Can't get DIAGNOSIS CORRECTLY in FLORIDA *** HELP MY SISTER PLEASE***
I am writing you on behalf of my sister Jennifer P. M. from Florida she will be 39 on July 15th, 2009. She has been in and out hospitals and seeing many different Doctors for 2 plus years now and NO ONE can tell her or treat her correctly for what is wrong. She was an employee of the United States Postal Service for many many years and a few months ago lost her job and insurance coverage. The many Doctors she has seen has given her many many diagnosis over the years from... dermatitis, lupus, rheumatoid arthritis, raynaud's, she had blood work done last week and now her White Blood Cell Count is very high (that is why they put her on the dexamethasone) I know there are a couple more that I can not think of right now. She has been on and off prednisone and is now on dexamethasone to help her with the swallowing and pain in her hands / joints. And several other powerful medications. When she gets up in the morning she is like a feeble old person. She needs help out of the bed, someone has to help her to the bath room, sometimes even to help her eat...etc. But the crazy thing is by 3:00 - 4:00 in the afternoon she is a WHOLE different person still with pain but she functions SOOO much better. My sister has a loving husband, a 9 year old daughter, 2 step children and a whole lot of people that love her very much. We all hate to see her in so much pain and discomfort. Right now as I'm writing this to you my sister is sitting in the hospital in Jupiter, Florida having more test done to try and figure out why her leg is going numb and is starting to drag when she walks. I know this is probably a shot in the dark but we don't know where else to turn. Any help will be GREATLY APPRECIATED! I should of added this at the top. Our father passed away in 1988. He constantly was in pain similar pain to my sister but our father was never diagnosised I really don't know the reason why. He had surgery to fuss his knee joint in one of his legs to help with the pain in his knee. He had polio when he was a child. I remember my father wanting us to rub his legs with BEN GAY all the time because he was always in so much pain. Now with my sister in so much pain kinda like my dad was it makes you think about if there is a connection with the pain my father lived with for all those years. My father commented suicide from all the pain and the doctors wanted to remove his leg to help with his pain. PLEASE HELP MY SISTER WITH HER PAIN. Thank you for all that you do for everyone! My name is Mary P.-S.
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I myself would be interested in hearing about the numbness in the legs.
I dealt with this a few years ago after a terrible fall at work. Mine were
only going numb from the knees down. I had tests done that supposedly
showed a blockage that my doc was supposed to follow up on, to see if
it was changing, but that was a few years ago an he never ran the test
again. What ever the problem was it cleared up on it's own. Any way no
numbness. I do have Raynaud's, no cure for that, I am told, wish there
was. Sludge
Thank you for your comments. It means a lot to know there are people out there that still care and have a kind heart. I will pass this information on to my sister and her husband. She was admitted to the hosptial yesterday and they are still running test. She is in great spirts. Again thank you!
She does have RA written all over her. Pink is right on that assumption. Her symptoms are "text book"....not able to get out of bed in the morning, but a different person later on in the day. Movement is the only way to get rid of the joint pain. Why does she have trouble swallowing? Does she have a Goiter or a thyroid disorder? Her dragging leg could be due to Sciatica. I see alot of people with Raynaud's who have Sciatica as well. I hate that your Sister and other people have to go through this. Sometimes it's hard to distinguish between these Autoimmune disorders. The symptoms overlap and run together which makes it hard to get a right diagnosis. The good thing is that treatment is universal for them all generally. Someone with Lupus already has a weakened immune system, throw steroids in the mix...the risk of infection is higher. Identifying a possible infection is key to people who have Lupus.
Well I just talked to my sister and she is on her way home from the hospital and the good news is AFTER ALLLL the tests that were done. From MRI, CAT SCAN, and lots and lots of blood work. They found NO CANCER or ANYTHING WRONG with her. He Nerolagist (can't spell) told her that HE THINKS she CROSSES HER LEGS to MUCH. So he is suggesting phy. Theapoy. GO FIGURE. Oh her RA told her to start cutting back on her dexamethasone and he wants to see her on Wednesday. I've been telling her that the reason her leg was numb is because of the dexamethasone. As it started RIGHT after she started taking it. I also suggested to her to go to the Chiropractor for an ajustment. It would probably fix the numbest in her left leg.
KJONES thank you for writing...I did ask my sister if she had a Goiter or a thyroid disorder and if she had trouble swallowing and she has NO problems with any of these. All is good there.
I wish I lived closer to my sister so I could go see her DR's with her.
Well, sounds like she got encouraging news. I thought about blood/cancer disorders but I didn't mention it because most Docs will check for things like that first in someone with your Sister's symptoms. I hope she finds a treatment that is right for her. Corticosteroids are a miracle for some people, but unfortunately their side-effects aren't pleasant.
I know what you are saying. We will see what the Dr. says Wednesday. Again thank you for your help.
HEY bIG mOMMA! Pinks and Kjones sound like they know a lot more about this stuff than I do, but I have been diagnosed with Vasculitis; there are many forms of it! RAYNAUDS IS ONE OF THEM. Has she had an anca test done? When I started having numbness and pain in my feet, they first checked my back, found out it was'nt the cause, so they did a biopsy of a nerve in my ankle, that's when they found the vasculitis. I don't know what kind I have yet but, all kind's are basically treated the same way. I'm feeling preetty good now, althouth it is a chronic condition; I started with my pain weakness and numbness in 1996, and was not diagnosed until 2006! The prednisone I have been on helps so very much. good luck to your sis ,catcatcat ps look at vasculitis.org and yes, get a good rheumatoligist.......
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