On August 15 at 12:00 Noon was my first Chemo Treatment to try and control the progression of the Spondylitis and Degenerative Joint and Bone Disease. I was told I stop breathing after 3 hrs of the treatment. I do know my heart rate went up to 140. I'm just so weak but have no spinal pain, My lower spine is tender but I'm trying to recover. I'm a little stroner than yesterday. I know...

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To everyone may you have peace in your lifes and enjoy the holidays. And especially you Melissa thanks for the comments. Well I really came here today to give everyone and update on my last two dr. visits. On Dec 6 I saw Podiatry and they decided I needed to have a special ankle and foot brace made for my right ankle and foot. But during this visit it was determined I have Seronegative Spondyloaropathy...

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Jamie maybe you can get me more insite to this one but all my friends feel free to jump in because I'm confused myself. Why is it when a person has more than one ailment most doctors get puzzled on how to treat you. When I go to the VA for my doctors visits I laugh inside when they send in a new intern or new doctor to look at my chart before my dr...

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My seronegative spondyloaropathy.wordpress.com blog was shut down by me on August 9th due to problems another site will be opened soon. I was having problems sending that blog site to my stumbleupon acct but my other wordpress blog sites were sent with no problem. When I checked wordpress kept saying SITE DOES NOT EXIST so I deleted the site. I was still able to see the site from wordpress.com but others couldn't find it anymore....

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Today I awoke between 10:30am and 11:00am in the most extreme PAIN my brain could imagine, my body was just screaming in pain, but I still got up and got ready to go to physical therapy and WTH my ride came late so I had to reschedule for Sept 3rd, probably wouldn't have made it through PT anyway. So a friend came through and told to try a med she takes for pain ( I...

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Today my friend spondyloaropathy and my cousin fibromyalgia were posted on my 874healthmyblog.wordpress.com site, because they don't wanna play NICE-NICE HOPEFULLY they will get along sometime before midnight. Because today is a real WALK OF PAIN!!! no matter if I'm walking, standing, sitting or lying down. All I can say to my friend and cousin is CAN WE ALLL JUST GET ALONG (LOL)

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I POSTED A SIMILAR POST ON MY BLOG SITE:874healthmyblog.wordpress.com Living with seronegative spondyloaropathy is hell. It's 84 in chicago today I stepped outside for 3 minutes to look at a friends coolant system on her truck and my muscles started to cramp and spasms started in my lower back, and the funny part is when I tell some of my friends that they look at me and say you're just making excuses to stay inside, that's...

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I've been away for a minute I hope everyone has been doing ok. I start physical therapy the first week of august so that I can go into the pain clinic and I'm still taking Sulfasalazine along with my other meds, I can say my stiffness has decreased some. And I'm back to writing songs on my good days. Melissa I hope ur doing better and I wish the same for all my friends here....

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I went to my doctors appt June 11th with Gen med and my blood pressure is normal and I will be off lisinopril very soon. But other than that not much change. My muscle pain is worst and the EMG had to be stopped becuz when the small amount of electric current that was sent into my veins in my legs caused my muscles to spasm hard, so the dr. wasn't able to place needles...

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Ok 2day I had my EMG and it was inconclusive for torsel tunnel, because my right leg spasm so bad during the first part of the EMG, the doctor was afraid if she put the needles in the muscles of my right leg, it would spasm and cause more damage. Then I saw the P.E/Rehab doctor and says I have tendonitis in the right ankle/ possible pitched nerve/severe arthritis and possible torsel tunnel in my...

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Hello everyone I'm glad to read on my friends progress. I went to my doctors appt May 24th. Only to find out from my RA dr. that my muscles aren't working/ the tendons have taken over the musles functions, and that the MRI of my right foot shows a possible trapped tendon/nerve. And the MRI showed the nerves/joints are swollen. I did lose weight so I went from 227 down to 211 which I wanted...

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My doctors visit was f****** depressing. I get to the podiatry clinic, first as always I see a student, he pulls my file up on the computer and says WOW, HMM, WHAT!. Then he walks out of the office walks n w a doctor who I've seen once before. They both get on the computer/start making the same sounds with these puzzled/shocked looks on their faces, and say we found nothing on da MRI taken...

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My day was going fair spent allllll day @ the VA hospital was n extreme pain slept untill 12noon. Then hospital called and said MY CUSTOM MADE CRUTCHES ARE READY.  WTH well it is what it is. My crutches 4 life. I hope everyone is doing Ok. One Love.

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Hey fam I've not been around 4 a while Since Jan 11th I've been going 2 da doctors 2-3 times a week. My right leg/had isn't responding 2 treartmt as My RA/ Podiatry Dr. thought. So now they're debating back/forth becuz podiatry wants to put me n a electric wheel chair/ RA wants 2 try a cusom made walker especially made for my needs. To everyone who left me messages thank u so much.

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I hope everyone is doing better health wish and that we all can enjoy 2010 in as less pain as possible. Melissa it's great to hear from u as always. I have 2 dr, appt Jan 11th. Will keep everyone updated. Much Love/Peace to All.

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Hey my friends I know I've been missing I took 4 weeks away traveled to Michigan/ Indiana w band. Brianna thanks for ur comment and I will look in 2 those braces u mentioned. Melissa hope ur doing ok and everyone who is in r small knit group. I'm n chicago now @ my daughter house will be returning 2 Joliet sometime 2day. Will keep u all in my prayers

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Hello my familia on Doctors: Today I had an appt with my podiatrics and he checked my feet( right foot is the problem child) So the shot I was given with the big needle through the bottom of my foot into the nerve in July didn't work in stopping the imflammation/pain. So he made me temporary foot braces for both feet to go along w my shoe inserts. Then he says stop using ur cane everyday...

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I've been gone a few days becuz saturday was my birthday, which I spent w my family. My wife and I went out to talk about our failing marriage,(It Is What It Is) and had a nice dinner. On sunday I went to Chicago where friends suprised me with a BBQ and my daughter/ I took pics 2gether. As we go through the struggle, the grind and the day to day up's/downs of life. What has become...

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Just as I was morning da murder of a step daughter yesterday. My oldest daughter who I haven't seen in 26 years contacted me through facebook. Her mom helped her find and told her to contact me. My daughter Sheri is 28 years old and is a single mom of 2 children. We talked briefly via phone and the only thing she said is " dad da past is da past all I'm asking for is...

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Just to get everyone a climps of my life: My mom died when I was 14 from breast/lung cancer. She spent years in and physically/verbally abusive marriage with my step dad who hated me becuz of my mix race, and who kicked me out a week after my mom's dealth. So I hit the streets hustling, moved in with a god mom, whose husband was and alcoholic, and was abusive to my god mom. I...

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