I have Chronic Lyme disease too and have been misdiagnosed for 17 years.. My daughter has it also and was misdiagnosed her whole life but more in the past 8 years..We finally found a dr in NYC that will treat us.. She was diagnosed first and her treatment went well .. She still has some issues but is back at work and functioning well.. I was diagnosed 2 years later and went right to her Dr and trying to fight this horrible disease.. I am now on 2 IV antibiotics and 2 oral ones. My daughter was told it was in her head and theres nothing wrong with her but anxiety.. Its fruatrating and we are thankful that there are a select few doctors that will treat out of protocol.. They risk their license everyday because they believe us. I love my doctor he is amazing..

Hi. I went 19+ years undiagnosed and am now 3 1/2 years under treatment. Started with HBOT and antibiotics. Now am at 65 pills a days to keep me out of bed most days! I have trouble with seisures (injured Crainial Nerve and all that goes with that!)

Hi. I went 19+ years undiagnosed and am now 3 1/2 years under treatment. Started with HBOT and antibiotics. Now am at 65 pills a days to keep me out of bed most days! I have trouble with seisures (injured Crainial Nerve and all that goes with that!)

Thank you pinkers for your concern and best wishes.   dvreeland