post saying anything! I'm sure you would add some very insightful comments to this effort.

www.thedoctorstv.com > Community > Message Boards > Feedback > "We need a debate on LYME!"


My goal is to get get the attention of 'The Doctor's' producers with a concentrated, semi-organized voice in one place. But this idea needs help in the form of supporting posts.

Feel free to correct me, make suggestions and offer other suggested experts for the debate panel.

If a lyme patient falls in the forest, and no one hears, do they really have lyme? Be heard!

Hope you're feeling ok and the youngsters are getting to 'see' their mom....
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Cooter
I'm sorry for what you have gone through - missing out on the developement of kids is heartbreaking.

I struggled for years to have my husband acknowledge what was going on with me. It must be especially hard to hear it from a MD partner. You are in a unique position, with medical knowledge yourself a MD husband who disbelieves and the illness you can see all sides of this craziness. I wonder how you have coped with the unacknowledging partner. I have wondered if I need a husband-ectomy just for health reasons, not choice.... FYI - and my reason for leaving this comment: I have added a request for a debate on lyme in the 'Feedback' message board, it could use some support. Thanks. I'll continue trying my best to fight for a better show on lyme.... Hope you feel better...
nmlymie

Please forgive my memory....it's like swiss chesse on good days.  I've spent many years trying to get those close to me to think I wasn't in fact crazy because all this isn't just in my head. 

I wish "Under Our Skin" would get some more press coverage across the world.

Us lymies have to stick together in order to get anything done!  I know several people in several different states and all of our stories are the same......mysterious illness, people thinking we're "crazy", misdiagnoses and etc and etc.  We need more people in this world like Burrascano, Burgdorfer and Alan MacDonald.

I've seen dogs with late-stage lyme disease and it's horribly sad and difficult to watch them without becoming emotional and here we are trying to cope with this.

This illness and it's co-infections are so damn complicated!!  I have also been diagnosed with EBV, Mono and CFS as well as HHV-6 and Babesia.  I'm sorry that your kids have to go through all this as well.   

I got sick when I was 17, just starting my life.  I was going to attend college out-of-state and my family and I have saved up since I was a child, but that money had to go to medical bills and I've been in debt ever since.  This disease has broken my spirit and will to live on so many levels but MOST of my family have been supportive.  I've lost a lot of friends because of being sick all the time.

Please take care of yourself.

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