About Me

I am a 25 yr old married mother of 2. I love my kids and husband, they mean the world to me.  I worked at a local hospital until beginning of the year.  My husband and I were married September 16, 2006, we were High school sweethearts.  We have a son Austin he will be 2 the end of September.  And we have a daughter Kaylyn which is 2 months.  In June 2009 our daughter was born with Transposition of the Great Vessels. I had a normal pregnancy until my 24 wk check up my doctor had done a routine ultrasound and mainly was focused on the heart. Having some medical background I knew something was wrong. He sent me to a specialist to confirm what he thought might have been a heart defect. The specialist confirmed that is was A-V canal Defect and that she would have a 60% chance of having down syndrome. Immediatly I had the option to have an amino to rule it out. Test came back all chromosomes where normal. Toward the end of my pregnancy they were considerned saying that my baby was extremely under weight at 36 wks gestation she weighed 5lb 9oz whiich is not that bad in my own opinion, to top that off they also said she had a really high risk of being still born. I was induced at 38 wks 5 days. She weighed 6lbs 9oz. She was immediatly taken to Riley Hospital for Children in Indianapolis, I was in the ajacent hospitial so that I could leave at anytime to see her. She had an echo done the morning after birth, the doctors seen somethings they didn't like, came back done another of which we were sitting right there. And he said "well I was wrong" .... She had a Cardiac Cath done that day to make the whole in her heart bigger, was given prostoglandins. She then had open heart surgery at 8 days old. The surgeon said that she still has a small ASD but if it doesn't heal over time they can go in with another Cath and fix it. As of right now she is off the lasiks and has to take 1/2 a baby asprin a day for another 2 months. I pray that they will make people more aware of what CHD is, and maybe a support group to talk with other families in the same situation. Jennifer ~ Mother of Two Angels ( Austin 2yrs old and Kaylyn 2 months old)

Mrmrsschneider

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