I would like to thank Melissa again for pointing me toward the " Seronegative Spondyloarthropathy " mentally it made me feel better. I've been w/o sleep for a day and a half the "PAIN" is mind blowing now of my meds are working gonna take humira shot 2day to see if that helps. I was in so much pain last night I for got to take the "Amitriptyline" for sleep, really don't think it would,ve helped. This disease is " word can't even describe it!!. I gotta get someone to get me humira shot because of hand cramps. If I had a chose between this disease and a RA and or a tooth ache, " I'll take RA with the tooth ache. I had to get rid of my guns becuz I've had days where I coulda shot myself in the head just to rid myself of the horrible pain. But I alway go back to what my mom would tell me at age 12 dealing with RA " Son there's always someone worst off than u". So I take this as a bump in the road and am thankfull to be alive. It seems my friends, sisters, my kids take this harder than me. It's days I'm in pain and won't say anything. And I would like to thank people here on the Drs Site for ur advice/ concerns. Thank U just isn't enuff. I'm mainly trying to shine a light on a disease that people suffer with in silence and doctors seem to not know much about.
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You are welcome for the help! Willing to help when I can. Someone also told me awhile back that there was someone always worse off than me. I think of that often. Maybe you can show your doctor the information from the link regarding the Seronegative Spondyloarthropathy, that might help them.
Melissa.
Your mom is right. I try to keep that in mind when I am having my bad days.
Your mom is right. I try to keep that in mind when I am having my bad days.
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