I have heard of the gastric pacemaker. In fact, I am in the process of being referred to Virginia Mason Hospital in Seattle to have the pacer implanted. It is considered a HDE by the FDA and can only be performed at specific hospitals, BUT the outcomes so far from the treatment seem promising.
I totally agree that there needs to be more awareness about this disease! It took me 5 excrutiating years to get a diagnosis, and I am not alone. It seems that more and more young women are being affected by this chronic illness, and there is no research being done to find a cure or better treatments.
I was prescribed domperidone for gastroparesis, but did not like the side effects, I have been taking 10,00 mg of probiotic from the health food store and this seems to be working, I avoid white bread, and a lot of starch. Chew food well and liquids help
I actually did suggest it to the show right before I posted the blog.
I have been twittering and working on my website and I hear things like "it is even more shocking when I go to the hospital for treatment that none of the technicians working on me know about Gastroparesis considering how many people have it" and others like always lonely who did not know the condition had a name.
I feel like I am trying to swim through syrup when it comes to getting the word out about Gastroparesis, but every journey starts with one step and every movement begins with one person walking, so I guess I will start walking and talking and hope others that suffer from it will join in and add their voices.
have you heard of the pace maker that they can install inside your stomach to make it empty like it should or close to it? I saw or read about it somewhere but can't remember where for i also have emptying problems always bloated etc. etc. Did not know it had a name, can you write back to me so i can ask a few questions? Hope you feeling well, Margie.
Post Comments - Gastroparesis
I have heard of the gastric pacemaker. In fact, I am in the process of being referred to Virginia Mason Hospital in Seattle to have the pacer implanted. It is considered a HDE by the FDA and can only be performed at specific hospitals, BUT the outcomes so far from the treatment seem promising.
I totally agree that there needs to be more awareness about this disease! It took me 5 excrutiating years to get a diagnosis, and I am not alone. It seems that more and more young women are being affected by this chronic illness, and there is no research being done to find a cure or better treatments.
I was prescribed domperidone for gastroparesis, but did not like the side effects, I have been taking 10,00 mg of probiotic from the health food store and this seems to be working, I avoid white bread, and a lot of starch. Chew food well and liquids help
My friend has had sustained nausea for two years because of Vagus nerve damage from diabetes. She is taking
Domperidone before she eats anything, but still it only helps marginally. She takes Reglan also. Is there anything
out there that might help? She really can't take the nausea anymore....she would rather be in pain!
Thanks!
I actually did suggest it to the show right before I posted the blog.
I have been twittering and working on my website and I hear things like "it is even more shocking when I go to the hospital for treatment that none of the technicians working on me know about Gastroparesis considering how many people have it" and others like always lonely who did not know the condition had a name.
I feel like I am trying to swim through syrup when it comes to getting the word out about Gastroparesis, but every journey starts with one step and every movement begins with one person walking, so I guess I will start walking and talking and hope others that suffer from it will join in and add their voices.
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Always Lonely, it is called the Gastric Pacemaker made by Medtronics.
You can check out http://www.gastroparesis.webs.com to learn more about Gastroparesis and can contact me through there.
have you heard of the pace maker that they can install inside your stomach to make it empty like it should or close to it? I saw or read about it somewhere but can't remember where for i also have emptying problems always bloated etc. etc. Did not know it had a name, can you write back to me so i can ask a few questions? Hope you feeling well, Margie.
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