Hello,
here is a up date of my health from my recent fibro..attack..I'm feeling different pains again..
Every 3 to 4 hours I need my Percocet...and I take Neurontin..300mg..3 times a day
Thats not all I take!! My Med Bag is Large! Feel Free to read my Profile/about myself..
Is a little long...Still waiting for Doctors reply..
I'm Bummed
Peace
Cherie








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Hello Cherie, I too have Fibro with untolerable pain. My prayers and hope for a cure is being sent your way. I KNOW how hard it is for you!!!! It has been devastating for me too! HANG ON--whatever keeps you going each day...find joy outside of your physical pain (i.e. listening to children laugh, hot chocolate, good movies, whatever brings you little bits of happiness). I need to remind myself of this too, as the pain pervades so much of our being doesn't it? Many modalities and meds tried too---NOTHING really brings the pain/fatigue to a long-term managable/functional level for me, and it sounds like so many others. Have you tried the new Savilla, specifially for Fibro? I just started it and it doesn't help my pain much, but did help my energy/fatigue a bit. Was able to exercise 5 days the first week (1st time I could do that in about 3 years!), after that I had a foot injury so it's hard to tell. I was on Neurontin early on and felt like a Zombie, switched to Lyrica and it worked to help w/pain a bit and sleep without the intense added zombie factor.
Maybe The Doctors can get involved shedding light on practical resources for support (i.e. housework, childcare, inability to work etc., chronic pain aids/support)for those with Fibro who aren't helped enough by current medical modalities and meds.
And The Doctors could help in finding a CURE for FiBRO!!
Hello Tammyshammy,
Finally someone who know what it is to live with &^%^$$Fibro.............
Thank you..so much for your comment.......
Yes I have tried all the drug you have mentioned......
I have had different Side effect. From all of them like... depression, more pain, severe weight gain...
how about 100 lb. in the past 4 years.. Swelling and remember if ya read my profile. I have Lymphedema and Lipidema. I'm alredy swelled my legs are huge..from the 4 back surg..
Hey we need a..... RIBBON......
Like ahh.... Green.... how about that color....Don't get me wrong I do get a couple good days..
I ride my 2006 VStar yamhaaa. I love my bike!! and yes It has a handy cap Plate on it...
I have a beautiful garden in my front yard...
Good kids, and a fun husband..
Walking is my biggest ptoblem...lots more I could write a book...
Peace
Cherie
Hope you can read what I Just wrote......Somethings wrong...
Hi
I am new to the show but have you gotten a respone from anyone yet?
Hi Lizgate and Cherie. No, I haven't heard from anyone yet.
Great to read your comments Cherie. I'm thinking of you and hoping you're having a good day. Yesterday, not so great, but today is better. One day at a time :). Your bike and garden sound nice, along w/your sweet family. It sure makes a huge difference!
Take care.
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