Well Ms. Lady,

I know things sound bad. With faith, things are not as bad as they seem. The kids are healthy, and thats a wonderful thing. Take that as a blessing and enjoy.Be patient and keep ur head up. All I can say is read. The more you feed yourself knowledge, God can use it to bless you with some insight. God uses your wisdom to answer all questions. Read and study your kids symptoms and give yourself options. If you are using DHS Medical that can be one issue right there. DHS medical, doesn't promise the best of care but that they provide care. You may have to choose another form of insurance to get the best care your children deserve. Its all about money. You have to pay for the best to receive the best. Good luck, to you and your family. I will be praying for you. Don't let frustration keep you down. and READ.

Hi, Your boys look so happy! It is a blessing that your oldest son helps you with them. Does DHS help with respite? You would probably need a nurse to come in because of the feeding tubes, sezures and medication. You, your husband and oldest son need periodic respite breaks for your own mental health. It is hard taking care of two children with special needs. I know this because I raised two children with special needs. In order to care for them you need to have breaks once in a while.

Have you asked DHS or Arkansas children's Hospital if there is some place in Arkansas that will take them to evaluate them, if not, some place out of Arkansas. Have you looked for a neurologist on line that specializes in children that have so many seizures a day? It is obvious that the meds they are on are not helping so they need different meds. But I am not telling you anything you don't already know.

I will keep your family in my prayers. I know prayers helped me when I was caring for my children.

May God Bless your Family,

Debbie

Thank you all for your responses, words of encouragement and prayers.  We will never give up or stop believing that one day our prayers will be answered.

I'm glad you are getting the equipment you need to help your kids but I keep hoping and praying that you and you family will find hope and help soon to either reduce or stop the seizures all together, I know how tough this most be on all of you yet I'm not pretending to even know what's going on because my seizures have been controlled for years though I still occiasionally have thembut nothing like your kids. I woner if all them medicines that the doctors keeping adding on to your kids cocktail are playing off one another and lessen the affects of what they are meant to do. You may want to ask your doctor that sometimes too much can be just as harmful as as not enough.

    Stay strong and please know that you and your family are being prayed for and in our thoughts everyday. Carrie