SLDunn,

     Hey all, so glad you have found this site.  So much has changed since I wrote this.  I have been eating healthier, walking almost every night, I've lost 70 pounds, and I have been making sure I get enough sleep.  I have been feeling so much better in fact that I took a new job.  It's been keeping me very very busy.  I still have bad days, still have aches and pains, and the issues that are a fact of life, but I have been doing really well since I started sleeping appropriatly.  I will be prayiong for you all.  I hope you all can find some relief also.

Michele

Hi Michelle,

I was diagnoised with Lupus January 1966. I became ill weeks before Thanksgiving, 1995. I felt so bad eventually I tool a sick leave from work because I was too weak to get out of bed. My doctor at that time began to perscribe medication for me without seeing me; pain pills, pills for dizziness, etc. Although the medications were not working I continued to take them hoping he would find something else to help. I spent my days going back and forward from the livingroom recliner to the bedroom. Like you. I had slight fevers, body aches, I was weak, my speech was slurred and my comprehension was not as it should have been. My skin rash was so severe the doctor said it was Shingles. I have flare ups often.

I totally understand your pain. It was very difficult to leave my job of 18 years due to Lupus and all the drama that comes with it. The only thing that ease my aches is a hot shower. I do struggle to stand up in the shower but after a while, it feels greatttttt!

Shirley

Hi, I was searching the Internet and found your blog.  I also have Lupus, and am going through my second full body, kick you to the floor flare.  I was diagnosed with this in 2003, but have been very lucky, as it was only limited to my skin and a few joints and such.  I have my first full blown flare a year or so ago, but thought it was the flu.  This time I knew differently, flu has never felt like this.  I feel exactly as you have written!  I was in denial, and didn't want to admit that this was what Lupus was like.  I hope you answer back to this, I know you posted awhile ago.

Kendra

Hello Michele, First I'd like to thank-you for Your well wishes. Second, I pray for You!. My cousin has Lupus and I know how it affacts your life. I also Know how hard it is to keep up the fight. I too have periods of depression,It goes with the territory. Don't knock the sleeping part, it's one way our bodies heals. If Your body can handle moist heat it does help relax your mussles and can be a temporary bandaid. Please take care, andd rember to be kind to Yourself. Hang in there! Liba