I had an infusion of Reclast last September and am now newly diagnosed with severe fibromyalgia and am barely able to walk, using a scooter or a wheelchair, once in a while a four-wheeled walker. Before the infusion of the Reclast, I was able to walk with a cane and on "good" days, I could walk freely. One Doctor says Reclast has not caused my problems; another Doctor thinks Reclast caused the fibromyalgia and my losing the ability to walk. I am in a lot of pain most of the time, I take medicine (neurontin) three times a day and it is difficult to wait until it is time for the next dose. I'm getting weaker by the day. Has anyone else had something like this?
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Hi GramAnnie, I take Fosamax and have taken Actonel. I haven't noticed any problems to this point. I have thought about asking my Dr. about the Reclast simply because I'm not real good at remembering to take the Fosamax on my assigned day. So when I read your blog, I researched Reclast. I went on webmd.com, womantowoman.com and drugs.com. Woman to Woman dot com and drugs dot com explain in detail about Reclast side effects and adverse side effects. They both mention myalgia's. (I also went on the FDA site)
What you are explaining here and what I read on those sites, I'm guessing you are having an adverse reaction to Reclast. Please go to those sites and check the adverse reactions listed. I would take that information to my Dr. Remember, you know your body better then he/she and you know when something isn't right. Best to you.
Hi Winddancer, Thank you for the information. When I checked, I have most of the symptoms, including jaw pain. I used to take Fosamax and it caused such severe stomach problems, we figured Reclast was the answer. When you talk to a doctor about Reclast, they don't tell you about the severe symptoms, that is what is so frightening. Reclast is also very bad for a person on chemotherapy and my friend's doctor suggested it for her; it's a good thing she knew what happened to me and refused it. I brought a lot of information to my family doctor (now former family doctor) and she didn't even want to look at it. The specialist says if it was a reaction to Reclast, I would be getting better, so since I'm getting worse, it can't be Reclast. There is only one Doctor who believes that it is Reclast and that doctor also thinks it caused my fibromyalgia.
As of now, on the Neurontin, I'm having swelling, dry mouth, increased appetite and weight gain. Before my dose wears off, I'm in pain again.
I just don't understand why I'm not getting better, when it has been almost 9 months since my infusion. I tell everyone that I know that it is poison. I've made a complaint with the company and the FDA. I hope EVERYONE reads this and is warned. Thank you again, Winddancer.
GramAnnie, I feel you're doing the right thing. Making people aware. Have you logged on to womantowoman.com? Great site. Do a search on Reclast or Fosamax. Very interesting.
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