About Me

I love life even with my disorder of Dystonia.I have Cervical and Cranial Dystonia. We are still trying to find a "fix" for getting me more  good days. My husband and I love to be on the lake in the summer months. And we love hanging out with our little 3 year old friend Eli. He keeps us going and keeps a smile on our face with all his little quips about life. We enjoy learning about new wines at wine tastings and we love trying new food. We use to travel alot but due to the economy that has been put on hold.  I have to admit I love tattoos and people's stories behind them. That probably sounds crazy but that is just me. That interest started when I was 45 and I am now 51. Now that is crazy! I love music! Together we have three children and they are in their 20's. My son gave us a wonderful daughter-in-law which has been a great addition to our family. No grandchildren in sight!!! I am interested in hearing from others with any suggestions or just a hello.

Susie

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My recent comments

Melony222
To: Melony222

It was great seeing Dystonia on the show today. I have cervical and c...

lufkinlady
To: lufkinlady

Your story sounds so sad. It is hard to live in daily pain. I ha...

msmagoo
To: msmagoo

I loved the show today also. I have cervical and cranial dystonia. It...

ivancraig
To: ivancraig

You seem to be a busy man. I am busy with Dystonia Awareness. My new ...