Post Comments - 102 days of pain.

dawnlkingan

MY MOM IS HAVING THE SAME PROBLOMS TEST AFTER TEST AND NO ANSWERS I AM HOPING FOR  SOMEONE TO HELP ME OUT ON THE MAJOR STOMACH PAINS THAT MY MOTHER IS HAVING KEEP US POSTED. OR ADD ME AS YOUR FRIEND THANKS  DAWN

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abott463

Thanks everyone. Im am going to wait and see about getting tested for lyme disease for now because I am going in for surgery on November 23rd where they are going to see if I have endometriosis, if they find nothing I will ask to be tested for lyme disease.

LymieLimey

Hi Katfish

 

The sooner you get tested for Lyme the sooner you can get treated and the sooner you start treatment the more likely you are to get better. It can be a very long process

the "usual tests" are notoriously poor.

Most people get a "test kit" sent up from The Igenex labs in California

 http://igenex.com

Check this site

feel free to ask them questions, I have always found them super helpful, they can tell you what tests would be best and how to pay for everything.

When you get the kit have your doctor sign the requisition included. Best to return the filled specimine tubes to them on a Monday or Tuesday so there is no weekend delay and they will contact your doctor with the results

For moral support check out the Canadian Lyme Foundation ( in BC)  www.canlyme.com

 

katfish40

Hey...

From Calgary as well. Experiencing some of the same symptoms. It first started out as "flu like symptoms" that left me with pain in my stomach, muscle twitches & IBS symptoms for about 4 months. Had numerous ultra sounds, xrays & and a CT done. - Nothing.

Stomach is now better but it was like it moved to my joints/muscles & nerves. My bones keep cracking everywhere- (which didn't before). My joints are not right - I walk around the office or move a certain way and I can feel them "pop". The twitches have increased in my lower legs and arms.

I went to see a naturalpathic doctor last week. He thinks it might be Lyme disease.

 

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I am in the process of trying to get tested but my Doctor has no clue what to do! What tests did you request?

Thanks,

aeschultz

Don't GIVE UP! I went through something similar...  I was never really sick or rarely went to see a doctor; besides to have my three children.

I had developed severe, dibilitating pain after a benign biopsy in my auxillary gland. At first I would get through the pain thinking it was part of the what happens after an excisional biopsy of the breast. Well my friend who's husband is a OBGYN told me I needed to go to the ER because their was something wrong and then my journey began...I was in and out of doctors offices and ER's when my pain was so dibilitating I was gasping for air, this went on for about 18 months and when I was to the Mayo Clinic in Rochester I was diagnosed with Reflex Sympathatic Dystropy;(I tested positive for it) which is a neurological disorder where my nerves didn't shut off after my surgery and continue to affect my right extremity and right breast.

Through this journey I went through MRI's, CT scan's, x-ray's, etc, etc and tried many medications... that didn't seem to work. I also was at 3 to 4 different medical facilities; like you. I went from physician to physician until a found a physician who believed in me and was willing to take the time to help me, but it took me a while to find her. I thank God I did!

Now that they have diagnose me with RSD I am able to understand it and learn how to manage it. I recently had a surgery in the same area which they believe to be a neuroma from my first surgery. Hoping it will lesson my pain.

So don't give up; be persistant and don't give up!! Find a good support team: Family, friends or a church group.

I will keep you in my prayers!

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Larissalle

Your symptoms are almost exactly like mine. I was vitamin D deficient. Get your vitamin D blood level tested. From your symptoms, I'd say you're about a 15 ng/ml in the deficiency range. See my profile for details on what to do if you are indeed deficient. It took 22 doctors, CT scans, colonoscopy, heart stress test, a multitude of ob/gyn exams, treatment for irritable bowel syndrome, vaginismus, interstitial cystitis, pain clinic classes and biofeedback for chronic pain and on and on and on till finally one of the doctors ran a vitamin D test. And now 99% of my symptoms are gone. Definitely do the vitamin D test, read my profile, and if you have any questions, please let me know.

Larissa

 

bclymie

 

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bclymie

 

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Joanne Drayson

Just for the benefit of the person who commented with a Lupus diagnosis many peolpe have been diagnosed wrongly with Lupus and then found that it was Lyme and on correct treatment of antibiotics for what is actually a bacterial infection they get their health and lives back. See the trailer of Under Our Skin at www.underourskin.com  Have a look through their blogs and other exerts from their DVD you will be astounded at what you see is going on.

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abott463

Thanks everyone. Feb. 1st is the closest appointment that my faimily doctor could get me with the rheumatologist, it would have been a longer wait but she snuck me in throught the back. We phoned the rheumatologist to see if we could get the appointment moved up any closer but they said that they were completely booked and said that they would put me on a waiting list so that it and appointment was cancelled I could take it.

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