Constance

I wrote this in response to something someone wrote me and was blocked by the 10 comments rule.  I did this so as not to be rude and not respond.  I hope what I read was accurate and that this 10 comment thing will end shortly.  The comment posed to me was Lupus is not understood as something that can be serious, and that people don't always understand why sometimes we don't "look sick".  And how hard it is for someone to deal with family and friends who don't understand.  I know after talking with a lot of people on this site that a lot of Diagnosis, not just Lupus, aren't understood because we don't look sick all the time.  (Thank goodness you all can't see me now :0)

I actually saw a primary care physician one time a few years ago that told me I didn't have Lupus, because I didn't look sick.  I wonder if she takes that same approach to aides?  My mother thought I slept too much and was confused by my illness in the beginning, but especially now with the MRSA complications, she knows the severity of it.  It is hard, a lot of people, some of my co workers, they don't understand.  I work a Flex position, so I only work when I can, they see me on "good days" so they don't get that somedays are not so good.  This new shortness of breath, rapid heartbeat, and lightheaded stuff are new, and kinda scary.  I think my husband is concerned too, he says he's not but the last two nights, he holds on to me like a child clutching a stuffed animal, and wakes often and says he loves me.  It's nice, but I think he's at least a little concerned.